Petronille Healthy Society
Public records show a registered, tax-exempt organization in good standing.
Points to look into
- It owes more than it owns.
These come from the organization's own tax return. There may be a good explanation; ask the charity.
What it says it does
The Rare Disease Policy & Advocacy (RDPA) Program is a program initiative designed to strengthen and support rare disease advocacy in Maryland. RDPA empowers patients, caregivers and healthcare professional to become effective advocates by providing educational meetings, legislative resources, advocacy tools, and special events that engage patients, caregivers, and supporters. The program's goal is to unite the rare disease community of Maryland, expand patient advocacy participation, and work collectively to ensure that the voices of individuals affected by rare diseases are heard within state governments and on Capitol Hill.
- Income
- $92,500
- Spending
- $85,356
- Spent on programs
- 80%
- Reserves
- -19.8 months of spending
- Largest source of income
- donations and private grants, 100%
- Employees
- 0
- Volunteers
- 25
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Weak: 30 out of 100. Higher than 9% of charities in its peer group (human services, under $250k).
Reserves
0 of 35Spendable reserves are negative: it owes or has committed more than it holds.
Debt
0 of 20It owes 185% of what it owns.
Living within its means
15 of 15Income exceeded spending by 8% of income.
Income trend
0 of 15Income fell 66% on the year before.
Spending floor
15 of 1580% of spending went to programs and raising each dollar of donations cost 0 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 91% of charities in its peer group (human services, under $250k).
Independent board
25 of 256 of 6 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (4)
- $29,000 spent. The Rare Disease Policy & Advocacy (RDPA) Program is a program initiative designed to strengthen and support rare disease advocacy in Maryland. RDPA empowers patients, caregivers and healthcare professional to become effective advocates by providing educational meetings, legislative resources, advocacy tools, and special events that engage patients, caregivers, and supporters. The program's goal is to unite the rare disease community of Maryland, expand patient advocacy participation, and work collectively to ensure that the voices of individuals affected by rare diseases are heard within state governments and on Capitol Hill.
- $22,550 spent. The Tour of Maryland is a statewide initiative designed to raise awareness and expand support for individuals and families affected by rare diseases. Through community engagement, education, and direct outreach, the program brings vital resources to Maryland residents while elevating the voices of those living with rare conditions.
- $10,500 spent. The Newborn Screening Program in Congo-Brazzaville is a national initiative dedicated to identifying rare and serious health conditions early in life. By partnering with hospitals, local health authorities, and global experts, the program works to ensure that every newborn has access to timely screening, diagnosis, and follow-up care. This effort strengthens the country's pediatric health system while giving families the chance for early intervention and improved long-term outcomes.
- $6,500 spent. SCALI, the Sickle Cell Education Program, is a community-centered initiative focused on increasing understanding, promoting early recognition, and supporting effective management of sickle cell disease. Through workshops, school outreach, caregiver training, and partnerships with local healthcare providers, the program equips families with practical knowledge and empowers individuals to advocate for their own health. By raising awareness and dispelling misconceptions, SCALI helps improve quality of life and fosters stronger support systems for those affected.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since May 2018.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.