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Glioblastoma Foundation Inc

EIN 81-2849764 · Durham, NC

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE GLIOBLASTOMA FOUNDATION IS DEDICATED TO FINDING A CURE FOR GLIOBLASTOMA BY FUNDING RESEARCH AND DRUG DEVELOPMENT, SUPPORTING PATIENTS AND FAMILIES, AND RAISING NATIONAL AWARENESS OF THIS DEVASTATING BRAIN CANCER. THROUGH THESE INTEGRATED PROGRAMS, THE FOUNDATION ACCELERATES SCIENTIFIC DISCOVERY, EMPOWERS PATIENTS WITH INFORMATION AND RESOURCES, AND EDUCATES THE PUBLIC ABOUT THE URGENT NEED FOR BETTER TREATMENTS AND IMPROVED OUTCOMES.

Income
$2.1 million
Spending
$1.8 million
Spent on programs
86%
Reserves
19.8 months of spending
Largest source of income
donations and private grants, 96%
Employees
21
Volunteers
150
Highest pay
$343,048, ceo

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 81% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 19.8 months of spending.

  • Debt

    20 of 20

    It owes 14% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 11% of income.

  • Income trend

    15 of 15

    Income rose 21% on the year before.

  • Spending floor

    15 of 15

    86% of spending went to programs and raising each dollar of donations cost 1 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 64% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    25 of 25

    4 of 5 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $527,251 spent. RESEARCH AND DRUG DEVELOPMENT:IN 2024, THE GLIOBLASTOMA FOUNDATION ADVANCED ITS RESEARCH MISSION BY ACQUIRING LISAVANBULIN, A PROMISING TARGETED THERAPY FROM BASILEA PHARMACEUTICA, FOR FURTHER CLINICAL DEVELOPMENT IN GLIOBLASTOMA. THIS ACQUISITION MARKED A CRITICAL STEP TOWARD BRINGING PATIENTS NEW, MORE EFFECTIVE TREATMENTS. THE FOUNDATION ALSO SUPPORTED INVESTIGATOR-INITIATED RESEARCH ON MOLECULAR CHARACTERIZATION AND FUNCTIONAL PRECISION ONCOLOGY. ADDITIONALLY, THE FOUNDATION ESTABLISHED GLIOLAB, A CLIA-REGISTERED GENOMIC LABORATORY THAT WILL PROVIDE STATE-OF-THE-ART TESTING TO ACCELERATE DISCOVERY OF TARGETED THERAPIES BASED ON EACH TUMOR'S GENOMIC AND EPIGENOMIC PROFILE.
  2. $527,251 spent. PATIENT SUPPORT AND EDUCATION:THROUGHOUT 2024, THE FOUNDATION PROVIDED SUPPORT SERVICES FOR GLIOBLASTOMA PATIENTS AND CAREGIVERS NATIONWIDE, INCLUDING PERSONALIZED CLINICAL-TRIAL MATCHING, PROFESSIONALLY LED VIRTUAL SUPPORT GROUPS, AND EDUCATIONAL RESOURCES ON TREATMENT OPTIONS AND EMERGING RESEARCH. THESE PROGRAMS EMPOWERED PATIENTS TO MAKE INFORMED CARE DECISIONS AND FOSTERED A SENSE OF COMMUNITY AMONG FAMILIES AFFECTED BY THIS RARE DISEASE. HUNDREDS OF PATIENTS AND CAREGIVERS BENEFITED FROM THESE FREE SERVICES DURING THE YEAR.
  3. $527,250 spent. PUBLIC AWARENESS AND ADVOCACY:THE FOUNDATION LED NATIONWIDE EFFORTS TO RAISE AWARENESS AND ADVOCACY FOR THOSE AFFECTED BY GLIOBLASTOMA. IN 2024, IT ORGANIZED GLIOBLASTOMA AWARENESS DAY AND CONTINUED THE VOICES OF GLIOBLASTOMA PODCAST WHILE PLANNING TO EXPAND THE SERIES IN FUTURE YEARS TO FEATURE ADDITIONAL PATIENT, CAREGIVER, AND SCIENTIST PERSPECTIVES. THE FOUNDATION ALSO PARTNERED WITH EVENTS SUCH AS THE LOS ANGELES MARATHON TO INCREASE PUBLIC UNDERSTANDING AND SUPPORT FOR RESEARCH. THESE INITIATIVES EDUCATED THOUSANDS AND INSPIRED HOPE WITHIN THE GLIOBLASTOMA COMMUNITY.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since June 2016.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.