HIV and Hepatitis Policy Institute
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE HIV+HEPATITIS POLICY INSTITUTE PROMOTES QUALITY AND AFFORDABLE HEALTHCARE FOR PEOPLE LIVING WITH OR AT RISK OF HIV, HEPATITIS, AND OTHER SERIOUS AND CHRONIC HEALTH CONDITIONS. MONITORS POLICIES THAT IMPACT THE PREVENTION AND TREATMENT OF HIV, VIRAL HEPATITIS, AND OTHER HEALTH CONDITIONS IN THE UNITED STATES. COMMUNICATES WITH MEMBERS OF THE HIV, HEPATITIS, AND OTHER PATIENT GROUP COMMUNITIES ON KEY POLICY ISSUES THAT IMPACT THEIR ACCESS TO HEALTHCARE. EDUCATES POLICYMAKERS AND MEMBERS OF THE MEDIA ABOUT EFFORTS TO END BOTH HIV AND HEPATITIS IN THE UNITED STATES AND TO IMPROVE ACCESS TO QUALITY AND AFFORDABLE HEALTHCARE FOR PEOPLE WITH OR AT RISK OF SERIOUS OR CHRONIC HEALTH CONDITIONS.
- Income
- $1.3 million
- Spending
- $1.2 million
- Spent on programs
- 87%
- Reserves
- 11 months of spending
- Largest source of income
- donations and private grants, 99%
- Employees
- 6
- Highest pay
- $300,402, president/ex
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 88 out of 100. Higher than 72% of charities in its peer group (health care, $1m to $10m).
Reserves
28 of 35Spendable reserves would cover 11.0 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
15 of 15Income exceeded spending by 3% of income.
Income trend
10 of 15Income fell 3% on the year before.
Spending floor
15 of 1587% of spending went to programs and raising each dollar of donations cost 1 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Good: 70 out of 100. Higher than 19% of charities in its peer group (health care, $1m to $10m).
Independent board
25 of 258 of 9 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
0 of 15Its accounts were not audited or reviewed by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $539,775 spent. HIV: HIV+HEP CARRIED OUT ACTIVITIES THAT ADVANCE POLICIES AND PROGRAMS THAT INCREASE HIV PREVENTION AND TREATMENT, INCLUDING THE RYAN WHITE HIV/AIDS PROGRAM AND THE ACTIVITIES OF THE CENTERS FOR DISEASE CONTROL AND PREVENTION HIV DIVISION. AS THE FEDERAL GOVERNMENT CONTINUES TO FOCUS ON ACTIVITIES TO END HIV IN THE UNITED STATES, HIV+HEP PARTICIPATED IN ONGOING OPPORTUNITIES TO DEVELOP AND IMPLEMENT THE PROGRAMS AND POLICIES TO ACHIEVE THE GOALS OF THE INITIATIVE. ONE AREA OF FOCUS WAS PRE-EXPOSURE PROPHYLAXIS (PREP), A DRUG THAT PREVENTS HIV, INCLUDING PRIVATE INSURANCE COVERAGE, ZERO PATIENT COST-SHARING OBLIGATIONS BY INSURERS, AND THE CREATION OF A NATIONAL PREP PROGRAM. WE RESPONDED TO MANY COMPLAINTS BY PREP USERS WHO WERE BEING ILLEGALLY CHARGED COST-SHARING FOR PREP OR THE ASSOCIATED LABS AND HELPED THEM WITH THEIR INSURERS AND REGULATORS. WE BROUGHT THIS ONGOING ISSUE TO POLICYMAKERS AND THE MEDIA. WE ALSO MONITORED A LEGAL CASE THAT CHALLENGED THE PREVENTIVE SERVICES COVERAGE REQUIREMENTS INCLUDED IN THE AFFORDABLE CARE ACT. HIV+HEP WORKED TO ENSURE ACCESS TO ALL ANTIRETROVIRALS TO TREAT HIV IN THE MEDICARE PART D PROGRAM AND THE PRIVATE INSURANCE MARKET. WE REVIEWED INSURANCE BENEFIT DESIGN TO ENSURE PLANS WERE COMPLIANT WITH THE ACA AND FILED COMPLAINTS WITH SEVERAL STATE INSURANCE REGULATORS. AS PART OF ALL ITS WORK IT ENSURED THAT THE POLICIES AND PROGRAMS BEST MEET THE NEEDS OF THOSE HIGHLY IMPACTED BY HIV. HIV+HEP SPOKE AT NUMEROUS HIV MEETINGS AND WEBINARS, SUBMITTED PUBLIC COMMENTS AND TESTIMONY, ISSUED PRESS RELEASES, RESPONDED TO MEDIA INQUIRIES, AND CONDUCTED OTHER MEDIA ACTIVITIES. THIS WORK WAS CONDUCTED ON ITS OWN AND IN COALITION WITH OTHERS, INCLUDING THE WORKGROUPS OF THE FEDERAL AIDS POLICY PARTNERSHIP. HIV: HIV+HEP CARRIED OUT ACTIVITIES THAT ADVANCE POLICIES AND PROGRAMS THAT INCREASE HIV PREVENTION AND TREATMENT, INCLUDING THE RYAN WHITE HIV/AIDS PROGRAM AND THE ACTIVITIES OF THE CENTERS FOR DISEASE CONTROL AND PREVENTION HIV DIVISION. AS THE FEDERAL GOVERNMENT CONTINUES TO FOCUS ON ACTIVITIES TO END HIV IN THE UNITED STATES, HIV+HEP PARTICIPATED IN ONGOING OPPORTUNITIES TO DEVELOP AND IMPLEMENT THE PROGRAMS AND POLICIES TO ACHIEVE THE GOALS OF THE INITIATIVE. ONE AREA OF FOCUS WAS PRE-EXPOSURE PROPHYLAXIS (PREP), A DRUG THAT PREVENTS HIV, INCLUDING PRIVATE INSURANCE COVERAGE, ZERO PATIENT COST-SHARING OBLIGATIONS BY INSURERS, AND THE CREATION OF A NATIONAL PREP PROGRAM. WE RESPONDED TO MANY COMPLAINTS BY PREP USERS WHO WERE BEING ILLEGALLY CHARGED COST-SHARING FOR PREP OR THE ASSOCIATED LABS AND HELPED THEM WITH THEIR INSURERS AND REGULATORS. WE BROUGHT THIS ONGOING ISSUE TO POLICYMAKERS AND THE MEDIA. WE ALSO MONITORED A LEGAL CASE THAT CHALLENGED THE PREVENTIVE SERVICES COVERAGE REQUIREMENTS INCLUDED IN THE AFFORDABLE CARE ACT. HIV+HEP WORKED TO ENSURE ACCESS TO ALL ANTIRETROVIRALS TO TREAT HIV IN THE MEDICARE PART D PROGRAM AND THE PRIVATE INSURANCE MARKET. WE REVIEWED INSURANCE BENEFIT DESIGN TO ENSURE PLANS WERE COMPLIANT WITH THE ACA AND FILED COMPLAINTS WITH SEVERAL STATE INSURANCE REGULATORS. AS PART OF ALL ITS WORK IT ENSURED THAT THE POLICIES AND PROGRAMS BEST MEET THE NEEDS OF THOSE HIGHLY IMPACTED BY HIV. HIV+HEP SPOKE AT NUMEROUS HIV MEETINGS AND WEBINARS, SUBMITTED PUBLIC COMMENTS AND TESTIMONY, ISSUED PRESS RELEASES, RESPONDED TO MEDIA INQUIRIES, AND CONDUCTED OTHER MEDIA ACTIVITIES. THIS WORK WAS CONDUCTED ON ITS OWN AND IN COALITION WITH OTHERS, INCLUDING THE WORKGROUPS OF THE FEDERAL AIDS POLICY PARTNERSHIP.
- $122,670 spent. HEPATITIS: HIV+HEP CARRIED OUT ACTIVITIES THAT ADVANCE POLICIES AND PROGRAMS THAT INCREASE VIRAL HEPATITIS PREVENTION AND TREATMENT, INCLUDING THE ACTIVITIES OF THE CENTERS FOR DISEASE CONTROL AND PREVENTION VIRAL HEPATITIS DIVISION. THE PRINCIPAL FOCUS OF HIV+HEP'S ACTIVITIES WAS TO ENSURE THERE ARE SUFFICIENT RESOURCES FOR STATES AND COMMUNITY-BASED ORGANIZATIONS TO OFFER HEPATITIS TESTING, CONDUCT SURVEILLANCE, AND LINK PEOPLE WITH HEPATITIS TO HEALTHCARE AND THE TREATMENT THEY NEED TO MAINTAIN THEIR HEALTH OR IN THE CASE OF HEPATITIS C, TO BE CURED. HIV+HEP OFFERED COMMENTS ON THE ADMINISTRATION'S PROPOSAL TO END HEPATITIS C. HIV+HEP SUBMITTED PUBLIC COMMENTS AND TESTIMONY, ISSUED PRESS RELEASES, RESPONDED TO MEDIA INQUIRIES, AND CONDUCTED OTHER MEDIA ACTIVITIES. THIS WORK WAS CONDUCTED ON ITS OWN AND IN COALITION WITH OTHERS, INCLUDING THE HEPATITIS APPROPRIATIONS COALITION. HEPATITIS: HIV+HEP CARRIED OUT ACTIVITIES THAT ADVANCE POLICIES AND PROGRAMS THAT INCREASE VIRAL HEPATITIS PREVENTION AND TREATMENT, INCLUDING THE ACTIVITIES OF THE CENTERS FOR DISEASE CONTROL AND PREVENTION VIRAL HEPATITIS DIVISION. THE PRINCIPAL FOCUS OF HIV+HEP'S ACTIVITIES WAS TO ENSURE THERE ARE SUFFICIENT RESOURCES FOR STATES AND COMMUNITY-BASED ORGANIZATIONS TO OFFER HEPATITIS TESTING, CONDUCT SURVEILLANCE, AND LINK PEOPLE WITH HEPATITIS TO HEALTHCARE AND THE TREATMENT THEY NEED TO MAINTAIN THEIR HEALTH OR IN THE CASE OF HEPATITIS C, TO BE CURED. HIV+HEP OFFERED COMMENTS ON THE ADMINISTRATION'S PROPOSAL TO END HEPATITIS C. HIV+HEP SUBMITTED PUBLIC COMMENTS AND TESTIMONY, ISSUED PRESS RELEASES, RESPONDED TO MEDIA INQUIRIES, AND CONDUCTED OTHER MEDIA ACTIVITIES. THIS WORK WAS CONDUCTED ON ITS OWN AND IN COALITION WITH OTHERS, INCLUDING THE HEPATITIS APPROPRIATIONS COALITION.
- $409,623 spent. GENERAL HEALTHCARE ACCESS: HIV+HEP WORKED TO ENSURE PEOPLE LIVING WITH SERIOUS AND CHRONIC HEALTH CONDITIONS HAVE ACCESS TO AFFORDABLE HEALTHCARE, INCLUDING PRESCRIPTION DRUGS. THIS INCLUDED POLICY ANALYSIS IN THE AREAS OF MEDICAID, MEDICARE, AND PRIVATE INSURANCE. HIV+HEP EDUCATED THE PATIENT COMMUNITY, THE MEDIA, AND POLICYMAKERS AT THE FEDERAL AND STATE LEVELS, ON THE IMPORTANCE OF COPAY ASSISTANCE FOR PRESCRIPTION DRUGS. WE SUCCESSFULLY WON A LEGAL CHALLENGE OF THE FEDERAL REGULATION THAT ALLOWS INSURERS TO IMPLEMENT COPAY ACCUMULATOR PROGRAMS AND URGED THE FEDERAL GOVERNMENT TO COMPLY WITH THE COURT'S DECISION. HIV+HEP ALSO PARTICIPATED IN THE ACTIVITIES OF THE NATIONAL ASSOCIATION OF INSURANCE COMMISSIONERS, WHERE WE FOCUSED ON THE IMPACT OF PHARMACY BENEFIT MANAGERS ON PATIENT ACCESS AND AFFORDABILITY OF PRESCRIPTION DRUGS, PRIOR AUTHORIZATION PROCESSES, AND COVERAGE OF PREVENTIVE SERVICES. HIV+HEP SUBMITTED COMMENTS ON PROPOSED EXECUTIVE AGENCY REGULATIONS, ISSUED PRESS RELEASES AND RESPONDED TO MEDIA INQUIRIES, AND PRESENTED BEFORE PATIENT GROUPS. THIS WORK WAS PERFORMED ON ITS OWN AND IN COALITION WITH OTHER PATIENT GROUPS, INCLUDING THE PARTNERSHIP FOR PART D, MEDICARE ACCESS FOR PATIENTS RX (MAPRX), AND ALL COPAYS COUNT COALITION. GENERAL HEALTHCARE ACCESS: HIV+HEP WORKED TO ENSURE PEOPLE LIVING WITH SERIOUS AND CHRONIC HEALTH CONDITIONS HAVE ACCESS TO AFFORDABLE HEALTHCARE, INCLUDING PRESCRIPTION DRUGS. THIS INCLUDED POLICY ANALYSIS IN THE AREAS OF MEDICAID, MEDICARE, AND PRIVATE INSURANCE. HIV+HEP EDUCATED THE PATIENT COMMUNITY, THE MEDIA, AND POLICYMAKERS AT THE FEDERAL AND STATE LEVELS, ON THE IMPORTANCE OF COPAY ASSISTANCE FOR PRESCRIPTION DRUGS. WE SUCCESSFULLY WON A LEGAL CHALLENGE OF THE FEDERAL REGULATION THAT ALLOWS INSURERS TO IMPLEMENT COPAY ACCUMULATOR PROGRAMS AND URGED THE FEDERAL GOVERNMENT TO COMPLY WITH THE COURT'S DECISION. HIV+HEP ALSO PARTICIPATED IN THE ACTIVITIES OF THE NATIONAL ASSOCIATION OF INSURANCE COMMISSIONERS, WHERE WE FOCUSED ON THE IMPACT OF PHARMACY BENEFIT MANAGERS ON PATIENT ACCESS AND AFFORDABILITY OF PRESCRIPTION DRUGS, PRIOR AUTHORIZATION PROCESSES, AND COVERAGE OF PREVENTIVE SERVICES. HIV+HEP SUBMITTED COMMENTS ON PROPOSED EXECUTIVE AGENCY REGULATIONS, ISSUED PRESS RELEASES AND RESPONDED TO MEDIA INQUIRIES, AND PRESENTED BEFORE PATIENT GROUPS. THIS WORK WAS PERFORMED ON ITS OWN AND IN COALITION WITH OTHER PATIENT GROUPS, INCLUDING THE PARTNERSHIP FOR PART D, MEDICARE ACCESS FOR PATIENTS RX (MAPRX), AND ALL COPAYS COUNT COALITION.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since February 2021.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
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