Catatonia Foundation
Public records show a registered, tax-exempt organization in good standing.
What it says it does
To end needless suffering or death due to catatonia through awareness education advocacy support and research.
- Income
- $63,701
- Spending
- $21,887
- Spent on programs
- 84%
- Reserves
- 34 months of spending
- Largest source of income
- donations and private grants, 100%
- Employees
- 0
- Volunteers
- 33
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Good: 81 out of 100. Higher than 69% of charities in its peer group (diseases, under $250k).
Independent board
25 of 258 of 8 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (4)
- $7,465 spent. The Catatonia Foundation supported professional education and clinician engagement activities intended to improve awareness recognition and understanding of catatonia within healthcare and academic settings. Activities included collaboration with clinicians and subject matter experts conference exhibiting and educational outreach development of educational resources and dissemination of evidence-informed educational information regarding catatonia to healthcare professionals trainees researchers and medical organizations.
- $7,332 spent. The Catatonia Foundation conducted educational and public awareness activities designed to improve recognition and understanding of catatonia among patients families caregivers healthcare professionals and the public. Activities included development and dissemination of educational materials website and online resource development informational outreach educational campaigns and sharing evidence-informed information regarding catatonia including signs symptoms and treatment considerations.
- $2,734 spent. The Catatonia Foundation provided advocacy-oriented educational support and resource guidance for individuals and families affected by catatonia. Activities included helping families better understand catatonia locate educational resources communicate more effectively with healthcare providers and systems and navigate challenges related to recognition and access to care. The organization also worked to reduce isolation experienced by affected individuals and families through educational support resource sharing and awareness efforts.
- $743 spent. The Catatonia Foundation supported activities intended to advance understanding of catatonia and improve future educational and research initiatives related to the condition. Activities included collaboration with clinicians researchers advisors and subject matter experts regarding research priorities educational initiatives and areas of unmet need related to catatonia. The organization also supported efforts to encourage collaboration information sharing and development of future initiatives intended to improve recognition and understanding of catatonia.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since January 2023.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.