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ALS Cure Project Inc

EIN 84-3289802 · Pleasanton, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood70 out of 100GovernanceGood81 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

This year the ALS Cure Project in collabortion with Canadian and US partners continued to fund the multimodal Longitudinal Modeling project along with the Drug Repurposing Project

Income
$133,389
Spending
$388,413
Spent on programs
98%
Reserves
15 months of spending
Largest source of income
donations and private grants, 75%
Employees
0
Volunteers
15

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 70 out of 100. Higher than 39% of charities in its peer group (medical research, under $250k).

  • Reserves

    35 of 35

    Spendable reserves would cover 15.0 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 191% of income.

  • Income trend

    0 of 15

    Income fell 84% on the year before.

  • Spending floor

    15 of 15

    98% of spending went to programs and raising each dollar of donations cost 2 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 81 out of 100. Higher than 70% of charities in its peer group (medical research, under $250k).

  • Independent board

    25 of 25

    8 of 8 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $304,317 spent. 3ML Multimodal Longitudinal Modeling ProjectThis is a multi-nation collaboration project with Canadian and US partners managed by the President of the ALS CURE Project gratis. The University of Alberta was funded to support coordination activities for the MRI, Blood and speech sample and data collection of the Canadian patients involved with the 3ML project. Stanford University received funding to support the development of the 3ML model. Lawrence Livermore National Laboratory was funded through the Livermore Lab Foundation to provide strategic ML oversight and development of key interfaces.
  2. $75,000 spent. ALS and Parkinsons Drug Repurposing ProjectThis project is a validation of previous work funded at Lawrence Livermore National Laboratory through the Livermore Lab Foundation LLF was funded to validate results using the Optum dataset. The goal of this project is to use ML learning to analyze medical records of ALS patients to search for existing approved drugs off-target which might be useful in extending the life of ALS and PD patients. Funding partners included, LLF, Stanford, ALS Network and the RDM Positive Impact Foundation.
  3. $3,000 spent. UC Campus ALS MeetingSponsored the poster session reception at this 2 day conference for UC ALS researchers and ALS funding agencies at the University of California Livermore Collaboration Campus.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since November 2019.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.