Sca27b Ataxia Foundation
Public records show a registered, tax-exempt organization in good standing.
What it says it does
Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia. We bring awareness, education, and resources to individuals and families affected by SCA27b. The foundation actively connects patients to Ataxia experts and researchers to accelerate solutions for SCA27b.
- Income
- $51,186
- Spending
- $7,670
- Reserves
- 116.5 months of spending
- Largest source of income
- donations and private grants, 100%
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (1)
- $7,670 spent. Year 2025: 1) Attended and presented at patient & researcher conferences - Annual Ataxia Conference (Las Vegas), Ataxia Clinical Training (Las Vegas), International Congress of Ataxia Research (ICAR)(Amsterdam), EuroAtaxia (Amsterdam), National Ataxia Foundation's Face to Face meeting (Minneapolis), National Organization of Rare Diseases, TN chapter (Nashville). 2) Maintained & updated educational website sca27b.org, 3) Hosted monthly Zoom meetings for patients with invited guest speakers, 4) Collaborated with many other ataxia organizations: NAF, EuroAtaxia, FARA, Ataxie Canada, Ataxia UK, Ataxia Global Initiative (AGI). 5) Active member of AGI's SCA27B study group. 6) Raised funds to provide research grants in 2026. 7) Maintained private & public Facebook SCA27B Facebook groups. 7) Hosted webinars for genetic testing to members. 8) Distributed surveys for research data and will be published in 2026 with UChicago for paper on lifestyle/environmental factors that influence disease onset and progression. 9) Foundation membership is now over 1400 patients and researchers
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since March 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.