Beyond Celiac
Public records show a registered, tax-exempt organization in good standing.
What it says it does
BEYOND CELIAC UNITES WITH PATIENTS AND PARTNERS TO DRIVE DIAGNOSIS, ADVANCE RESEARCH, AND ACCELERATE THE DISCOVERY OF NEW TREATMENTS AND A CURE.
- Income
- $3.1 million
- Spending
- $2.7 million
- Spent on programs
- 58%
- Reserves
- 8.9 months of spending
- Largest source of income
- donations and private grants, 65%
- Employees
- 20
- Volunteers
- 462
- Highest pay
- $350,333, executive director
Source: Form 990 for the year ending October 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 81 out of 100. Higher than 49% of charities in its peer group (diseases, $1m to $10m).
Reserves
28 of 35Spendable reserves would cover 8.9 months of spending.
Debt
20 of 20It owes 9% of what it owns.
Living within its means
15 of 15Income exceeded spending by 12% of income.
Income trend
10 of 15Income fell 6% on the year before.
Spending floor
8 of 1558% of spending went to programs and raising each dollar of donations cost 27 cents.
Source: Form 990 for the year ending October 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).
Independent board
25 of 2520 of 21 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending October 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (4)
- $137,087 spent. WE SUPPORT STUDIES, BASED ON OUR COMMUNITY'S NEEDS, THAT QUICKLY TRANSLATE FROM SCIENTIFIC DISCOVERY INTO CLINICAL USE, WITH THE GOAL OF ADVANCING EFFECTIVE TREATMENTS. AS OF FY25, BEYOND CELIAC HAS AWARDED MORE THAN $3.2 MILLION IN GRANTS, SUPPORTING BOTH EARLY-CAREER AND ESTABLISHED INVESTIGATORS. THE LATEST GRANTS FOCUS ON NON-INVASIVE BIOMARKERS, MICROBIOME RESEARCH, IMMUNE TOLERANCE RESTORATION, AND NEUROCOGNITIVE IMPACTS.SELECT AWARDS INCLUDE:1. NIGEL HOGGARD, MD, AND IAIN CROALL, PHD (UNIVERSITY OF SHEFFIELD, UK): ASSESSING TG6 ANTIBODIES FOR CLINICAL PRACTICE.2. MANDEEP SINGH, PHD (UNIVERSITY OF SYDNEY, AUS) TARGETING MUTANT T-CELLS IN NON-RESPONSIVE CELIAC DISEASE.3. MICHAEL FITZPATRICK, DPHIL (UNIVERSITY OF OXFORD, UK): NOVEL BIOMARKERS OF MUCOSAL DAMAGE FOR DIAGNOSIS AND MONITORING.4. ROK SEON CHOUNG, MD, PHD (MAYO CLINIC): PREDICTORS OF PROGRESSIVE CELIAC DISEASE PHENOTYPES.5. SONIA GONCALVES PEREIRA, PHD (INSTITUTO POLITECNICO DE LEIRIA, PORTUGAL): EXPLORING GLUTEN-MICROBIOTA INTERACTIONS IN DISEASE PROGRESS.6. KATI JUUTI-UUSITALO, PHD (TAMPERE UNIVERSITY, FINLAND): DEVELOPMENT OF A PATIENT-DERIVED 2D INTESTINAL MODEL.THESE GRANTS ADDRESS CRITICAL BARRIERS IN THE FIELD, INCLUDING A LACK OF FUNDING, UNDERDIAGNOSIS, AND LIMITED PUBLIC AND CLINICAL AWARENESS. THEY ALIGN WITH OUR FOUR STRATEGIC PRIORITIES: TRANSLATIONAL RESEARCH, EVIDENCE GENERATION, CLINICAL TRIAL ACCELERATION, AND OUR VENTURE PHILANTHROPY PROGRAM THROUGH BEYOND CELIAC INVESTMENTS (BCI).
- $1.5 million spent. THIS EVIDENCE INFORMS RESEARCH PRIORITIES, SUPPORTS FUNDING APPLICATIONS, AND ENSURES PATIENT EXPERIENCES SHAPE THE PATH TOWARD NEW TREATMENTS. WITH UP TO 80% OF CELIAC DISEASE CASES STILL UNDIAGNOSED OR MISDIAGNOSED, GO BEYOND CELIAC INSIGHTS PLAYS A VITAL ROLE IN BRIDGING THE GAP BETWEEN LIVED EXPERIENCE AND SCIENTIFIC ADVANCEMENT. THE SURVEY PLATFORM HAS ENHANCED OUTREACH AND INCREASED COMMUNITY PARTICIPATION IN RESEARCH. BEYOND CELIAC ALSO CONNECTS PATIENTS TO CLINICAL TRIALS, ACCELERATING ENROLLMENT AND FACILITATING DRUG DEVELOPMENT. THESE EFFORTS ARE INSTRUMENTAL TO DE-RISKING THE THERAPEUTIC PIPELINE AND DRAWING INCREASED INTEREST FROM INVESTORS, PHARMACEUTICAL COMPANIES, AND BIOTECH. BEYOND CELIAC LEADS A PRECOMPETITIVE COALITION OF MULTIDISCIPLINARY STAKEHOLDERS INVOLVED IN THE DEVELOPMENT OF POTENTIAL THERAPIES FOR CELIAC DISEASE.
- BEYOND CELIAC INVESTMENTS (BCI) VENTURE PHILANTHROPY PROGRAM LAUNCHED A CATALYST PROGRAM TO SCREEN FOR EARLY-STAGE CANDIDATES WITH THE POTENTIAL FOR TRANSFORMATIONAL EFFICACY IN CELIAC DISEASE. THE INAUGURAL PROPOSAL PROCESS IDENTIFIED THE FIRST INVESTMENTS NOW PENDING THROUGH BCI.
- BEYOND CELIAC SCIENCE TEAM MEMBERS PRESENTED AT MAJOR MEETINGS, INCLUDING THE AMERICAN ACADEMY OF NEUROLOGY CONFERENCE AND DIGESTIVE DISEASE WEEK. ORIGINAL RESEARCH WAS PUBLISHED IN THE JOURNAL OF CLINICAL MEDICINE AND DIGESTIVE DISEASES AND SCIENCES.ADDITIONAL PROGRAM ACTIVITIES INCLUDING PATIENT, AMBASSADOR, AND OTHER PROGRAMS. REACH BEYOND CELIAC PROGRAMS THROUGH OUR REACH BEYOND CELIAC INITIATIVE, WE EMPOWER COMMUNITY LEADERS THROUGH THE AMBASSADOR PROGRAM, INTERN PROGRAM, AND OTHER VOLUNTEER-DRIVEN ENGAGEMENT. AMBASSADORS TAILOR THEIR EFFORTS TO THEIR COMMUNITIES' HOSTING EVENTS, FOSTERING PEER-TO-PEER SUPPORT, AND RAISING AWARENESS NATIONWIDE. OUR INTERNS AND AMBASSADORS COLLABORATE WITH STAFF ON LOCAL OUTREACH, CONTENT DEVELOPMENT, SURVEY CREATION, WEB DEVELOPMENT, AND ADVOCACY INITIATIVES, STRENGTHENING OUR NATIONAL PRESENCE AND EXPANDING THE ORGANIZATION'S REACH AND IMPACT. PATIENT EDUCATION AND SUPPORT PROGRAMS BEYOND CELIAC PROVIDES ESSENTIAL EDUCATIONAL RESOURCES TO PATIENTS AT ALL STAGES OF THEIR CELIAC JOURNEY. OUR "NEWLY DIAGNOSED GUIDE" OFFERS COMPREHENSIVE TOOLS FOR UNDERSTANDING CELIAC DISEASE AND INITIATING A GLUTEN-FREE DIET. WE ALSO PUBLISH DOWNLOADABLE TOOLKITS AND HOST WEBINARS FOR SPECIFIC POPULATIONS, STUDENTS, PARENTS, AND ADULTS COVERING TOPICS LIKE READING FOOD LABELS, MANAGING CROSS-CONTAMINATION, AND NAVIGATING SOCIAL SETTINGS. THROUGH TOWN HALLS, VIRTUAL Q&A SESSIONS, AND ACCESSIBLE ONLINE MATERIALS, OUR PATIENT PROGRAMS PROMOTE SELF-ADVOCACY, INFORMED DECISION-MAKING, AND ONGOING COMMUNITY CONNECTION.
Source: Form 990 for the year ending October 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending October 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since June 2003.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.