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ALS United Inc

EIN 88-3176104 · Beaverton, OR

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthWeak41 out of 100GovernanceGood82 out of 100Impact evidenceDescribes programsHow well its results are evidenced

Points to look into

  • Raising each dollar of donations cost 250 cents.

These come from the organization's own tax return. There may be a good explanation; ask the charity.

What it says it does

ALS United, Inc. is organized and operated exclusively for charitable, education, literary, and scientific purposes within the meaning of section 501c3 of the Internal Revenue Code, specifically to support those living with amyotrophic lateral sclerosis (ALS). The organization is funded primarily through member dues from 15 independent ALS organizations across the United States, each dedicated to serving their local ALS communities. These member organizations collaborate through ALS United to strengthen their collective impact.

Income
$201,910
Spending
$245,081
Spent on programs
79%
Reserves
2.8 months of spending
Largest source of income
fees for its services, 97%
Employees
0
Volunteers
15
Highest pay
$170,004, president

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Weak: 41 out of 100. Higher than 15% of charities in its peer group (health care, under $250k).

  • Reserves

    10 of 35

    Spendable reserves would cover 2.8 months of spending.

  • Debt

    16 of 20

    It owes 17% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 21% of income.

  • Income trend

    15 of 15

    Income rose 102% on the year before.

  • Spending floor

    0 of 15

    79% of spending went to programs and raising each dollar of donations cost 250 cents.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 82 out of 100. Higher than 69% of charities in its peer group (health care, under $250k).

  • Independent board

    25 of 25

    15 of 15 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $194,509 spent. ALS United, Inc. carries out its exempt purpose by serving as a collaborative organization for independent ALS service providers. Our activities include: 1. Providing coordination and shared services that benefit organizations serving the ALS community, 2. Carrying on activities and programs that strengthen local ALS support services,3. coordinating certain research activities with our members, and 4. Supporting the collective mission of helping those affected by ALS. The organization works with 15 independent charitable organizations, all qualified under Section 501c3, who pay membership dues to support this collaborative mission. Through this structure, ALS United helps strengthen and enhance the delivery of services to those affected by ALS across multiple regions.

Source: Form 990 for the year ending January 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending January 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since September 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.