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Headache Alliance Inc

EIN 93-3058183 · Voorhees, NJ

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood78 out of 100GovernanceGood84 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

To improve the quality of life of those living with headache disorders through patient and provider education, communications campaigns, and support of early-stage research.

Income
$386,225
Spending
$393,306
Spent on programs
72%
Reserves
3.7 months of spending
Largest source of income
donations and private grants, 92%
Employees
5
Volunteers
50
Highest pay
$100,155, executive dir.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 78 out of 100. Higher than 49% of charities in its peer group (health care, $250k to $1m).

  • Reserves

    20 of 35

    Spendable reserves would cover 3.7 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 2% of income.

  • Income trend

    15 of 15

    Income rose 57% on the year before.

  • Spending floor

    15 of 15

    72% of spending went to programs and raising each dollar of donations cost 5 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 84 out of 100. Higher than 62% of charities in its peer group (health care, $250k to $1m).

  • Independent board

    25 of 25

    6 of 6 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $165,368 spent. National Mall Installation Project (Flags for Headache) Purpose and Activities: The Flags for Headache National Mall Installation Project is a large-scale public awareness and education initiative designed to make the invisible burden of headache disorders visible. Activities included: -Designed and implemented a multi-week flag installation with 30,000 flags on the National Mall in Washington, DC (May 31June 15, 2025). -Created educational signage and a microsite to engage the public in learning about headache disorders. -Mobilizing patients, caregivers, and healthcare professionals to participate as volunteers and share their stories. -Supported home lawn installations and smaller pop-up installations in communities across the country. -Secured over 50 Proclamations for Migraine and Headache Awareness Month on the state and local level. -Secured over 50 buildings and landmarks to shine purple during Migraine and Headache Awareness Month. Accomplishments: -Successfully launched the first annual flag installation. -Reached an estimated 5 million people through earned media, social media, and in-person engagement. -Engaged nationwide participants in awareness-building activities. How it Furthers Exempt Purpose: The installation educates the public, reduces stigma, and raises national visibility for headache disorders as a major public health issue, fulfilling the organizations awareness and community engagement mission.
  2. $103,691 spent. Headache on the Hill (HOH) Purpose and Activities: Headache on the Hill is a biannual professional development and educational conference for patients, caregivers, and healthcare providers interested in civic engagement. Offered in September 2024 (virtual) and March 2025 (in-person in Washington, DC), HOH provides: -Educational workshops and trainings on topics such as storytelling, social media as an advocacy tool, and preparing for both virtual and in-person meetings with policymakers, and media training. -Community-building activities through affinity groups, fostering peer connections and collective problem-solving. -Wellness programming, including mindfulness sessions, a headache care room at the in-person event, and post-event self-care resources. -Youth-specific programming with art, science, and writing workshops to reduce isolation, build confidence, and introduce advocacy skills. Accomplishments: -156 participants attended the Fall 2024 Virtual HOH. -254 participants attended the Spring 2025 In-Person HOH. -Piloted a youth track with 20 youth participants. -Developed new training modules to strengthen the advocacy community and improve participant readiness for engagement. -Integrated wellness and self-care programming, supporting participants health and resilience. -Supported travel scholarships for low-income participants to attend How it Furthers Exempt Purpose: The program advances the organizations mission by educating and empowering individuals to engage in civic life, fostering a connected patient and caregiver community, and increasing public understanding of headache disorders.
  3. $10,000 spent. Lunch & Learn Webinar Series Purpose and Activities: The Lunch & Learn program is a virtual education series for patients, caregivers, and healthcare providers, focused on topics like navigating education with headache disorders, understanding the military journey to headache care, and managing access-to-care challenges. Accomplishments: -7 webinars hosted with approximately 900 registrants. -Provided recordings and downloadable resources to extend learning beyond live participants. How it Furthers Exempt Purpose: This program educates the public and patient community, reduces stigma, and equips people living with headache disorders with tools to better manage their condition and engage in civic life.
  4. $5,000 spent. Youth Programming Purpose and Activities: The Youth Program builds community and reduces isolation for young people living with headache disorders or supporting family members living with these conditions. Programming includes: -Art, science, and writing workshops to help youth understand headache disorders and express their experiences. -Community-building sessions to connect participants with peers and provide a supportive environment for sharing. -Civic education. Accomplishments: -20 youth participants engaged in the Spring 2025 pilot program. -Established a framework for an ongoing youth program integrated with HOH and other educational initiatives. How it Furthers Exempt Purpose: By educating and empowering youth, the program fosters future patient leaders and reduces the stigma and isolation associated with headache disorders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since November 2023.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.