Pkd Free Babies Alliance Ltd
Public records show a registered, tax-exempt organization in good standing.
What it says it does
PKD Free Babies Alliance, Ltd. (PKD-Free Alliance) is a 501(c)(3) nonprofit organization dedicated to ending Polycystic Kidney Disease (PKD) by using proven approaches to prevent it from being passed down to future generations.
- Income
- $657,659
- Spending
- $588,428
- Spent on programs
- 96%
- Reserves
- 25.6 months of spending
- Largest source of income
- donations and private grants, 100%
- Employees
- 0
- Volunteers
- 0
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 100 out of 100. Higher than 84% of charities in its peer group (health care, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 25.6 months of spending.
Debt
20 of 20It owes 3% of what it owns.
Living within its means
15 of 15Income exceeded spending by 11% of income.
Income trend
15 of 15Income rose 48% on the year before.
Spending floor
15 of 1596% of spending went to programs and raising each dollar of donations cost 2 cents.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Good: 76 out of 100. Higher than 49% of charities in its peer group (health care, $250k to $1m).
Independent board
5 of 250 of 3 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Independent check of accounts
12 of 15Its accounts were reviewed or compiled by an independent accountant, but not audited.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (1)
- $563,892 spent. PKD Free-Alliance Alliance provides qualified PKD-impacted families with resources, grants, and discounts from top fertility centers nationwide for Preimplantation Genetic Testing (PGT-M) and In Vitro Fertilization (IVF) treatments. Collectively, this allows PKD-impacted individuals to help actualize a PKD-free future.Since the launch of the PKD-Free Babies program in July of 2023, the Alliance has received over 200 grant applications and provided support to 100+ families on their PKD-free journey, with more than 20 PKD-Free Babies welcomed to the world as of February 2026. The PKD-Free Babies Grant Program ranges from $3,000 - $9,000 on a case-by-case basis to cover uninsured costs of preimplantation genetic testing for monogenic disorders (PGT-M) and costs associated with in vitro fertilization (IVF). Approved grant applicants are also eligible for discounts from allied Genetic Testing Laboratories and Fertility Clinics, if they choose to work with those facilities.In addition to helping actualize a PKD-free child for affected families, the Alliance is contributing to long-term reductions in health care costs for patients and their health insurance providers. Each child born free of the disease avoids the need for life-long medical treatment, such as years of dialysis, kidney transplant(s) maintenance, and ongoing specialty care. These outcomes translate into millions of dollars saved by government and/or commercial insurance over time, with annual savings increasing as more families are supported and additional PKD-free children are born, stopping disease transmission to future generations. Each PKD-free birth also reduces burden on the National Waiting list, where over 94,000 individuals are awaiting a life-saving kidney transplant.Over 30 medical centers, fertility clinics, genetic companies, and advocacy organizations have aligned themselves with the Alliance's mission and continue to propel family planning education forward for families impacted by PKD.Key medical centers supporting the Alliance's mission include Columbia University Medical Center, Rogosin Institute, University of Utah Health, and University of Miami Katz Family Division of Nephrology and Hypertension.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since December 2021.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.