Tbx4life
Public records show a registered, tax-exempt organization in good standing.
What it says it does
Nonprofit dedicated to raising awareness about TBX4 Syndrome, supporting families affected by this ultra?rare genetic disorder, and accelerating international medical research toward a cure
- Income
- $98,330
- Spending
- $6,987
- Reserves
- Over 10 years of spending
- Largest source of income
- other income, 80%
Source: Form 990EZ for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.
Source: Form 990EZ for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $20,065 spent. Community Fundraising Event ? Cure TBX4 Charity Golf Tournament On November 12, 2024, TBX4Life hosted its first annual charity golf tournament to raise awareness and funds. It took place at Catta Verdera Country Club, with 18 holes, group play, catering, and an awards dinner. The event engaged sponsors and participants to raise approximately USD 78,000. Proceeds will support TBX4Life?s acceleration of research?including funding seed grants and supporting a dedicated TBX4 infrastructure ?and intensifying awareness outreach worldwide.
- $2,133 spent. TBX4Life co?organized a pre?conference symposium on TBX4 Syndrome at the European Paediatric Pulmonary Vascular Disease meeting in Groningen, Netherlands. The half?day program brought together over 100 international researchers, clinicians, and families, featuring translational and clinical sessions, keynote talks, and a round?table discussion on complex case management. This event significantly increased global awareness and facilitated new research collaborations in TBX4 biology and therapeutic development.
- $2,898 spent. In April 2024, TBX4Life conducted its second annual ?Tour for a Cure,? visiting multiple U.S. cities to bring together clinicians, researchers, affected individuals, and caregivers. Stakeholder meetings, round?tables, and educational briefings engaged participants and significantly increased collaborations within TBX4 Scientific Consortium
Source: Form 990EZ for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since February 2023.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.