Akari Foundation
Public records show a registered, tax-exempt organization in good standing.
Points to look into
- Raising each dollar of donations cost 71 cents.
These come from the organization's own tax return. There may be a good explanation; ask the charity.
What it says it does
The Akari Foundation provides culturally and linguistically tailored education advocacy and support to Hispanic families affected by rare neuromuscular diseases delivering all programs entirely in Spanish. In 2025 The Akari Foundation: Served 1,545 families across all programs through direct services education and resource navigation Provided intensive one-on-one support to 102 families through the Family Support and Resources Program across 8 countries Engaged nearly 4,400 individuals through community support peer networks and resource-sharing initiatives
- Income
- $635,981
- Spending
- $635,873
- Spent on programs
- 91%
- Reserves
- 2.6 months of spending
- Largest source of income
- fees for its services, 97%
- Employees
- 5
- Volunteers
- 15
- Highest pay
- $96,500, ceo
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Fair: 57 out of 100. Higher than 18% of charities in its peer group (international, $250k to $1m).
Reserves
10 of 35Spendable reserves would cover 2.6 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
12 of 15Income exceeded spending by 0% of income.
Income trend
15 of 15Income rose 8% on the year before.
Spending floor
0 of 1591% of spending went to programs and raising each dollar of donations cost 71 cents.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Weak: 36 out of 100. Higher than 7% of charities in its peer group (international, $250k to $1m).
Independent board
5 of 250 of 5 voting board members are independent.
Conflict of interest policy
0 of 15Reports no written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
0 of 5Reports no independent review process for its chief executive's pay.
Independent check of accounts
6 of 15Its accounts were not audited or reviewed by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $186,892 spent. Hispanic Community Education The Akari Foundation provides Spanish-language educational webinars for Hispanic families affected by rare neuromuscular diseases. These webinars are designed to improve access to reliable medical information and culturally relevant education. Sessions are delivered virtually allowing families to engage directly with healthcare professionals and experts. Topics include medical updates clinical trials mental health nutrition and disease management. In 2025 the organization hosted 24 educational webinars reaching approximately 450 participants through live sessions with an additional 150 to 250 views through on-demand access. Through broader digital education efforts including webinars and related online content the organization reached over 8,800 individuals globally. All services are delivered in Spanish.
- $186,892 spent. Family Support and Resources The Family Support and Resources Program provides guidance and resource navigation for Hispanic families affected by rare neuromuscular diseases. Services include one-on-one support assistance navigating healthcare systems and connection to medical and community resources. In 2025 the program provided direct support to 102 families across 8 countries and distributed over 150 resource backpacks to newly diagnosed families. The organization facilitated 23 clinical trial referrals of which 7 families enrolled. Additionally more than 25 families received psychological support through licensed professionals. The program also engaged nearly 4,400 individuals through community support and resource-sharing efforts. All services are delivered in Spanish.
- $202,777 spent. Workshops and Community Outreach The Workshops and Community Outreach Program provides in-person educational opportunities for Hispanic families affected by rare neuromuscular diseases. In 2025 the organization conducted 4 in-person workshops across the United States 2 in Puerto Rico and 2 events in Mexico reaching families caregivers and community members through direct engagement. These sessions provided education on disease management clinical trials and available resources. These efforts were complemented by broader outreach activities resulting in approximately 761,748 impressions across digital platforms and an 83 percent increase in engagement compared to the prior year. All services are delivered in Spanish. All services are delivered in Spanish and focus on healthcare navigation education access to clinical trials emotional support and connection to trusted providers and resources.
Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since September 2017.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Could it be confused with another charity? Worth knowing.
A much larger organization has a similar name: Ab Foundation (Washington, DC), EIN 27-5278038. If that is the one you meant, check the EIN before giving.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.