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Coalition for Headache and Migraine Patients

EIN 85-3950356 · San Rafael, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthFair56 out of 100GovernanceGood71 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

CHAMP mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices.

Income
$413,287
Spending
$504,208
Spent on programs
57%
Reserves
7.2 months of spending
Largest source of income
donations and private grants, 97%
Employees
4
Volunteers
3
Highest pay
$140,000, executive director

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Fair: 56 out of 100. Higher than 17% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    28 of 35

    Spendable reserves would cover 7.2 months of spending.

  • Debt

    20 of 20

    It owes 9% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 22% of income.

  • Income trend

    0 of 15

    Income fell 69% on the year before.

  • Spending floor

    8 of 15

    57% of spending went to programs and raising each dollar of donations cost 11 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 71 out of 100. Higher than 41% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    18 of 25

    3 of 3 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $134,870 spent. Migraine at School collects and creates the best resources to ensure every student has the opportunity to flourish in school. This program as active in 126 schools in 36 states. It currently has 100+ volunteer ambassadors in the U.S.
  2. $70,281 spent. In 2024, CHAMP connected more than 80 patients, doctors, advocacy organizations, industry partners and national nonprofit leaders to strategize and partner on headache disease challenges, including diagnosis timeline, barriers to treatment and care, and disease education efforts for patients and healthcare providers. Action items developed out of the 2024 Elevate meetings include plans for headache language into medical exam processes, expanded provider community engagement, and enhanced research engagement and headache representation.
  3. $48,208 spent. In 2024, Retreat Migraine was produced in a virtual format and continued to be the only conference in the U.S. created by and designed for people living with migraine disease. With a focus on education, advocacy and community-building from the patient-perspective, this experiential event brings together patients and care-givers with leading migraine stakeholders. The event hosted 427 attendees and included 4 patient stories and 5 education sessions.
  4. $32,710 spent. The Coalition for Headache and Migraine Patients (CHAMP) engages its 22 coalition leaders in meetings throughout the year to communicate, educate and advocate on behalf of people living with headache diseases. In 2024, we reached an estimated 1.4 million individuals through our collective social media efforts. In addition, the Coalition leveraged Migraine and Headache Awareness Month to continue unified messaging across the headache disease community. The theme, Myth Truth Action, was used to help end myths about headache disease and illuminate the truth of the debilitating symptoms. Outcomes of the campaign included 546 media pickups, 170.3 million audience reach and 45,000 website views.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since June 2021.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.