Cdg Care
Public records show a registered, tax-exempt organization in good standing.
What it says it does
To promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for and fund scientific research to advance treatments for all CDGs.
- Income
- $531,003
- Spending
- $344,137
- Spent on programs
- 89%
- Reserves
- 6.4 months of spending
- Largest source of income
- donations and private grants, 95%
- Employees
- 1
- Volunteers
- 10
- Highest pay
- $13,462, executive director
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 93 out of 100. Higher than 68% of charities in its peer group (medical research, $250k to $1m).
Reserves
28 of 35Spendable reserves would cover 6.4 months of spending.
Debt
20 of 20It owes 1% of what it owns.
Living within its means
15 of 15Income exceeded spending by 35% of income.
Income trend
15 of 15Income rose 8% on the year before.
Spending floor
15 of 1589% of spending went to programs and raising each dollar of donations cost 3 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Fair: 67 out of 100. Higher than 38% of charities in its peer group (medical research, $250k to $1m).
Independent board
25 of 259 of 10 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
0 of 8Reports no written whistleblower policy.
Record keeping policy
0 of 7Reports no written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
0 of 10Did not give the board a copy of this return before filing it.
Pay set independently
0 of 5Reports no independent review process for its chief executive's pay.
Independent check of accounts
12 of 15Its accounts were reviewed or compiled by an independent accountant, but not audited.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $167,374 spent. Research and Development: In 2024, CDG CARE continued and expanded its 2022 patient-driven research initiative which involves contracting for direct research of drug repurposing on several CDG types. These contracts were made with Washington University in St. Louis to advance ALG8-CDG treatment modalities via the research model using zebrafish and Nationwide Childrens Hospital Research Center to advance in vivo models for gene therapy model development in PIGA-CDG. In addition, CDG CARE supported individual research projects contracted through Perlara PBC and are ongoing to advance drug repurposing research for GMPPA-CDG, ALG8-CDG, ALG13-CDG, ALG1-CDG, PMM2-CDG, PIGA-CDG, PIGN-CDG, PIGW-CDG and PIGS-CDG.
- $99,065 spent. CDG Biennial Conference: In 2024, CDG CARE hosted the 5th biennial professional and educational conference on CDG. While many preliminary expenses were incurred in 2023, the majority of expenses are paid out during the event, which was in March 2024. The conference hosted 330 professionals and family members who participated in a 3-day educational conference to advance CDG education, information and opportunities to develop treatments in the future.
- $38,146 spent. Patient/Family Travel & Equipment Grant Program: In 2024, CDG CARE continued to support a program that provides financial support to patients and families to obtain much needed therapeutic/medical equipmen4 and provide funding support for families to travel to specialty medical centers to receive consultation and medical guidance from experts in CDG. Through the therapeutic/medical equipment grant program, 14 patients received equipment grants and 16 families received travel support through the family grant program.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since July 2016.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.