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Prader-Willi California Foundation

EIN 95-3480752 · San Diego, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

INDIVIDUALS WITH PRADER-WILLI SYNDROME PWS SHOULD HAVE THE OPPORTUNITY TO PURSUE THEIR HOPES AND DREAMS TO THE FULL EXTENT OF THEIR TALENTS AND CAPABILITIES. THE SUCCESS OF PEOPLE WITH PWS DEPENDS GREATLY UPON THE KNOWLEDGE AND SUPPORT OF THE COMMUNITY AROUND THEM. THE ORGANIZATION PROVIDES INDIVIDUALS WITH PWS, THEIR FAMILIES, AND PROFESSIONALS WITH A STATE NETWORK OF INFORMATION, ADVOCACY AND SUPPORT SERVICES.

Income
$241,825
Spending
$194,584
Spent on programs
75%
Reserves
56.4 months of spending
Largest source of income
donations and private grants, 64%
Employees
1
Volunteers
12

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 82% of charities in its peer group (diseases, under $250k).

  • Reserves

    35 of 35

    Spendable reserves would cover 56.4 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 20% of income.

  • Income trend

    15 of 15

    Income rose 11% on the year before.

  • Spending floor

    15 of 15

    75% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 91% of charities in its peer group (diseases, under $250k).

  • Independent board

    25 of 25

    180 of 180 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $59,735 spent. AWARENESS PROGRAMS - PRADER-WILLI CALIFORNIA FOUNDATION HELD NUMEROUS EVENTS TO RAISE THE PUBLIC'S AWARENESS OF PWS INCLUDING: A STATEWIDE VIRTUAL WALKATHON EVENT THAT WAS LIVESTREAMED PRODUCING AN ANNUAL HOLIDAY GREETING CONTAINING INFORMATION ABOUT PWS.
  2. $49,770 spent. SUPPORT & ADVOCACY PROGRAMS PWCF PROVIDED QUARTERLY SUPPORT GROUP MEETINGS FOR PARENTS, AND ONLINE SUPPORT MEETINGS FOR PEOPLE WITH PWS. SUPPORTED THREE PWS CLINICS THROUGHOUT THE STATE TREATING HUNDREDS OF CHILDREN AND ADULTS WITH PWS. PWCF FACILITATED SUPPORT GROUPS, WROTE LETTERS OF ADVOCACY, AND ACCOMPANIED PARENTS AND FAMILY MEMBERS TO SCHOOL MEETINGS, REGIONAL CENTER MEETINGS, AND HEARINGS. EACH OF THESE PROGRAMS SERVED TO PROVIDE FAMILIES WITH NETWORKING AND SUPPORT OPPORTUNITIES SO THEY FEEL LESS ISOLATED AND MORE CONNECTED WITH OTHER PWS FAMILIES AND PROFESSIONALS. PWCF PROVIDED SUPPORT TO FAMILIES DURING COVID, MAKING SURE THEY WERE AWARE OF HEALTH UPDATES, AND VACCINATION ACCESS.PWCF ALSO SIGNIFICANTLY REVAMPED ITS WEBSITE TO ENHANCE FUNCTIONALITY AND PROVIDE THE MOST UP TO DATE RESOURCES TO ITS MEMBERS AND THE COMMUNITY.
  3. $36,601 spent. EDUCATIONAL PROGRAMS - PWCF HELD OUR ANNUAL STATE CONFERENCE AND PROVIDED CRITICAL EDUCATION TO PARENTS, TEACHERS, PHYSICIANS, AND OTHER PROFESSIONAL CARE PROVIDERS. WE PRODUCED A PWS BEHAVIOR MANAGEMENT TRAINING SERIES, PROVIDED DOZENS OF EDUCATIONAL IN-SERVICE TRAINING SESSIONS TO SCHOOLS, FAMILIES, PROFESSIONAL PROVIDERS, AND ADULT RESIDENTIAL FACILITIES PROVIDERS THROUGHOUT CALIFORNIA. PWCF ALSO HELD WEBINARS ON NUTRITION, IEP TRAINING, AND FINANICAL PLANNING TO PROVIDE ADDITIONAL SUPPORT TO MEMBERS. PWCF PRODUCED A MONTLHY ENEWS AND FOUR QUARTERLY NEWSLETTERS THAT CONTAINED EDUCATIONAL ARTICLES, RESEARCH STUDIES AND SUBJECT RECRUITMENT OPPORTUNITIES, SUPPORT OPPORTUNITIES, AND OTHER VALUABLE INFORMATION. WE DISTRIBUTED EDUCATIONAL DVDS, BOOKS, AND OTHER EDUCATIONAL MATERIALS.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 1980.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

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