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Passes our checks

As Healthy As Possible

EIN 92-1715452 · Winston Salem, NC

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthNot ratedToo small or too little detailGovernanceGood81 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

Our mission is to have a positive impact on the lives of those with a POLR2A mutation and to help them, their families, and their caregivers stay as healthy as possible.

Income
$6,025
Spending
$1,548
Spent on programs
100%
Reserves
104.6 months of spending
Largest source of income
donations and private grants, 100%
Employees
0
Volunteers
0

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 81 out of 100. Higher than 70% of charities in its peer group (medical research, under $250k).

  • Independent board

    25 of 25

    5 of 5 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $401 spent. We endeavor to share and make the most information available to doctors, caregivers, and those interested in educating themselves the POLR2A gene. There are necessary office expenses, administrative costs, and other fees to maintain the formation of our organization. The $252.00 spent to maintain our PMB and $14.43 in Paypal fees are attributed to this effort. Additionally, $134.36 was spent on purchasing Writers for Rare books to be placed at hospitals, fundraising locations, and/or other public locations where our organization has potential to make new contacts with doctors and families.
  2. $97 spent. We strive to ensure that Scientific Research that benefits those with a POLR2A gene mutation is visible within academia by forming alliances with these institutions. Discussions surround means of supporting a natural history study began in 2024. Members of our organization continued to take part in testing of the survey delivery for the genetic registry that would be setup as a part of this survey. The $97.20 web hosting expenses are attributed to this program service.
  3. $1,050 spent. We are ambitious about being able to reach out to those affected by mutations of POLR2A gene, help them find the information they need, and to advocate for resources on their behalf. In 2024 our organization became a NORD platinum member, and our organization has been able to attend the NORD conference in 2024 and 2025 to establish a network or resources. NORD Membership fees of $50.00 contribute to this accomplishment. Also in 2025 our organization provided a grant to help with funeral expenses for a patient with a POLR2A diagnosis. Additional revenue from this area has the potential to be applied to future support of other items such as the natural history study, medical equipment, or travel expenses for other families.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since January 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.