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Collaborative Trajectory Analysis Project

EIN 93-4558784 · Cambridge, MA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong92 out of 100GovernanceGood85 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO UNDERSTAND AND ACCOUNT FOR HETEROGENEITY IN LONGITUDINAL PROGRESSION OF DISEASE BY ENGAGING REGULATORS, CLINICAL EXPERTS, DRUG DEVELOPERS AND PATIENT GROUPS IN COLLABORATIVE LEARNING FROM PATIENT DATA, CREATING TOOLS AND INSIGHTS FOR DRUG DEVELOPMENT AND EVALUATION, SHARING BROADLY WITH THE ENTIRE DUCHENNE COMMUNITY, AND DELIVERING NEAR-TERM IMPACT FOR CLINICAL TRIALS.

Income
$1.9 million
Spending
$1.1 million
Spent on programs
71%
Reserves
9.2 months of spending
Largest source of income
donations and private grants, 100%
Employees
0
Volunteers
0
Highest pay
$285,000, executive director & co-founder

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 92 out of 100. Higher than 70% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    28 of 35

    Spendable reserves would cover 9.2 months of spending.

  • Debt

    20 of 20

    It owes 14% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 43% of income.

  • Spending floor

    15 of 15

    71% of spending went to programs and raising each dollar of donations cost 6 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 85 out of 100. Higher than 40% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    25 of 25

    10 of 10 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $755,619 spent. CTAP USES THE SCIENTIFIC METHOD TO ENGAGE IN RESEARCH STUDIES TO PRECISELY AND VERIFIABLY CHARACTERIZE PARTICULAR ASPECTS OF THE PROGRESSION OF DMD, AND TO IDENTIFY BROAD RESEARCH PRINCIPLES THAT MERIT ATTENTION BY THE DMD SCIENTIFIC RESEARCH COMMUNITY. CTAP THEN PARTICIPATES IN THE PUBLICATION OF ITS RESULTS TO THE INTERESTED PUBLIC.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Worth knowing.

    Recognized by the IRS in January 2026. It is too new to have a track record.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.