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Society for Inherited Metabolic Disorders

EIN 93-0721765 · Troutdale, OR

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood74 out of 100GovernanceWeak48 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO INCREASE KNOWLEDGE OF AND PROMOTE RESEARCH IN INBORN ERRORS OF METABOLISM IN HUMANS, AND TO STIMULATE INTERACTIONS BETWEEN CLINICIANS AND INVESTIGATORS IN INBORN ERRORS OF METABOLISM. TO SEEK TO FOSTER TRAINING AND MAINTENANCE OF A CORE OF QUALIFIED PHYSICIANS, FELLOWS, NUTRITIONISTS, NURSES AND LABORATORY STAFF.

Income
$760,869
Spending
$819,675
Spent on programs
83%
Reserves
16.1 months of spending
Largest source of income
donations and private grants, 70%
Employees
1
Volunteers
19

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 74 out of 100. Higher than 35% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 16.1 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    4 of 15

    Spending exceeded income by 8% of income.

  • Income trend

    0 of 15

    Income fell 39% on the year before.

  • Spending floor

    15 of 15

    83% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Weak: 48 out of 100. Higher than 14% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    19 of 19 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $388,936 spent. DURING THE YEAR ENDED JUNE 30, 2025, SOCIETY FOR INHERITED METABOLIC DISORDERS ("THE ORGANIZATION") CONTINUED TO CONDUCT ITS METABOLIC COURSE FOR YOUNG TRAINEES IN THE FIELD OF INBORN ERRORS OF METABOLISM AND GENETICS. THE NORTH AMERICAN METABOLIC ACADEMY 1.0, NOW CALLED NORTH AMERICAN METABOLIC ACADEMY FOUNDATIONS, WAS HELD DURING THE FISCAL YEAR.
  2. $101,930 spent. DURING THE YEAR ENDED JUNE 30, 2025, SOCIETY FOR INHERITED METABOLIC DISORDERS ("THE ORGANIZATION") CONDUCTED ITS SECOND METABOLIC COURSE FOR YOUNG TRAINEES IN THE FIELD OF INBORN ERRORS OF METABOLISM AND GENETICS. THE NORTH AMERICAN METABOLIC ACADEMY SYSTEMS REVIEW WAS HELD DURING THE FISCAL YEAR.
  3. $87,135 spent. ALSO DURING THE YEAR, THE ORGANIZATION CONTINUED TO PROVIDE IEMBASE, AN EXTENSIVE SYSTEM PROVIDING BOTH AN ONLINE KNOWLEDGEBASE AND A SMART SYSTEM (ARTIFICIAL INTELLIGENCE) FOR CURATION AND DIAGNOSIS SUPPORT FOR INBORN ERRORS OF METABOLISM.
  4. $61,492 spent. THE SOCIETY CONTINUES ITS MEMBERSHIP PROGRAM AND OFFERS A SUBSCRIPTION TO THE JOURNAL OF THE SIMD - MGM (MOLECULAR GENETICS AND METABOLISM).
  5. $41,798 spent. OTHER PROGRAM EXPENSES

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since September 1979.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

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