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Runx1 Foundation

EIN 81-3557785 · Santa Barbara, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthWeak37 out of 100GovernanceWeak48 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

See Schedule O.

Income
$2.1 million
Spending
$2.1 million
Spent on programs
88%
Reserves
0.7 months of spending
Largest source of income
donations and private grants, 100%
Employees
4
Volunteers
44
Highest pay
$502,740, president executive director

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Weak: 37 out of 100. Higher than 4% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    4 of 35

    Spendable reserves would cover 0.7 months of spending.

  • Debt

    5 of 20

    It owes 57% of what it owns.

  • Living within its means

    8 of 15

    Spending exceeded income by 2% of income.

  • Income trend

    5 of 15

    Income fell 12% on the year before.

  • Spending floor

    15 of 15

    88% of spending went to programs and raising each dollar of donations cost 2 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Weak: 48 out of 100. Higher than 8% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    18 of 25

    2 of 3 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. $1.9 million spent. In 2025, the RUNX1 Research Program (RRP) continued its mission to fund research to prevent blood cancer in individuals with RUNX1 Familial Platelet Disorder (RUNX1-FPD). RRP awarded grants to investigators across leading academic medical centers, supporting research focused on disease mechanisms, clonal evolution, and blood cancer interception. Key funded programs included independent investigator grants, co-funded partnerships with Alexs Lemonade Stand Foundation, the American Cancer Society (new LEAP grant program), and support for several clinical trials (e.g. pilot study evaluating sirolimus as a preemptive intervention). RRP also continued operating its longitudinal RUNX1 Patient Data Hub, launching a centralized biospecimen bank (RUNX1 Tissue Bank), supporting patient recruitment for clinical research, and engaging the RUNX1-FPD patient and scientific community through its annual scientific conference, patient meeting, educational webinars, peer support groups, and patient-facing resources.
  2. Part I - Summary and Part III - Organizations Mission Statement To provide grants for relevant research projects to find a cure for RUNX1-FPD, to raise public awareness, and to strengthen the community by providing a forum to help connect, inform and educate RUNX1-FPD patients and their families.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since May 2017.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.