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Little Legs Big Heart Foundation Inc

EIN 99-1313040 · West Palm Beach, FL

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthWeak41 out of 100GovernanceWeak39 out of 100Impact evidenceDescribes programsHow well its results are evidenced

Points to look into

  • Raising each dollar of donations cost 81 cents.

These come from the organization's own tax return. There may be a good explanation; ask the charity.

What it says it does

THE LITTLE LEGS BIG HEART FOUNDATION IS COMMITTED TO ENHANCING THE LIVES OF INDIVIDUALS WITH SKELETAL DYSPLASIA BY ENSURING ACCESS TO SPECIALIZED MEDICAL CARE, FUNDING ESSENTIAL TREATMENTS, AND ADVOCATING FOR INCLUSION AT BOTH LOCAL AND GLOBAL LEVELS. WE PROVIDE EDUCATIONAL RESOURCES, SUPPORT GROUNDBREAKING RESEARCH, AND FOSTER EMPOWERING COMMUNITY CONNECTIONS THAT PROMOTE RESILIENCE, INFORMED DECISION-MAKING, AND IMPROVED QUALITY OF LIFE.

Income
$175,675
Spending
$164,301
Reserves
0.8 months of spending
Largest source of income
donations and private grants, 100%
Employees
0
Volunteers
1
Highest pay
$6,000, president

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Weak: 41 out of 100. Higher than 9% of charities in its peer group (diseases, under $250k).

  • Reserves

    4 of 35

    Spendable reserves would cover 0.8 months of spending.

  • Debt

    10 of 20

    It owes 43% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 6% of income.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Weak: 39 out of 100. Higher than 15% of charities in its peer group (diseases, under $250k).

  • Independent board

    18 of 25

    3 of 3 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. THE LITTLE LEGS BIG HEART FOUNDATION SUPPORTS INDIVIDUALS WITH SKELETAL DYSPLASIA AND THEIR FAMILIES THROUGH ADVOCACY, EDUCATION, AND COMMUNITY OUTREACH. THE ORGANIZATION PROMOTES INCLUSIVITY AND ACCEPTANCE WITHIN THE DWARFISM COMMUNITY, PROVIDES RESOURCES AND EMOTIONAL SUPPORT, AND WORKS TO IMPROVE QUALITY OF LIFE THROUGH AWARENESS, MEDICAL CONNECTIONS, AND EMPOWERMENT INITIATIVES.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since April 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.