Jansens Foundation
Public records show a registered, tax-exempt organization in good standing.
What it says it does
The miission of the Jansens Foundation is to bring awareness and support research in hope fo bringing about a cure to this debilitating skeletal condition. Jansen's Disease is an ultra-rare condition, affecting fewer than 30 patients worldwide, which often results in limited diagnosis and treatment options.
- Income
- $97,679
- Spending
- $54,263
- Reserves
- 14.1 months of spending
- Largest source of income
- donations and private grants, 95%
- Highest pay
- $17,500, president & project lead
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
We do not score finances when yearly spending is very small or the return has too little detail. The ratios stop meaning much at that size.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
This organization files the short tax form, which does not ask about boards, policies or audits. That is normal for a small charity and is not a mark against it.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (4)
- $41,108 spent. Patient awareness: Develop and maintain website with information about the condition for people across the world to access. Patients and medical personnel from across the world (about 40 or more persons) can access contact information to seek out additional information regarding medical diagnosis, testing, and treatment. Maintain the foundations operation to meet the above objectives as well as objectives described below through independent contractors serving as Project Lead (2) and Administrative Official
- $5,011 spent. Empower the Jansens community and stakeholders by enhancing their capacity to define research priorities and engage in the CER process through training. By creating a structured framework for collaboration, we aim to establish best practices for involving ultra-rare patients, caregivers, and relevant community members (19 individuals) ultimately improving long-term outcomes in research and healthcare. Stipends awarded for completion of CER trainings.
- $7,858 spent. Establish collaborative partnerships for research prioritization through community engagement by forming an advisory board of a diverse group of community stakeholders to identify and prioritize key research questions.
- $286 spent. Establish collaborative partnerships for research prioritization through community engagement by sending a representative to national medical workshops engaged in bone research.
Source: Form 990EZ for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since March 2017.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.