Haleys Heroes Foundation
Public records show a registered, tax-exempt organization in good standing.
What it says it does
TO BRING AWARENESS AND FINDING A CURE FOR BATTEN DISEASE. TO LEAD RESEARCH TEAMS AND EVALUATE THE EFFECTIVENESS OF GENE THERAPY AT PREVENTING, CURING, SLOWING AND REDUCING SYMPTOMS OF CLN1.
- Income
- $20,107
- Spending
- $100,293
- Reserves
- 40.9 months of spending
- Largest source of income
- donations and private grants, 96%
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 79 out of 100. Higher than 55% of charities in its peer group (medical research, under $250k).
Reserves
35 of 35Spendable reserves would cover 40.9 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
0 of 15Spending exceeded income by 399% of income.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (1)
- $87,934 spent. IN THE NEXT 10 YEARS, WE WILL EXTEND OUR EFFORTS TO RESEARCH AND EVALUATE REGENERATIVE THERAPY FOR IMPROVEMENT OF SYMPTOMS FOR THOSE AFFECTED BY ALL VARIANTS OF BATTEN DISEASE. AND IN THE NEXT 15 YEARS, WE WILL RESEARCH AND EVALUATE THE EFFECTIVENESS OF ANY AND ALL POTENTIAL TREATMENTS, THERAPIES AND CURES FOR ALL VARIANTS OF BATTEN DISEASE. ULTIMATELY, ALL VICTIMS OF BATTEN DISEASE WILL RECEIVE OR BENEFIT FROM FOUNDATION INFLUENCED CARE AND DEVELOPMENTS TO HAVE SYMPTOM SLOWING, SYMPTOM TERMINATION, SYMPTOM REVERSAL, CURE AND/OR PREVENTION. WE WILL SEE 1) FDA APPROVAL FOR BATTEN DISEASE THERAPY CLINICAL TRIALS 2) CLINICAL SUCCESS FOR HALEY AND OTHER CHILDREN 3) SCIENTIFIC ADVANCES BEYOND BATTEN DISEASE.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since January 2021.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.