Channeling Hope Foundation
Public records show a registered, tax-exempt organization in good standing.
What it says it does
OUR MISSION IS TO BUILD A COMMUNITY OF FAMILIES AND RESEARCHERS TO ADVANE CARE AND DEVELOP TREATMENTS FOR INDIVIDUALS AFFECTED BY NALCN CHANNEL RELATED DISEASES.
- Income
- $421,003
- Spending
- $203,190
- Spent on programs
- 75%
- Reserves
- 13.8 months of spending
- Largest source of income
- donations and private grants, 99%
- Employees
- 1
- Volunteers
- 0
- Highest pay
- $46,516, research and operations manager
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 100 out of 100. Higher than 81% of charities in its peer group (medical research, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 13.8 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
15 of 15Income exceeded spending by 52% of income.
Income trend
15 of 15Income rose 137% on the year before.
Spending floor
15 of 1575% of spending went to programs and raising each dollar of donations cost 0 cents.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 91 out of 100. Higher than 76% of charities in its peer group (medical research, $250k to $1m).
Independent board
25 of 256 of 6 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
6 of 15Its accounts were not audited or reviewed by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $70,173 spent. THE BIENNIAL NALCN CONFERENCE WAS HELD TO FACILITATE KNOWLEDGE SHARE BETWEEN SCIENTISTS AND FAMILIES BY PROVIDING THE FOLLOWING CATEGORIES OF PRESENTATIONS AND EVENTS: -SCIENTIFIC PRESENTATIONS AND WORKING SESSIONS FOR RESEARCHERS -FAMILY VISIT TO MORGANS WONDERLAND THE WORLDS ONLY ULTRA ACCESSIBLE THEME PARK -CLINICALLY FOCUSED PRESENTATIONS AND ROUNDTABLE DISCUSSIONS FOR FAMILIES AND RESEARCH PHYSICIANS -FAMILY SUPPORT SESSIONS TO HELP FAMILIES UNDERSTAND THE GENETICS OF NALCN-RELATED CONDITIONS -NATURAL HISTORY STUDY TO COLLECT DATA FROM PATIENTS PATIENT FAMILIES -OPPORTUNITIES TO NETWORK WITH SCIENTISTS AND CONNECT WITH OTHER FAMILIES
- $41,747 spent. INCREASED GLOBAL AWARENESS OF NALCN RELATED DISEASES THROUGH: - VIRTUAL COMMUNITY BUILDING AND COMMUNICATION - ADVOCATED FOR INCREASED ACCESS TO COMPREHENSIVE GENETIC TESTING - DEVELOPED MULTIDISCIPLINARY AND INTERNATIONAL RESEARCH COLLABORATIONS
- $39,541 spent. FACILITATED NALCN RESEARCH THROUGH THE FOLLOWING: -NALCN DRUG DISCOVERY PILOT PROJECT -LAUNCHED CONTACT REGISTRY AND PARTNERSHIP WITH COMBINED BRAIN -ASSISTED IN RESEARCH TO DEVELOP NEW TOOLS TO IDENTIFY TREATMENTS FOR NALCN CHANNEL-RELATED DISEASES -LAUNCHED FIRST NALCN BIOREPOSITORY AND NATURAL HISTORY STUDY
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since September 2023.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.