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Trisomy 18 Support Inc

EIN 77-0600393 · Flushing, MI

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong93 out of 100GovernanceFair51 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TRISOMY 18 FOUNDATION IS DEDICATED TO ACCELERATING RESEARCH INTO THE CAUSES AND TREATMENTS OF TRISOMY 18, AND SUPPORTING ALL FAMILIES IMPACTED BY A TRISOMY 18 DIAGNOSIS.

Income
$90,139
Spending
$85,443
Spent on programs
70%
Reserves
8.5 months of spending
Largest source of income
donations and private grants, 100%
Employees
1
Volunteers
60
Highest pay
$50,160, executive director

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 93 out of 100. Higher than 77% of charities in its peer group (diseases, under $250k).

  • Reserves

    28 of 35

    Spendable reserves would cover 8.5 months of spending.

  • Debt

    20 of 20

    It owes 1% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 5% of income.

  • Income trend

    15 of 15

    Income rose 1% on the year before.

  • Spending floor

    15 of 15

    70% of spending went to programs and raising each dollar of donations cost 9 cents.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Fair: 51 out of 100. Higher than 34% of charities in its peer group (diseases, under $250k).

  • Independent board

    18 of 25

    4 of 4 voting board members are independent.

  • Conflict of interest policy

    0 of 15

    Reports no written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    0 of 5

    Reports no independent review process for its chief executive's pay.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $60,111 spent. EDUCATION AND SUPPORT PROGRAMS: TRISOMY 18'S NATIONALLY-RECOGNIZED PROGRAM SUPPORTS AND EDUCATES BOTH PATIENT FAMILIES AND MEDICAL PROVIDERS WHO TREAT FAMILIES AND CHILDREN WITH TRISOMY 18 THOUGH DIRECT SERVICE CALLS TO SUPPORT PROGRAM STAFF, WORKSHOPS, PUBLIC PRESENTATIONS, EDUCATIONAL MATERIALS AND TECHNOLOGY ENABLED PEER SUPPORT PROGRAMS.THE RESEARCH ADVOCACY AND PUBLIC ENGAGEMENT PROGRAM: THIS PROGRAM SUPPORTS CONSTITUENT ENGAGEMENT IN THE RESEARCH AND HEALTH POLICY-MAKING PROCESS AT FEDERAL AND STATE LEVEL ON LEGISLATIVE AND REGULATORY INITIATIVES THAT IMPACT THE LIVES OF FAMILIES AND THEIR CHILDREN WITH TRISOMY 18.THIS PROGRAM INVOLVES AND ENGAGES THE PUBLIC IN NATIONAL AWARENESS CAMPAIGNS TO SUPPORT OUR CAUSE TO MAKE TRISOMY 18 A PREVENTABLE AND TREATABLE CONDITION SO THAT LESS FAMILIES LOSE THEIR PRECIOUS NEWBORNS AND INFANTS TO THIS CONDITION. VOLUNTEERS ARE SUPPORTED IN HOSTING SPECIAL AWARENESS AND FUNDRAISING EVENTS BENEFITTING THE FOUNDATION IN LOCATIONS ACROSS THE UNITED STATES. THESE EVENTS HELP DEVELOP AND EXPAND PHILANTHROPIC PARTNERSHIPS TO ACCELERATE PROGRESS TOWARD TREATMENTS AND IMPROVED HEALTH OUTCOMES FOR CHILDREN IMPACTED BY TRISOMY 18 DIAGNOSIS.

Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending June 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since January 2004.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.