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Flok Health

EIN 94-3098601 · Montclair, NJ

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood81 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

flok Health (the Organization), formerly National PKU News, is a nonprofit 501(c)(3) organization supporting individuals and families affected by inherited disorders of protein metabolism, including Phenylketonuria (PKU), Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Tyrosinemia, Organic Acidemias, and Urea Cycle Disorders (UCDs). These rare genetic conditions disrupt the bodys ability to process protein, which can lead to serious neurological and physical harmincluding developmental delays, seizures, coma, and deathif not carefully managed through lifelong treatment.

Income
$1.8 million
Spending
$1.4 million
Spent on programs
87%
Reserves
5.7 months of spending
Largest source of income
donations and private grants, 88%
Employees
6
Volunteers
35
Highest pay
$143,625, executive dir.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 81 out of 100.

  • Reserves

    20 of 35

    Spendable reserves would cover 5.7 months of spending.

  • Debt

    16 of 20

    It owes 15% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 22% of income.

  • Income trend

    15 of 15

    Income rose 121% on the year before.

  • Spending floor

    15 of 15

    87% of spending went to programs and raising each dollar of donations cost 4 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100.

  • Independent board

    25 of 25

    11 of 11 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $737,748 spent. Daily Care: To improve everyday life with a low-protein disorder, flok Health develops and maintains tools and resources that support dietary management and health tracking: flok App: Publicly released in November 2024, the flok mobile app integrates dietary tracking, symptom and activity journaling, and biometric data collection for people managing flok conditions. It is designed to support individuals and their care teams in making informed decisions about health and nutrition. Cook for Love: A culinary education platform offering free, low-protein recipes and meal planning guidance. The website continues to serve over 13,000 registered users and remains a critical daily care resource. Pocket Books: The Organization publishes and distributes printed guides listing protein and amino acid values for common foods, tailored to individuals with specific metabolic conditions. These materials are widely used by families and clinicians to support medical nutrition therapy.
  2. $419,880 spent. Community: flok Health fosters connection and belonging through direct community engagement, including the planning and hosting of camps and retreats for children, adults, and families affected by low-protein metabolic conditions. These events offer safe, supportive environments to build relationships, share lived experiences, and practice key skills related to dietary care. Community programs are designed to empower individuals and strengthen a network of mutual support that spans generations and geographies.
  3. $48,754 spent. Research: While flok Health did not conduct original research in 2024, the organization focused significant effort on preparing the infrastructure, partnerships, and regulatory pathways to enable future community-led studies. This includes developing features within the flok app to capture real-world data, establishing ethical review processes, and convening stakeholders to shape a research agenda grounded in patient priorities. The ultimate goal is to fuel a natural history of these rare conditions and accelerate the development of better treatments and improved standards of care.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since July 1994.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.