Skip to the page content
Your donations
Passes our checks

Ash Registry Inc

EIN 82-4218205 · Washington, DC

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthWeak30 out of 100GovernanceStrong95 out of 100Impact evidenceDescribes programsHow well its results are evidenced

Points to look into

  • It owes more than it owns.

These come from the organization's own tax return. There may be a good explanation; ask the charity.

What it says it does

THE ASH RESEARCH COLLABORATIVE (ASH RC) IS WORKING TO ACCELERATE CHANGE BY MAKING IT MORE EFFICIENT TO CONDUCT RESEARCH, FROM INCREASING ACCESS TO HIGH-QUALITY CLINICAL DATA TO MAKING IT EASIER FOR INDIVIDUALS WITH HEMATOLOGIC CONDITIONS TO PARTICIPATE IN STUDIES.

Income
$5.0 million
Spending
$10.0 million
Spent on programs
80%
Reserves
-60.8 months of spending
Largest source of income
donations and private grants, 88%
Employees
0
Volunteers
79
Highest pay
$744,060, executive director

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Weak: 30 out of 100. Higher than 3% of charities in its peer group (science, $1m to $10m).

  • Reserves

    0 of 35

    Spendable reserves are negative: it owes or has committed more than it holds.

  • Debt

    0 of 20

    It owes 1309% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 102% of income.

  • Income trend

    15 of 15

    Income rose 67% on the year before.

  • Spending floor

    15 of 15

    80% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 95 out of 100. Higher than 64% of charities in its peer group (science, $1m to $10m).

  • Independent board

    25 of 25

    11 of 11 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $8.0 million spent. THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS IN SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON PATIENTS WITH MULTIPLE MYELOMA (MM) AND SICKLE CELL DISEASE (SCD). THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 24,000 PATIENTS WITH SCD AND 6,300 PATIENTS WITH MM.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since January 2020.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.