Lobular Breast Cancer Alliance Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
AS THE ONLY ORGANIZATION IN THE US DEDICATED TO INVASIVE LOBULAR BREAST CANCER (ILC), LBCA'S MISSION IS TO MAKE ALL WHO ARE TOUCHED BY ILC AWARE OF ITS UNIQUE CHARACTERISTICS AND THE CRITICAL NEED FOR MORE ILC RESEARCH; TO BE THE GO-TO SOURCE FOR (CONT'D IN SCHEDULE O) INFORMATION ON ILC STUDIES, CLINICAL TRIALS AND EDUCATIONAL TOOLS; TO FOSTER PARTNERSHIPS AMONG PATIENTS, SCIENTISTS, CLINICIANS, AND BREAST CANCER ORGANIZATIONS TO INCREASE DIALOGUE ABOUT ILC AND RESEARCH ADVOCACY; AND TO FUND VITAL ILC RESEARCH.
- Income
- $1.4 million
- Spending
- $894,593
- Spent on programs
- 75%
- Reserves
- 14.1 months of spending
- Largest source of income
- donations and private grants, 98%
- Employees
- 7
- Volunteers
- 81
- Highest pay
- $117,277, president, ed, & director
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 100 out of 100. Higher than 83% of charities in its peer group (diseases, $1m to $10m).
Reserves
35 of 35Spendable reserves would cover 14.1 months of spending.
Debt
20 of 20It owes 2% of what it owns.
Living within its means
15 of 15Income exceeded spending by 35% of income.
Income trend
15 of 15Income rose 32% on the year before.
Spending floor
15 of 1575% of spending went to programs and raising each dollar of donations cost 9 cents.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 61% of charities in its peer group (diseases, $1m to $10m).
Independent board
25 of 257 of 8 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (1)
- $673,762 spent. DURING THE LAST FISCAL YEAR, LBCA:-LAUNCHED FIRST OCTOBER 15TH GLOBAL LOBULAR BREAST CANCER AWARENESS DAY IN COLLABORATION WITH ADVOCATES AND RESEARCHERS AROUND THE WORLD AND WORKED WITH A PR COMPANY TO RAISE AWARENESS OF ILC AND LBCA IN SEVERAL KEY METROPOLITAN AREAS AROUND THE US. WORKED WITH THREE MAJOR CANCER CENTERS (DANA FARBER, MEMORIAL SLOAN KETTERING AND MD ANDERSON) TO ENCOURAGE THEIR IMPLEMENTING OCT 15TH ILC AWARENESS RAISING EVENTS AND LAUNCHING THEIR OWN ILC PROGRAMS-SUPPORTED TWO AND LAUNCHED A THIRD LOCAL ADVOCACY TEAM (LAT) IN CASCADIA (OREGON AND WASHINGTON STATE REGION) TO INCREASE LBCA'S WORK WITH ADVOCATES CONDUCTING EDUCATION AND RESEARCH ADVOCACY IN THEIR COMMUNITIES (CONT'D IN SCHEDULE O) -CREATED ILC INFO GRAPHICS FOR CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC) AND FOR NATIONAL CANCER INSTITUTE (NCI) BREAST CANCER PATIENT FACING PAGES -PRODUCED TEXT FOR REPORT ON ILC AND NCI SEER ILC INCIDENCE DATA THAT WAS PUBLISHED ON THE NCI CANCER STAT FACTS WEBPAGE AND WILL BE UPDATED ANNUALLY.-PRODUCED PATIENT RESOURCE DOCUMENT ON LOBULAR BREAST CANCER MYTHS AND FACTS-FUNDED ILC RESEARCH GRANTS WITH SOCIETY OF NUCLEAR MEDICINE AND MOLECULAR IMAGING (SNMMI), ASCO / CONQUER CANCER FOUNDATION, AND AMERICAN ASSOCIATION FOR CANCER RESEARCH. FUNDED/ISSUED IN COLLABORATION WITH SUSAN G. KOMEN FIRST EVER METASTATIC ILC RESEARCH GRANT SOLICITATION IN MEMORY OF LBCA FOUNDING ADVOCATE JULIA K. LEVINE-HELPED AUSTRALIA LOBULAR BREAST CANCER PATIENTS FORM LBCA-AUS FOR PATIENT ADVOCACY AND HELPED BRAZILIAN CLINICIANS DEVELOP TRAINING CURRICULUM ON ILC FOR MDS.-SUPPORTED LAUNCH OF TWO VIRTUAL SUPPORT GROUPS FOR INDIVIDUALS WITH METASTATIC ILC-CO-SPONSORED AND PRESENTED POSTER ON LBCA'S OCTOBER 15TH MOVEMENT AT ILC SYMPOSIUM IN LEUVEN, BELGIUM IN SEPTEMBER 2024-PRODUCED AND PRESENTED POSTER ON ILC PATIENT EXPERIENCE WITH SURGICAL TREATMENT PLANNING IN DECEMBER AT SAN ANTONIO BREAST CANCER SYMPOSIUM 24-DEVELOPED AND SHARED ON WEBSITE AND SOCIAL MEDIA LAY SUMMARIES OF ALL ILC POSTERS PRESENTED AT SABCS 24, TO MAKE THE RESEARCH PRESENTED ACCESSIBLE TO LAY AUDIENCES-INITIATED, FUNDED AND AWARDED MERIT SCHOLARSHIPS (TO COVER CONFERENCE ATTENDANCE TRAVEL COSTS) FOR TOP FIVE BEST ILC RESEARCH POSTERS PRESENTED AT SABCS24 VIA ADMINISTRATIVE PARTNERSHIP WITH AACR. DEVELOPED AND SHARED ON WEBSITE/NEWSLETTER, LAY SUMMARIES OF 25 ILC RESEARCH POSTERS PRESENTED AT SABCS INCLUDING MERIT WINNERS.-MANAGED WEBSITE WITH (EVER-INCREASING HITS) THAT PROVIDES DETAILED INFORMATION FOR THE PUBLIC ABOUT INVASIVE LOBULAR BREAST CANCER (ILC), ILC RESEARCH, CLINICAL TRIALS AND PATIENT ADVOCACY OPPORTUNITIES. -HOSTED 4 WEBINARS FOR ILC PATIENT ADVOCATES ON RESEARCH AND OTHER TOPICS, AND PROVIDED 17 TRAVEL SCHOLARSHIPS TO PATIENT ADVOCATES TO ATTEND TRAININGS AND CONFERENCES-RELEASED 2 ILC CURRICULUMS FOR CLINICIANS AVAILABLE FOR VIEWING AS WEBINARS FOR CMES ON MEMORIAL SLOAN KETTERING (MSK) CANCER CENTER EDUCATIONAL PORTAL-SPONSORED SCIENTIFIC ADVISORY BOARD MEETINGS TO INVOLVE ILC RESEARCHERS IN ADVOCACY AND IN THE DEVELOPMENT OF THE INFORMATION LBCA DISSEMINATES-SPONSORED PATIENT ADVOCATE ADVISORY BOARD MEETINGS TO INVOLVE ILC PATIENT ADVOCATES IN ILC AWARENESS RAISING ACTIVITIES AND STRATEGIC PLANNING-PUBLISHED MONTHLY NEWSLETTER REACHING OVER 7,200 SUBSCRIBERS-ADDED 60+ NEW ILC STUDIES TO THE JULIA K. LEVINE ILC PUBLICATIONS LIBRARY ON THE LBCA WEBSITE
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending June 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since October 2021.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
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