Ted Community Organization
Public records show a registered, tax-exempt organization in good standing.
What it says it does
As a dedicated thyroid eye disease TED 501c3 nonprofit our vision and quest is to ensure that no one need ever walk alone through the arduous and often isolating ted journey. to this end we provide education support and connection for all who are affected by TED.
- Income
- $492,544
- Spending
- $186,219
- Spent on programs
- 100%
- Reserves
- 33.4 months of spending
- Largest source of income
- donations and private grants, 100%
- Employees
- 0
- Volunteers
- 0
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 100 out of 100. Higher than 81% of charities in its peer group (diseases, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 33.4 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
15 of 15Income exceeded spending by 62% of income.
Income trend
15 of 15Income rose 37% on the year before.
Spending floor
15 of 15100% of spending went to programs and raising each dollar of donations cost 0 cents.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Weak: 48 out of 100. Higher than 14% of charities in its peer group (diseases, $250k to $1m).
Independent board
0 of 250 of 0 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Independent check of accounts
6 of 15Its accounts were not audited or reviewed by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (5)
- $90,800 spent. The TED Patient & Partner Global Online Conference is the first event of its kind dedicated to bringing together patients caregivers healthcare professionals and industry leaders to discuss the latest advancements in thyroid eye disease TED education treatment and patient support. Hosted by the TED Community Organization the only 501c3 nonprofit exclusively supporting TED patients this virtual conference will offer a comprehensive platform for learning connection and advocacy.
- $35,677 spent. The in-person workshop is all expenses paid for TED patients to come together to work on specific programs that will benefit the global TED Community. It is a 2.5 day event that includes brainstorming program ideation building curriculum and taking on an active role in the execution of the program. Normally 15-18 TED Community Builders are involved. This is supplemented by our 15-person Medical Council. And 18 person Corporate Council.
- $24,560 spent. The TED Patient Corporate & Medical Global Outreach Initiative is a groundbreaking effort to connect educate and empower the global TED community through strategic collaboration and outreach . By leveraging the expertise of our Medical & Scientific Council Corporate Council and Patient Advocate Council we are ensuring that all TED Community Organization programs including the TED Quality of Life Program the Global Virtual Conference TED ART and support groups reach the widest and most diverse audience possible. Key Outreach Components Global Network Expansion: Strengthening relationships with TED specialists researchers patient advocates and corporate partners worldwide to ensure access to the latest research treatments and patient resources. TED Corporate Council Engagement: Bringing together pharmaceutical biotech and healthcare industry leaders to collaborate on patient education access to care and innovation in TED treatment. TED Medical & Scientific Council Collaboration: Ensuring medical accuracy research-driven initiatives and high-quality patient education in all outreach efforts. TED Patient Advocate Council Leadership: Ensuring that patient voices remain central in all decision-making programming and outreach strategies. Global Awareness Campaigns: Developing multilingual educational materials social media campaigns and virtual events to enhance TED awareness and engagement. As well as attendance and exhibits at relevant conferences and meetings.
- $23,400 spent. The TED ART & Creative Studio is a transformative initiative that provides TED patients with a healing experience an avenue for personal growth and a platform for connection and advocacy. By engaging in creative expression participants regain a sense of agency over their lives moving beyond the challenges of thyroid eye disease TED toward self-discovery community and empowerment. Through monthly virtual meet-ups special projects in-person workshops and advocacy initiatives this program fosters an environment where art becomes a catalyst for healing and awareness. Two Monthly Virtual Meet-Ups Themed Sessions: Each session explores a different creative medium e.g. watercolor poetry journaling or theme e.g. Hope and Healing, Vision Through Art. Guest Artists & Patient Creators: Professional artists and TED patients with artistic experience share their journey insights and techniques. Art Challenges: Participants receive creative prompts or challenges to work on between sessions fostering continuous engagement and growth.
- $11,782 spent. The TED Community Organizations Educational Webinars & Patient Story Videos initiative empowers TED patients with knowledge support and inspiration. By providing expert-led discussions and authentic patient experiences we bridge the gap between medical intervention and real-world lived experiences ensuring TED patients feel informed validated and supported. Educational Webinars Our live interactive webinars offer TED patients access to leading experts researchers and healthcare professionals covering critical topics such as: Understanding TED & Its Treatments: Insights from ophthalmologists endocrinologists and researchers on the latest developments in TED care. Quality of Life & Coping Strategies: Practical guidance on nutrition movement as medicine stress reduction and mental well-being reinforcing the TED Quality of Life Program. Patient-Centered Healthcare: Helping TED patients become advocates for their own care improving communication with healthcare providers. Special Topics: Sessions dedicated to psychosocial challenges workplace accommodations and navigating insurance & treatment access. Global Reach: Webinars will be recorded and available for on-demand viewing ensuring accessibility for patients worldwide. Patient Story Videos TED patients often feel isolated misunderstood and overwhelmed. Our Patient Story Video Series brings real-life experiences to the forefront fostering connection and showcasing the resilience of the TED community. TED Journeys: Patients share their diagnosis treatment and recovery experiences offering hope and guidance. Before & After Reflections: Showcasing the emotional and physical transformations of patients who have navigated TED. Creative Expression in Healing: Featuring TED ART participants who use art writing or music to cope with their journey. Global Perspectives: Highlighting stories from TED patients around the world emphasizing shared struggles and diverse solutions.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since February 2023.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Could it be confused with another charity? Worth knowing.
A much larger organization has a similar name: Kings Community Action Organization Inc (Hanford, CA), EIN 94-1604455. If that is the one you meant, check the EIN before giving.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.