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Systemic Jia Foundation

EIN 82-2564392 · Mountain View, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood78 out of 100GovernanceWeak44 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

1. TO SUPPORT RESEARCH RELATING TO TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS (SJIA); 2. PROMOTE INCREASED AWARENESS, KNOWLEDGE AND UNDERSTANDING OF SJIA BY MEDICAL PROFESSIONALS, THE GENERAL PUBLIC AND FAMILIES AFFECTED BY SJIA; 3. PROMOTE MUTUAL SUPPORT THROUGH BUILDING AND MAINTAINING AN EXTENSIVE WEB-BASED OR OTHER NETWORK OF INFORMATION AND RESOURCES FOR THE GENERAL PUBLIC AND FAMILIES.

Income
$159,459
Spending
$142,526
Spent on programs
77%
Reserves
9 months of spending
Largest source of income
donations and private grants, 100%
Employees
0
Volunteers
0

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 78 out of 100. Higher than 52% of charities in its peer group (medical research, under $250k).

  • Reserves

    28 of 35

    Spendable reserves would cover 9.0 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 11% of income.

  • Income trend

    0 of 15

    Income fell 54% on the year before.

  • Spending floor

    15 of 15

    77% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Weak: 44 out of 100. Higher than 23% of charities in its peer group (medical research, under $250k).

  • Independent board

    5 of 25

    1 of 3 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. SYSTEMIC JIA FOUNDATION PLANS SEVERAL TYPES OF FUNDRAISING: 1) DONATIONS FROM FAMILIES WITH SJIA: THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO FAMILIES WITH SJIA TO BOTH CONTRIBUTE AND RAISE FUNDS FOR THE BENEFIT OF THE SYSTEMIC JIA FOUNDATION. THE SYSTEMIC JIA FOUNDATION WILL RAISE FUNDS ONLINE, USING FUNDRAISING SITES SUCH AS CROWDRISE, STRIPE, FACEBOOK OR FUNDRAISING FUNCTIONALITY ON OUR OWN WEBSITE.2) EVENT SPONSORSHIPS FROM PHARMA COMPANIES: FOR ANY EVENTS THE SYSTEMIC JIA FOUNDATION ORGANIZE, THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO PHARMA COMPANIES WHO ARE INTERESTED IN SJIA TO GIVE SPONSORSHIPS AT DIFFERENT LEVELS TO SUPPORT THE EVENT.3) GENERAL: THE SYSTEMIC JIA FOUNDATION WILL UNDERTAKE ADDITIONAL FUNDRAISING FROM A VARIETY OF SOURCES INCLUDING MAIL, EMAIL, PERSONAL AND PHONE SOLICITATIONS. THE ORGANIZATION WILL CREATE PROPOSALS AND OTHER MATERIALS THAT WILL BE NECESSARY TO SUBMIT IN ORDER FOR THE ORGANIZATION TO RECEIVE GRANTS AND DONATIONS.4) GRANTS FROM OTHER CHARITABLE ORGANIZATIONS. THE SYSTEMIC JIA FOUNDATION WILL RAISE ADDITIONAL FUNDS FROM OTHER CHARITABLE FOUNDATIONS.
  2. $3,445 spent. CONFERENCES ATTENDED IN 2024PRES CONGRESS 2024 ATTENDED FROM SEPTEMBER 11, 2024 TO SEPTEMBER 14, 2024 AT GOTHENBURG SWEDEN.BRIEF DESCRIPTION: THE PRES (PEDIATRIC RHEUMATOLOGY EUROPEAN SOCIETY) CONFERENCE IS AN ANNUAL INTERNATIONAL EVENT FOCUSED ON ADVANCEMENTS IN PEDIATRIC RHEUMATOLOGY. IT'S A PLATFORM FOR HEALTHCARE PROFESSIONALS, RESEARCHERS, AND SCIENTISTS TO NETWORK, LEARN, AND SHARE THEIR KNOWLEDGE ON DIAGNOSING, TREATING, AND MANAGING RHEUMATIC DISEASES IN CHILDREN AND YOUNG PEOPLE.
  3. $106,367 spent. NEXTGEN 2024 ORGANIZED FROM WEDNESDAY NOVEMBER 13, 2024 TO FRIDAY, NOVEMBER 15, 2024.DESCRIPTION: NEXTGEN CONFERENCE (AS WITH NEXTGEN IN PREVIOUS YEARS) AIMS TO ADVANCE THERAPIES FOR SJIA, STILL'S DISEASE AND MAS. THE SPECIFIC FOCUS IN 2024 IS ON CLINICAL TRIALS AND BONE MARROW TRANSPLANTATION AS AN OPTION FOR REFRACTORY DISEASE. THE FOUNDATION INVITES ALL STAKEHOLDERS TO THE TABLE SUCH AS SCIENTISTS, CLINICIANS, PATIENT AND CAREGIVER REPRESENTATIVES, THE FDA / EMA, AND PHARMACEUTICAL COMPANIES.TOPICS INCLUDE:A COMPREHENSIVE LOOK AT IL18 (MEASURING IT, ROLE IN DISEASE, IL18-DRIVEN CLINICAL TRIALS), THERAPEUTIC OPTIONS FOR REFRACTORY PATIENTS (JAK-INHIBITORS & BEYOND), UPCOMING CLINICAL TRIALS IN SJIA, STILL'S & MAS BONE MARROW TRANSPLANTATION FOR REFRACTORY PATIENTS.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since November 2018.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.