The Assoc of Hidradenitis Suppurativa and Inflammatory Disea
Public records show a registered, tax-exempt organization in good standing.
What it says it does
We empower individuals with Hidradenitis Suppurativa HS inflammatory diseases to reclaim their lives through holistic resources personalized care that address physical, emotional, mental, and spiritual challenges. Committed to health equity and policy reform, we advocate for accessible and inclusive care while fostering community.
- Income
- $304,570
- Spending
- $324,241
- Spent on programs
- 67%
- Reserves
- 0.9 months of spending
- Largest source of income
- donations and private grants, 100%
- Employees
- 0
- Volunteers
- 25
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Fair: 58 out of 100.
Reserves
4 of 35Spendable reserves would cover 0.9 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
4 of 15Spending exceeded income by 6% of income.
Income trend
15 of 15Income rose 233% on the year before.
Spending floor
15 of 1567% of spending went to programs and raising each dollar of donations cost 0 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Fair: 69 out of 100.
Independent board
25 of 256 of 6 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
0 of 5Reports that it does not keep minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Independent check of accounts
6 of 15Its accounts were not audited or reviewed by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (2)
- $196,393 spent. Summits Reclaim Hidradenitis Suppurativa HS Summit is a patient-centered event created to educate, advocate for, and heal patients through a series of sessions led by top HS specialists, influencers, and somatic practitioners. What started as a virtual event has now evolved into a three-day in-person/ virtual hybrid summit, providing a safe and supportive space for individuals with HS and other inflammatory diseases to learn, heal, and grow physically, mentally, and emotionally. This summit empowers participants to better understand their condition, its causes, and potential short - and long-term solutions. It fosters connections with HS specialists and other HS Warriors, making expert care more accessible and combating the isolation and shame often felt by those living with HS. Through deep knowledge and lived experience of both scientific and patient perspectives, we aim to show the HS community that they deserve to feel supported, understood, and valued as patients and as people.
- $20,636 spent. Education Awareness The organizaiton aims to improve awareness, facilitate timely diagnosis, and guide patients through culturally competent care pathways. This is accomplished by participating in community events, establishing local partnerships, and delivering impactful resources.The Ambassador Program is made up of highly engaged patients with HS and inflammatory diseases, providing the community a voice and a platform to share their experiences and connect with others. Through a volunteer network of advocates and influencers, we are bringing together patients at various points in their journeys and willing to share their experiences, knowledge, concerns, and hopes with others. The My Gold Lining is a medical and educational documentary delving into the lives of two women battling hidradenitis suppurativa. The organization also hosts a podcast to bring about awareness and educaiton.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since February 2022.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.