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National Center for Pediatric Palliative Care Homes

EIN 88-4127825 · Scottsdale, AZ

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthWeak30 out of 100GovernanceFair61 out of 100Impact evidenceDescribes programsHow well its results are evidenced

Points to look into

  • It reported loans to or from officers, directors or other insiders.
  • It owes more than it owns.
  • Only 35% of its spending went to programs.

These come from the organization's own tax return. There may be a good explanation; ask the charity.

What it says it does

Scale, strengthen, and sustain community-based children's respite, palliative and hospice care home programs.

Income
$294,444
Spending
$194,875
Spent on programs
35%
Reserves
-11.9 months of spending
Largest source of income
donations and private grants, 95%
Employees
0
Volunteers
18
Highest pay
$60,000, chief executive officer-director

Source: Form 990 for the year ending September 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Weak: 30 out of 100. Higher than 4% of charities in its peer group (human services, $250k to $1m).

  • Reserves

    0 of 35

    Spendable reserves are negative: it owes or has committed more than it holds.

  • Debt

    0 of 20

    It owes 141% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 34% of income.

  • Income trend

    15 of 15

    Income rose 74% on the year before.

  • Spending floor

    0 of 15

    35% of spending went to programs and raising each dollar of donations cost 23 cents.

Source: Form 990 for the year ending September 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Fair: 61 out of 100. Higher than 35% of charities in its peer group (human services, $250k to $1m).

  • Independent board

    25 of 25

    13 of 14 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    0 of 10

    Reports at least one of: diversion of assets, excess benefits, loans to insiders.

Source: Form 990 for the year ending September 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $33,951 spent. NCPPCH's Education & Awareness program advances the national understanding that pediatric respite, palliative, and hospice care is essential, not optional. Through storytelling, media, public engagement, and professional education, we spotlight gaps in care and uplift models that work. Key accomplishments this year include: * Growth of the Children's Respite Homes of America social media presence to 2,600 followers and electronic newsletters reaching over 1,400 engaged professionals, donors, and families. * National recognition for program leadership: Board member Dr. Robin Blitz received the AAP Section on Hospice and Palliative Medicine Abstract Award for a poster co-authored with NCPPCH highlighting the national PPCC license vision. * NCPPCH's Jonathan Cottor delivered multiple keynote addresses, including at the Arizona College of Nursing commencement, the National Lifespan Respite Conference, the Rare Disease Fair, and a National Academies of Sciences workshop. * Featured in podcasts, national media, and professional forums, including Pediatrics journal, Hospice News, and multiple webinars to elevate awareness of pediatric respite care and the growing network of Children's Respite Homes.
  2. $20,371 spent. The Advocacy program educates policymakers, professional stakeholders, and communities about the critical need for pediatric palliative care infrastructure and supportive legislation. NCPPCH serves as a subject-matter expert on licensing frameworks and program sustainability without engaging in lobbying. Major accomplishments include: * Supporting the passage of Mason's Law in Iowa by providing subject-matter expertise to legislators and local partners, establishing the first dedicated Pediatric Palliative Care Center (PPCC) license in the state. * Furthering the development of NCPPCH's National Policy Agenda by preparing more comprehensive policy position papers, outlining recommendations for Pediatric Palliative Care Centers that will be presented to federal and state leaders in the coming year to guide the development of pediatric respite and palliative care infrastructure.
  3. $13,580 spent. NCPPCH's Community Building program supports local leaders to create and sustain pediatric respite, palliative, and hospice homes. Through mentorship, peer networks, and educational forums, we foster a national culture of readiness and growth. Key accomplishments this year include: * Expansion of the Children's Respite Homes of America network to 42 programs across 28 states. * Hosting 18+ national forums, learning sessions, and collaborative conversations for coalition members. * Providing 104+ hours of direct mentorship and coaching, resulting in the incorporation of four new local community organizations. * Convening the quarterly National Advisory Council, a peer-level network of senior leaders from across the country, to share best practices and coordinate strategic efforts.

Source: Form 990 for the year ending September 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending September 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since August 2023.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.