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Passes our checks

International Pemphigus Pemphigoid Foundation

EIN 94-3207871 · Roseville, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood82 out of 100GovernanceStrong91 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

Medical information, awareness, research, and patient support for an orphan disease.

Income
$451,216
Spending
$480,593
Spent on programs
71%
Reserves
9.5 months of spending
Largest source of income
donations and private grants, 98%
Employees
7
Volunteers
50

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 82 out of 100. Higher than 55% of charities in its peer group (health care, $250k to $1m).

  • Reserves

    28 of 35

    Spendable reserves would cover 9.5 months of spending.

  • Debt

    20 of 20

    It owes 2% of what it owns.

  • Living within its means

    4 of 15

    Spending exceeded income by 7% of income.

  • Income trend

    15 of 15

    Income rose 1% on the year before.

  • Spending floor

    15 of 15

    71% of spending went to programs and raising each dollar of donations cost 11 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 91 out of 100. Higher than 72% of charities in its peer group (health care, $250k to $1m).

  • Independent board

    25 of 25

    6 of 6 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $252,640 spent. Community Support - The IPPF empowers people living with pemphigus and pemphigoid by fostering a supportive and educated community. This enables patients and caregivers to have more meaningful conversations with their healthcare teams, builds hope, and creates a pay-it-forward attitude that encourages healing.
  2. $43,268 spent. Education for Healthcare Professionals - Through professional and student education, we create a broader awareness and deeper understanding of the patient journey among healthcare professionals. This directly addresses problems of delayed diagnosis and unclear treatment protocols, with the goal of improving patient outcomes and quality of life.
  3. $32,411 spent. Research - By leveraging the strength of this community, the IPPF actively encourages research to better understand pemphigus and pemphigoid. Through decades of building relationships with those diagnosing and treating these diseases, the IPPF is in a unique position to represent the patient voice to researchers and pharmaceutical companies searching for new treatments and therapies.
  4. $13,630 spent. Policy and Advocacy - Active community engagement creates a unified voice of the patient that cannot be ignored by legislators, decision-makers, and other partners in the rare disease space. The IPPF amplifies this voice to advocate for relevant policies and initiatives that will improve the quality of life for people affected by pemphigus and pemphigoid.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since October 1994.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.