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Mog Project Inc

EIN 85-0767017 · Gaithersburg, MD

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood89 out of 100GovernanceGood75 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO RAISE AWARENESS, EDUCATE DOCTORS, PATIENTS AND CAREGIVERS, ADVANCE RESEARCH THROUGH EXPERT COLLABORATION AND FUNDRAISING, AND PROVIDE SUPPORT AND ADVOCACY FOR OUR COMMUNITY IN HOPES OF FINDING A CURE.

Income
$595,048
Spending
$480,745
Spent on programs
70%
Reserves
6.5 months of spending
Largest source of income
donations and private grants, 99%
Employees
0
Volunteers
40

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 89 out of 100. Higher than 64% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    28 of 35

    Spendable reserves would cover 6.5 months of spending.

  • Debt

    16 of 20

    It owes 23% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 19% of income.

  • Income trend

    15 of 15

    Income rose 167% on the year before.

  • Spending floor

    15 of 15

    69% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 75 out of 100. Higher than 46% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    5 of 5 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $231,261 spent. EDUCATIONAL EVENTS & PROGRAMS: WE HAVE AN INTERNATIONAL MOGAD PATIENT SUMMIT AND A US MOGAD PATIENT SUMMIT PROGRAM THAT PROVIDES EDUCATION FOR MOGAD PATIENTS WORLDWIDE AND IN THE US. PATIENTS CAN ATTEND IN PERSON OR SEE THE EVENT LIVESTREAMED. THEY CAN ALSO PARTICIPATE IN THE EVENT BY ASKING QUESTIONS TO THE PRESENTERS. PRESENTERS INCLUDE TOP EXPERTS IN THE DISEASE WORLDWIDE. THESE PROGRAMS ARE CURRENTLY BASED IN THE US AND STREAMED LIVE GLOBALLY. WE ALSO PROVIDE A WEBSITE AND YOUTUBE CHANNEL FILLED WITH WRITTEN MATERIALS, INFOGRAPHICS AND VIDEOS AIMED AT EDUCATING PATIENTS, CAREGIVERS AND MEDICAL PROFESSIONALS. IN ADDITION, WE HOLD A BLOG SPACE FOR ARTICLES WRITTEN TO EDUCATE PATIENTS ON RESEARCH ARTICLES AND PATIENT EXPERIENCE SO THAT THEY CAN KNOW WHAT OTHERS HAVE GONE THROUGH, INFORMING THEM BETTER ON WHAT TO EXPECT WITH DISEASE MANAGEMENT. WE ALSO PROVIDE A GREAT DEAL OF PRINTED MATERIALS FOR PATIENTS THAT WE DISTRIBUTE AT EVENTS AND SEND TO CLINICS TREATING MOGAD ALL OVER THE WORLD. EDUCATIONAL EVENTS & PROGRAMS: WE HAVE AN INTERNATIONAL MOGAD PATIENT SUMMIT AND A US MOGAD PATIENT SUMMIT PROGRAM THAT PROVIDES EDUCATION FOR MOGAD PATIENTS WORLDWIDE AND IN THE US. PATIENTS CAN ATTEND IN PERSON OR SEE THE EVENT LIVESTREAMED. THEY CAN ALSO PARTICIPATE IN THE EVENT BY ASKING QUESTIONS TO THE PRESENTERS. PRESENTERS INCLUDE TOP EXPERTS IN THE DISEASE WORLDWIDE. THESE PROGRAMS ARE CURRENTLY BASED IN THE US AND STREAMED LIVE GLOBALLY. WE ALSO PROVIDE A WEBSITE AND YOUTUBE CHANNEL FILLED WITH WRITTEN MATERIALS, INFOGRAPHICS AND VIDEOS AIMED AT EDUCATING PATIENTS, CAREGIVERS AND MEDICAL PROFESSIONALS. IN ADDITION, WE HOLD A BLOG SPACE FOR ARTICLES WRITTEN TO EDUCATE PATIENTS ON RESEARCH ARTICLES AND PATIENT EXPERIENCE SO THAT THEY CAN KNOW WHAT OTHERS HAVE GONE THROUGH, INFORMING THEM BETTER ON WHAT TO EXPECT WITH DISEASE MANAGEMENT. WE ALSO PROVIDE A GREAT DEAL OF PRINTED MATERIALS FOR PATIENTS THAT WE DISTRIBUTE AT EVENTS AND SEND TO CLINICS TREATING MOGAD ALL OVER THE WORLD.
  2. $81,975 spent. RESEARCH PROGRAMS: WE WORK TO AFFECT RESEARCH IN MOGAD THROUGH PATIENT PARTICIPATION IN SURVEYS IN COLLABORATION WITH REPUTABLE RESEARCHERS/INDUSTRY PARTNERS TO HELP GUIDE RESEARCH TO BETTER UNDERSTAND THE PATIENT EXPERIENCE GIVEN THAT THIS IS A NEWLY DISCOVERED DISEASE THAT REQUIRES BETTER UNDERSTANDING OF WHAT SYMPTOMS PATIENTS EXPERIENCE AND HOW THEIR DISEASE MANIFESTS OVER TIME. WE ALSO USE THESE SURVEYS TO UNDERSTAND WHAT THE PATIENT POPULATION NEEDS IN VARIOUS WORLD AREAS, INCLUDING UNDERSERVED COMMUNITIES. WE ALSO PROVIDE, WHEN AVAILABLE, FUNDS WE RAISED AS GRANTS FOR ADJUDICATED RESEARCH AS PART OF OUR RESEARCH FOR RARE PROGRAM, WHICH COVERS TWO TYPES OF GRANTS: ONE THAT FUNDS RESEARCH IN IMPACTFUL AREAS THAT WILL PROVIDE SEED DATA FOR LARGER GRANTS AVAILABLE AT INSTITUTIONS LIKE NIH, AND ANOTHER THAT FUNDS INFRASTUCTURE, SUCH AS REGISTRIES FOR DATA COLLECTION AND MANAGEMENT. RESEARCH PROGRAMS: WE WORK TO AFFECT RESEARCH IN MOGAD THROUGH PATIENT PARTICIPATION IN SURVEYS IN COLLABORATION WITH REPUTABLE RESEARCHERS/INDUSTRY PARTNERS TO HELP GUIDE RESEARCH TO BETTER UNDERSTAND THE PATIENT EXPERIENCE GIVEN THAT THIS IS A NEWLY DISCOVERED DISEASE THAT REQUIRES BETTER UNDERSTANDING OF WHAT SYMPTOMS PATIENTS EXPERIENCE AND HOW THEIR DISEASE MANIFESTS OVER TIME. WE ALSO USE THESE SURVEYS TO UNDERSTAND WHAT THE PATIENT POPULATION NEEDS IN VARIOUS WORLD AREAS, INCLUDING UNDERSERVED COMMUNITIES. WE ALSO PROVIDE, WHEN AVAILABLE, FUNDS WE RAISED AS GRANTS FOR ADJUDICATED RESEARCH AS PART OF OUR RESEARCH FOR RARE PROGRAM, WHICH COVERS TWO TYPES OF GRANTS: ONE THAT FUNDS RESEARCH IN IMPACTFUL AREAS THAT WILL PROVIDE SEED DATA FOR LARGER GRANTS AVAILABLE AT INSTITUTIONS LIKE NIH, AND ANOTHER THAT FUNDS INFRASTUCTURE, SUCH AS REGISTRIES FOR DATA COLLECTION AND MANAGEMENT.
  3. $20,855 spent. SUPPORT: WE PROVIDE SUPPORT GROUPS THROUGH SOCIAL MEDIA CHANNELS AS WELL AS SUPPORT FOR SMALL GROUPS VIA ZOOM. WE USE THESE GROUPS TO CONNECT PATIENTS TO OTHERS GOING THROUGH THE SAME THING THEY ARE SINCE THEY WILL HAVE DIFFICULTY FORMING LOCAL GROUPS TO DO THIS AS MOGAD IS A RARE DISEASE. WE ALSO PROVIDE SUPPORT EVENTS WHERE MEDICAL EXPERTS GATHER TO DO A Q&A FOR PATIENTS REGULARLY THROUGHOUT THE YEAR, GIVING PATIENTS AN OPPORTUNITY TO GET SUPPORT BACKED BY EXPERT MEDICAL ADVICE IN A GENERAL MANNER. IN ADDITION, WE HAVE A CHILDREN'S AMBASSADOR PROGRAM FOR KIDS LED BY PARENTS TO PROVIDE A SUPPORT NETWORK FOR KIDS UNDER 18. WE ALSO HAVE A PEER-TO-PEER PROGRAM CALLED MOGMENTORS THAT CONNECTS NEW PATIENTS WITH VOLUNTEERS WHO HAVE GONE THROUGH A GOOD AMOUNT OF TIME LIVING WITH THE DISEASE AND CAN HELP OTHERS UNFAMILIAR. SUPPORT: WE PROVIDE SUPPORT GROUPS THROUGH SOCIAL MEDIA CHANNELS AS WELL AS SUPPORT FOR SMALL GROUPS VIA ZOOM. WE USE THESE GROUPS TO CONNECT PATIENTS TO OTHERS GOING THROUGH THE SAME THING THEY ARE SINCE THEY WILL HAVE DIFFICULTY FORMING LOCAL GROUPS TO DO THIS AS MOGAD IS A RARE DISEASE. WE ALSO PROVIDE SUPPORT EVENTS WHERE MEDICAL EXPERTS GATHER TO DO A Q&A FOR PATIENTS REGULARLY THROUGHOUT THE YEAR, GIVING PATIENTS AN OPPORTUNITY TO GET SUPPORT BACKED BY EXPERT MEDICAL ADVICE IN A GENERAL MANNER. IN ADDITION, WE HAVE A CHILDREN'S AMBASSADOR PROGRAM FOR KIDS LED BY PARENTS TO PROVIDE A SUPPORT NETWORK FOR KIDS UNDER 18. WE ALSO HAVE A PEER-TO-PEER PROGRAM CALLED MOGMENTORS THAT CONNECTS NEW PATIENTS WITH VOLUNTEERS WHO HAVE GONE THROUGH A GOOD AMOUNT OF TIME LIVING WITH THE DISEASE AND CAN HELP OTHERS UNFAMILIAR.
  4. PROGRAM SERVICE EXPENSES: 0, GRANTS AND ALLOCATIONS: 0, REVENUE: 0 POLICY PROGRAMS: OUR POLICY PROGRAMS ARE AIMED AT AFFECTING POLICY AND BRINGING AWARENESS TO MOGAD WORLDWIDE. EXAMPLES OF THIS INCLUDE OUR WORK TO ADVOCATE FOR INCREASED FUNDING AT NINDS/NIH AND THE CREATION OF A ICD-10 CODE WITH THE CDC AND AND ICD-11 CODE WITH THE WHO. OTHER EFFORTS INCLUDE WORK TO ENCOURAGE LAWMAKERS TO RECOGNIZE MOGAD AS A DISEASE SO THAT PATIENTS WITH THE INVISIBLE DISABILITY CAUSED BY THE DISEASE WHO CANNOT WORK CAN GET THEIR DISABILITY APPROVED THOUGH FEDERAL/STATE SOCIAL SECURITY MECHANISMS.
  5. PROGRAM SERVICE EXPENSES: 0, GRANTS AND ALLOCATIONS: 0, REVENUE: 0 POLICY PROGRAMS: OUR POLICY PROGRAMS ARE AIMED AT AFFECTING POLICY AND BRINGING AWARENESS TO MOGAD WORLDWIDE. EXAMPLES OF THIS INCLUDE OUR WORK TO ADVOCATE FOR INCREASED FUNDING AT NINDS/NIH AND THE CREATION OF A ICD-10 CODE WITH THE CDC AND AND ICD-11 CODE WITH THE WHO. OTHER EFFORTS INCLUDE WORK TO ENCOURAGE LAWMAKERS TO RECOGNIZE MOGAD AS A DISEASE SO THAT PATIENTS WITH THE INVISIBLE DISABILITY CAUSED BY THE DISEASE WHO CANNOT WORK CAN GET THEIR DISABILITY APPROVED THOUGH FEDERAL/STATE SOCIAL SECURITY MECHANISMS.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since December 2020.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.