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Down Syndrome Indiana Inc

EIN 80-0732286 · Indianapolis, IN

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong90 out of 100GovernanceStrong92 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

WE ENHANCE THE LIVES OF INDIVIDUALS WITH DOWN SYNDROME AND THEIR FAMILIES. WE ADVISE, EDUCATE, ENCOURAGE, CONNECT, INCLUDE, AND ADVOCATE.

Income
$404,878
Spending
$363,437
Spent on programs
78%
Reserves
20.9 months of spending
Largest source of income
donations and private grants, 76%
Employees
9
Volunteers
205
Highest pay
$59,541, executive director

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 90 out of 100. Higher than 76% of charities in its peer group (human services, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 20.9 months of spending.

  • Debt

    20 of 20

    It owes 4% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 10% of income.

  • Income trend

    5 of 15

    Income fell 20% on the year before.

  • Spending floor

    15 of 15

    78% of spending went to programs and raising each dollar of donations cost 18 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 92 out of 100. Higher than 86% of charities in its peer group (human services, $250k to $1m).

  • Independent board

    25 of 25

    15 of 15 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (2)
  1. $39,675 spent. BUDDY WALK - THE BUDDY WALK PROGRAM WELCOMES PARTICIPANTS OF ALL AGES AND ABILITIES. THE GOAL OF THE PROGRAM IS TO PROMOTE ACCEPTANCE AND INCLUSION OF PEOPLE WITH DOWN SYNDROME. THIS PROGRAM IS HELD ANNUALLY IN THREE CITIES IN INDIANA INCLUDING INDIANAPOLIS, LAFAYETTE, AND TERRE HAUTE. THE WALKS ARE IN-PERSON. THEY HAD A COMBINED 5,000 PARTICIPANTS.
  2. $244,299 spent. NEW PARENT PACKETS - DOWN SYNDROME INDIANA PROVIDES COMPREHENSIVE PARENT PACKETS THAT CONTAIN A WEALTH OF INFORMATION TO PARENTS THAT HAVE A NEWBORN WITH DOWN SYNDROME OR HAVE JUST LEARNED OF THE DIAGNOSIS BEFORE THEIR CHILD IS BORN. THESE PACKETS ARE DISTRIBUTED TO THE FAMILIES UPON REQUEST OR THROUGH LOCAL HOSPITALS. A SPANISH VERSION OF THE NEW PARENT PACKET IS ALSO AVAILABLE! THERE WERE 126 NEW PARENT PACKETS DISTRIBUTED IN 2025.COMMUNITY SUPPORT GROUPS - DOWN SYNDROME INDIANA RECOGNIZES THAT THERE ARE VARIED INTERESTS AMONG THE DOWN SYNDROME COMMUNITY. EXAMPLES INCLUDE GEOGRAPHICAL CONSIDERATIONS, CULTURAL CONSIDERATIONS, EDUCATIONAL CONSIDERATIONS, AND AGE CONSIDERATIONS. DOWN SYNDROME INDIANA RECOGNIZES THE BENEFITS OF A COMMUNITY GROUP AMONG THESE FAMILIES. COMMUNITY GROUPS INCLUDE: DSI CASS AREA DOWN SYNDROME ("CADS"), DSI CUENTA CONMIGO, DSI DADS APPRECIATING DOWN SYNDROME ("DADS"),DSI LAFAYETTE, DSI TERRE HAUTE, DSI EAST CENTRAL PLAYGROUP, DSI MOM'S NIGHT OUT, DSI SELF-ADVOCATES, DSI TEENS, DSI DELAWARE COUNTY/MUNCIE AREA, DSI BLACK FAMILY VILLAGE, DSI BABIES AND TODDLERS, DSI SOUTHSIDE, AND DSI WESTSIDE.FIRST CALL - FIRST CALL VOLUNTEERS MAKE A DIFFERENCE IN LIVES BY SERVING AS THE FIRST POINT OF CONTACT WITH A NEW FAMILY. A FIRST CALL PARENT IS TRAINED IN EMPATHETIC LISTENING SKILLS AND IS A NEW PARENT'S FIRST LOOK AT WHAT LIFE WITH A CHILD WITH DOWN SYNDROME IS LIKE.MEDICAL OUTREACH - THE GOAL IS TO BUILD RELATIONSHIPS OF TRUST AND RESPECT BETWEEN MEDICAL PROVIDERS AND THE DOWN SYNDROME COMMUNITY. PROVIDE ACCURATE AND UP-TO-DATE INFORMATION ABOUT DOWN SYNDROME TO MEDICAL PROVIDERS.DSI PATHWAYS TO LEARNING - THE DSI PATHWAYS TO LEARNING PROGRAM PROVIDES DIRECT SERVICES THROUGH THE COMMUNITY AND WAS DEVELOPED TO SUPPLEMENT TRADITIONAL EDUCATION IN READING AND MATH THROUGH DIRECT INSTRUCTION AND MATERIALS FOR STUDENTS WITH DOWN SYNDROME OR OTHER DEVELOPMENTAL DISABILITIES. THIS PROGRAM INCLUDES PROGRAMMING, EDUCATIONAL ADVOCACY, PARENT WORKSHOPS, AND FAMILY SESSIONS. AWARENESS PRESENTATIONS - DOWN SYNDROME INDIANA REPRESENTATIVES SPOKE TO 2,100 PEOPLE IN 2025 THROUGH DOWN SYNDROME AWARENESS PRESENTATIONS. WE SPEAK TO K-12 STUDENTS, COLLEGE STUDENTS, MEDICAL PROFESSIONALS, SERVICE PROVIDERS, AND CORPORATE PARTNERS AND ORGANIZATIONS.DURING 2025, DOWN SYNDROME INDIANA WAS ABLE TO REACH 3,107 PARENTS AND 1,600 INDIVIDUALS WITH DOWN SYNDROME THROUGH THEIR PROGRAMMING.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since June 2011.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.