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Cardiac Neurodevelopmental Outcome Collaborative

EIN 81-1219865 · Richmond, VA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong95 out of 100GovernanceFair59 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE CNOC IS A NOT-FOR-PROFIT ORGANIZATION ESTABLISHED TO DETERMINE AND IMPLEMENT BEST PRACTICES OF NEURODEVELOPMENTAL AND PSYCHOSOCIAL SERVICES FOR INDIVIDUALS WITH PEDIATRIC AND CONGENITAL HEART DISEASE AND THEIR FAMILIES THROUGH CLINICAL, QUALITY IMPROVEMENT, AND RESEARCH INITIATIVES.

Income
$319,183
Spending
$202,446
Spent on programs
83%
Reserves
43.6 months of spending
Largest source of income
fees for its services, 95%
Employees
0
Volunteers
127

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 95 out of 100. Higher than 78% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 43.6 months of spending.

  • Debt

    20 of 20

    It owes 10% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 37% of income.

  • Income trend

    10 of 15

    Income fell 1% on the year before.

  • Spending floor

    15 of 15

    83% of spending went to programs.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Fair: 59 out of 100. Higher than 26% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    27 of 27 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $167,970 spent. PROVIDE TRAINING, EDUCATION, AND RELEVANT INFORMATION TO MEMBERS THROUGH PUBLICATIONS, THE ANNUAL SYMPOSIUM, AND THE WEBSITE AND TO FOSTER COMMUNITY OUTREACH THROUGH THESE SAME FORUMS.
  2. CNOC'S NEURODEVELOPMENTAL CORE LAB (NDC) AND DATA ANALYSIS CORE (DAC) ARE RESEARCHING THE DEVELOPMENT OF INFANTS, TODDLERS AND PRESCHOOLERS WHO HAVE UNDERGONE NEONATAL CARDIAC SURGERY USING A LIMITED LIST OF DEMOGRAPHIC, NEURODEVELOPMENTAL, MEDICAL HISTORY AND SURGICAL VARIABLES. AS INITIAL AIMS ARE ACHIEVED, NEURODEVELOPMENTAL TESTING OUTCOMES, QUALITY OF LIFE OUTCOMES AND MEDICAL HISTORY DATA WILL BE ADDED TO THESE EFFORTS.
  3. THE PURPOSE OF THE CNOC INVESTIGATOR AWARD IS TO PROVIDE FUNDING SUPPORT FOR CNOC MEMBERS TO LEVERAGE THE CNOC INFRASTRUCTURE TO CONDUCT RESEARCH AND/OR QUALITY IMPROVEMENT SCIENCE AIMED AT IMPROVING NEURODEVELOPMENTAL, PSYCHOSOCIAL OUTCOMES, AND/OR QUALITY OF LIFE FOR CHILDREN AND FAMILIES AFFECTED BY CONGENITAL HEART DISEASE (CHD).

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since September 2016.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.