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Sickle Cell Disease Foundation of California

EIN 95-6155962 · Ontario, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthWeak45 out of 100GovernanceGood74 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

To build a world where individuals with Sickle Cell Disease get the care and compassion they deserve.

Income
$1.9 million
Spending
$3.1 million
Spent on programs
85%
Reserves
3 months of spending
Largest source of income
government grants, 61%
Employees
21
Volunteers
0
Highest pay
$215,000, president and ceo

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Weak: 45 out of 100. Higher than 10% of charities in its peer group (diseases, $1m to $10m).

  • Reserves

    20 of 35

    Spendable reserves would cover 3.0 months of spending.

  • Debt

    10 of 20

    It owes 38% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 59% of income.

  • Income trend

    0 of 15

    Income fell 45% on the year before.

  • Spending floor

    15 of 15

    85% of spending went to programs and raising each dollar of donations cost 1 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 74 out of 100. Higher than 21% of charities in its peer group (diseases, $1m to $10m).

  • Independent board

    5 of 25

    0 of 12 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    9 of 15

    Its accounts were reviewed or compiled by an independent accountant, but not audited.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $1.4 million spent. Networking California for Sickle Cell Care NCSCC - 2025 Program Accomplishments. In 2025 the Sickle Cell Disease Foundation SCDF in partnership with the Center for Inherited Blood Disorders CIBD continued to co-manage the Networking California for Sickle Cell Care NCSCC a statewide initiative designed to improve access to comprehensive care for adults living with sickle cell disease. The program supported a network of 12 multidisciplinary specialty clinics providing coordinated medical care Community Health Worker CHW services care coordination patient and family education behavioral health support and connections to community resources. During the year SCDF provided leadership in Community Health Worker for workforce development patient navigation community engagement performance monitoring data collection and statewide collaboration among clinical and community partners. The program continued to improve access to knowledgeable providers strengthen care coordination and reduce barriers to care while advancing sustainable reimbursement for CHW services through Californias Enhanced Care Management ECM program. These activities furthered the Foundations charitable mission of improving health outcomes and quality of life for individuals and families affected by sickle cell disease throughout California.
  2. $363,624 spent. The GDSP Newborn Screening contract centers on statewide NBS follow-up and counseling. The core activity is following up on positive newborn screening test results for sickle cell disease trait and providing counseling to affected families
  3. $260,491 spent. Mental Health Services: SCDF provides culturally responsive behavioral health services for individuals living with sickle cell disease and their families. Mental health professionals offer individual counseling emotional support crisis intervention and referrals to address anxiety depression chronic pain grief and other psychosocial challenges. Integrated with Community Health Workers and care coordination these services promote emotional well-being improve quality of life and support comprehensive whole-person care.
  4. $587,759 spent. Other programs include the following: HRSA NBS PSCRC Family Programs and Services.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since July 1967.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.