Skip to the page content
Your donations
Passes our checks

Odylia Therapeutics Inc

EIN 82-2120760 · Atlanta, GA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood78 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

ODYLIA UTILIZES A UNIQUE, NON-PROFIT MODEL TO DEVELOP AND ADVANCE THERAPEUTICS FOR PEOPLE WITH RARE DISEASES, CHANGING THE WAY TREATMENTS ARE BROUGHT FROM THE LAB TO THE CLINIC.

Income
$1.5 million
Spending
$1.4 million
Spent on programs
85%
Reserves
7 months of spending
Largest source of income
donations and private grants, 59%
Employees
4
Volunteers
8
Highest pay
$230,426, ceo/cso

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 78 out of 100. Higher than 41% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    28 of 35

    Spendable reserves would cover 7.0 months of spending.

  • Debt

    5 of 20

    It owes 53% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 8% of income.

  • Income trend

    15 of 15

    Income rose 216% on the year before.

  • Spending floor

    15 of 15

    85% of spending went to programs and raising each dollar of donations cost 11 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 64% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    25 of 25

    8 of 8 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $1.2 million spent. ODYLIA'S TWO PRIMARY INITIATIVES ARE THE ODYLIA PIPELINE AND BRYDGE SOLUTIONS. THE PIPELINE INCLUDES THE RPGRIP1, USH1C, AND NPHP1 GENE THERAPY PROGRAMS. SIGNIFICANT ACCOMPLISHMENTS INCLUDED A SUCCESSFUL FDA PRE-IND MEETING AND PRECLINICAL DEVELOPMENT ACTIVITIES FOR THE RPGRIP1 PROGRAM, CLINICAL CANDIDATE SELECTION AND DELIVERY OPTIMIZATION FOR THE USH1C PROGRAM, AND INITIAL VECTOR DESIGN AND TESTING FOR THE NPHP1 PROGRAM. BRYDGE SOLUTIONS ACCELERATES THE DEVELOPMENT OF TREATMENTS FOR RARE DISEASES THROUGH STRATEGIC PARTNERSHIPS WITH PATIENT ADVOCACY ORGANIZATIONS, DISEASE FOUNDATIONS, AND RARE DISEASE FAMILIES. IN 2025, THE PROGRAM ESTABLISHED FIVE NEW PARTNERSHIPS WITH SAVE SIGHT NOW, MED13L FOUNDATION, UPSTREAM GENES, DLG4 SHINE SYNDROME FOUNDATION, AND PBD PROJECT.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since March 2018.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.