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The Bleeding Disorder Foundation of Washington

EIN 91-6068857 · Shoreline, WA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair65 out of 100GovernanceStrong91 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

The Bleeding Disorder Foundation of Washington mission: The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases.

Income
$374,037
Spending
$522,065
Spent on programs
77%
Reserves
4.3 months of spending
Largest source of income
donations and private grants, 94%
Employees
3
Volunteers
22
Highest pay
$166,000, executive dir.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 65 out of 100.

  • Reserves

    20 of 35

    Spendable reserves would cover 4.3 months of spending.

  • Debt

    20 of 20

    It owes 6% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 40% of income.

  • Income trend

    10 of 15

    Income fell 1% on the year before.

  • Spending floor

    15 of 15

    77% of spending went to programs and raising each dollar of donations cost 11 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 91 out of 100.

  • Independent board

    25 of 25

    7 of 7 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $196,549 spent. Educate those living with bleeding disorders and how to manage their complicated healthcare condition of bleeding disorder. Bleeding disorders are lifelong conditions that require education at each stage of life. With advancements in science the BDFW has had to revamp and update all our educate material to meet the needs of the community. This is creating education for each subset of age and gender while making sure it is culturally and socioeconomically appropriate. Due to the cost of bleeding disorders this education also includes how to manage our health care and insurance navigation. With medication for severe hemophilia costing $1 million per year the need for understanding health insurance is critical to accessing the lifesaving medication and care. This program directly serves over 500 direct in-person education encounters and provides online education to be accessed by over $70,000 living with bleeding disorder in Washington State.
  2. $128,358 spent. Patient assistance has been a growing area of support provided by the BDFW to serve those living with bleeding disorders directly. These direct services programs were expanded during COVID but have been maintained since due to the need. These services provide medical ID bracelets to over 250 children per year, back-to-school supplies, winter clothes, and shoes for safe play to reduce bleeding episodes. These services also include gap food support, transportation to medical visits pertaining to their bleeding disorder, lodging for doctor visits and hospital stays, and supportive devices not covered by insurance. Bleeding disorders have a large percentage of patients on Medicaid and Medicare due to the cost of the care creating decades of institutional poverty. Direct patient assistance is critical for patients to manage their condition.
  3. $76,212 spent. Access to care advocacy and empowerment services focus on navigation of insurance, education on insurance, and access to coverage of bleeding disorder treatment on public and private insurance plans. Hemophilia is a bleeding disorder, that has some of the most expensive treatments in the country. The BDFW advocates for access to these treatments and all treatments for rare diseases through this program. We work with bleeding disorders and rare disease patients on how to advocate for themselves with elected officials, employers, school, and medical providers.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since May 1999.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.