Skip to the page content
Your donations
Passes our checks

Krabbe Connect

EIN 82-2964680 · Rosemount, MN

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceGood83 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

KRABBECONNECT WILL BE THE SOURCE OF COMPREHENSIVE INFORMATION AND ACCESS TO RESOURCES FOR FAMILIES WITH KRABBE DISEASE.

Income
$314,070
Spending
$189,329
Spent on programs
83%
Reserves
21.1 months of spending
Largest source of income
other income, 54%
Employees
0

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 81% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 21.1 months of spending.

  • Debt

    20 of 20

    It owes 1% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 40% of income.

  • Income trend

    15 of 15

    Income rose 6% on the year before.

  • Spending floor

    15 of 15

    83% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 83 out of 100. Higher than 60% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    10 of 10 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (4)
  1. $17,211 spent. PATIENT ENGAGEMENT: PROVIDING INFORMATION AND RESOURCES FOR KRABBE DESEASE THROUGH KRABBECONNECT WEBSITE, FACEBOOK, AND SOCAL MEDIA CHANNELS. ENGAGEMENT WITH FAMILIES AFFECTED BY THE DIESASE BY OFFERING SUPPORT AND CONNECTIONS FOR MANAGING CARE OF THE PATIENTS. RESOURCES INCLUDE CONTACT INFORMATION FOR CLINICAL EXPERTS, EXPERTS IN RESEARCH, CURRENT RESEARCH LITERATURE VIA THE RESOURCE LIBRARY, AND OPPORTUNITIES FOR CLINICAL TRIALS IN THE DISEASE SPACE. KRABBECONNECT ALSO INTERACTS WITH THE COMMUNITY THROUGH OUR INTERNATIONAL LIAISON, OUTREACH DIRECTOR AND PATIENT ENGAGEMENT MANAGER.
  2. $1,332 spent. PATIENT ADVOCACY AND ADVANCEMENT: BOARD MEMBERS ROUTINELY ATTEND CONFERENCES AND MEETINGS THAT INVOLVE THE RATE DISEASE COMMUNITY TO SUPPORT THE NEEDS OF THE KRABBE PATIENTS AND THEIR FAMILIES. KRABBECONNECT ALSO PARTICIPATES IN NETWORKING OPPORTUNITIES WITH OTHER ADVOCACY FOUNDATIONS JOINING TOGETHER TO HAVE A VOICE FOR THE PATIENTS. KRABBECONNECT MAINTAINS MEMBERSHIP WITH SERVERAL LARGE ORGANIZATIONS, I.E. NORD, GLOBAL GENES, ULF, WORLD LYSOSOMAL STORAGE DISEASE TO ENHANCE THE ADVOCACY AND EDUCATION OF KRABBE DISEASE.
  3. $114,406 spent. RESEARCH AND DEVELOPMENT: KRABBECONNECT PRODUCED A POSTER TO DISCUSS THE PATIENT BURDEN OF KRABBE DISEASE. RESEARCH CONDUCTED TO COLLECT DATA FROM PATIENTS TO CAPTURE THE UNMET NEEDS IN THE KRABBE COMMUNITY. THE RESEARCH WILL SERVE AS A TOOL TO CLINICIANS, SCIENTISTS, RESEARCHERS, AND INDUSTRY TO HELP WITH THE ADVANCEMENT OF NEW NOVEL TREATMENTS IN THE KRABBE DISEASE SPACE. KRABBECONNECT IS WORKING TO CREATE A PATIENT REGISTRY AND PATIENT FOCUSED DRUG DEVELOPMENT MEETING WITH THE FDA TO SUPPORT RESEARCH AND ADVANCEMENTS IN TREATING KRABBE DISEASE.
  4. $24,173 spent. OTHER PROGRAM SERVICES

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since February 2018.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.