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Riaan Research Initiative Inc

EIN 87-1188456 · Oakland Gdns, NY

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood70 out of 100GovernanceFair67 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO CREATE A WORLD WHERE EVERY CHILD WITH A FATAL GENETIC DISEASE HAS A PATHWAY TOWARD TREATMENT. THE ORGANIZATION IS DEDICATED TO PROMOTING AND FURTHERING TRANSLATIONAL SCIENTIFIC RESEARCH TO ADVANCE TREATMENTS FOR SEVERE AND LIFE-TIMING GENETIC DISORDERS.

Income
$615,670
Spending
$278,946
Spent on programs
98%
Reserves
29.8 months of spending
Largest source of income
donations and private grants, 84%
Employees
0
Volunteers
0

Source: Form 990 for the year ending May 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 70 out of 100. Higher than 30% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 29.8 months of spending.

  • Debt

    5 of 20

    It owes 62% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 55% of income.

  • Income trend

    0 of 15

    Income fell 31% on the year before.

  • Spending floor

    15 of 15

    98% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending May 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Fair: 67 out of 100. Higher than 37% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    18 of 25

    4 of 4 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending May 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. RESEARCH PROJECTS - RIAAN RESEARCH INITIATIVE IS DEDICATED TO ADVANCING, ACCELERATING, AND FUNDING TRANSLATIONAL SCIENTIFIC RESEARCH TO GENERATE TREATMENTS FOR SEVERE AND LETHAL NEURODEGENERATIVE GENETIC DISORDERS THAT IMPACT THE PEDIATRIC POPULATION SUCH AS COCKAYNE SYNDROME. THE ORGANIZATION'S PROGRAMMATIC AREAS INCLUDE SUPPORTING THE DEVELOPMENT OF COCKAYNE SYNDROME GENE REPLACEMENT THERAPY, AND DRUG REPURPOSING SCREENS BY PARTNERING WITH RESEARCHERS AND ACADEMIC INSTITUTIONS AND ISSUING GRANTS. GENE THERAPY WORK INVOLVES ACCELERATING THE DEVELOPMENT OF ADENOVIRUS VECTORS AND SUPPORTING PRE-CLINICAL TO CLINICAL RESEARCH STUDIES; THE ORGANIZATION'S DRUG REPURPOSING PROJECTS INVOLVE SCREENING SMALL MOLECULES TO IDENTIFY DRUGS THAT CAN HALT OR REVERSE NEURODEGENERATION IN THIS PATIENT POPULATION. THE ORGANIZATION ALSO PROVIDES EDUCATION AND RESOURCES TO THE MEDICAL AND RARE DISEASE COMMUNITY, THE MEDIA, AS WELL AS MEMBERS OF THE PUBLIC ON ADVANCEMENTS IN SCIENTIFIC RESEARCH AND GENERAL COCKAYNE SYNDROME AWARENESS AND MAINTAINS A PATIENT REGISTRY TO GATHER RELEVANT CLINICAL DATA FOR FUTURE TRIALS.

Source: Form 990 for the year ending May 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending May 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since September 2021.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.