Lone Star Chapter of the National Hemophilia Foundation
Public records show a registered, tax-exempt organization in good standing.
What it says it does
SEE SCHEDULE O
- Income
- $819,455
- Spending
- $687,199
- Spent on programs
- 90%
- Reserves
- 27.7 months of spending
- Largest source of income
- donations and private grants, 100%
- Employees
- 3
- Volunteers
- 25
- Highest pay
- $67,477, executive di
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 95 out of 100. Higher than 86% of charities in its peer group (human services, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 27.7 months of spending.
Debt
20 of 20It owes 0% of what it owns.
Living within its means
15 of 15Income exceeded spending by 16% of income.
Income trend
10 of 15Income fell 7% on the year before.
Spending floor
15 of 1590% of spending went to programs and raising each dollar of donations cost 0 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 91 out of 100. Higher than 77% of charities in its peer group (human services, $250k to $1m).
Independent board
25 of 2510 of 10 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
6 of 15Its accounts were not audited or reviewed by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (3)
- $598,011 spent. EDUCATION AND TRAINING: LSBDF AIDED AND PROMOTED THE EDUCATION OF INDIVIDUALS WITH INHERITED BLEEDING DISORDERS, THEIR FAMILIES, THE GENERAL PUBLIC, AND THE MEDICAL/SCIENTIFIC COMMUNITY REGARDING ALL ASPECTS OF INHERITED BLEEDING DISORDERS, RELATED COMPLICATIONS, AND TREATMENTS. (CONTINUED SCHEDULE O)
- $17,532 spent. COMMUNITY NEEDS: LSBDF PROMOTED ACCESS TO HIGH QUALITY, SAFE THERAPEUTIC MATERIALS CRUCIAL IN THE TREATMENT OF INHERITED BLEEDING DISORDERS, AND ENCOURAGED THE COMPREHENSIVE CARE INCLUDING MENTAL WELL-BEING OF PERSONS WITH A BLEEDING DISORDER. THROUGH THE HELPING HANDS PROGRAM, LSBDF ASSISTED OVER 50 FAMILIES IN CRISIS WHO WERE UNABLE TO PAY OR RECEIVE TREATMENT FOR THEIR MEDICAL CONDITION, OR HAD AN UNUSUAL STRAIN PLACED ON HOUSEHOLD FINANCES BECAUSE OF THEIR BLEEDING DISORER.
- MISSION AND VISION OF THE LONE STAR BLEEDING DISORDERS FOUNDATION (LSBDF): DEDICATED TO IMPROVING THE QUALITY OF LIFE FOR SOUTH TEXANS AFFECTED BY RARE BLEEDING DISORDERS THROUGH EDUCATION, ADVOCACY EFFORTS TO ENSURE ACCESS TO CARE, SUPPORTING RESEARCH FOR BETTER TREATMENTS AND A CURE, AND RAISING PUBLIC AWARENESS. BASED IN HOUSTON AND SERVING THE COMMUNITIES OF MCALLEN, CORPUS CHRISTI, SAN ANTONIO, AUSTIN, AND EL PASO, LSBDF'S VISION IS TO ENSURE THAT THE NEEDS OF EVERY SOUTH TEXAN LIVING WITH A BLEEDING DISORDER ARE MET FOR SUCCESSFUL MANAGEMENT OF THE CONDITION. THE PROGRAM SERVICE PLATFORM PROVIDES EDUCATION, CONNECTIONS THROUGH PEER BASED SUPPORT GROUPS, HEALTHCARE ADVOCACY, AND FINANCIAL ASSISTANCE FOR EMERGENCIES AND EDUCATIONAL SCHOLARSHIPS. FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS: THE TEXAS BLEEDING DISORDERS CONFERENCE (TBDC) WAS A JOINT EFFORT BETWEEN LSBDF AND TEXAS CENTRAL BLEEDING DISORDERS BRINGING NEARLY 1000 PEOPLE FROM ALL OVER THE STATE OF TEXAS TOGETHER FOR A WEEKEND OF EDUCATION, NETWORKING, AND FUN. ACTIVITIES WERE PLANNED FOR THE WHOLE FAMILY, CHILDCARE WAS PROVIDED, AND SPANISH ACCOMODATIONS WERE MADE FOR BILINGUAL PARTICIPANTS. SESSIONS WERE OFFERED TO MAKE EVERY STEP OF LIFE WITH A BLEEDING DISORDER BETTER. LSBDF PROVIDED CAMP SPONSORSHIPS FOR CAMPERS AT CAMP AILIHPOMEH, OFFERING A UNIQUE EXPERIENCE WHERE BOYS THROUGHOUT TEXAS MET AND BUILT STRONG RELATIONSHIPS WITH THEIR PEERS AFFECTED BY BLEEDING DISORDERS. CAMP AILIHPOMEH (HEMOPHILIA SPELLED BACKWARDS) BEGAN IN THE SUMMER OF 1979 AS THE FIRST OF ITS KIND FOR CHILDREN TRADITIONALLY EXCLUDED FROM SUMMER CAMP PROGRAMS. EACH SUMMER, THE CAMP SERVES HUNDREDS OF KIDS. IN THE SPRING AND SUMMER MONTHS, LSBDF HOSTED REGIONAL FAMILY EDUCATION DAYS WHERE FAMILIES AFFECTED BY BLEEDING DISORDERS WERE INTRODUCED TO ONE ANOTHER FOR NETWORKING AND EDUCATION. INDUSTRY PARTNERS ALSO ATTENDED THESE EVENTS OFFERING THE LATEST INFORMATION ABOUT HEALTH AND SERVICES TO THE PARTICIPANTS. UNITE WALKS PROVIDED EDUCATION AND AWARENESS OPPORTUNITIES. IN 2008, LSBDF WAS PROUDLY ONE OF THE FIRST 5 INAUGURAL SITES OF THE NATIONAL BLEEDING DISORDER FOUNDATION'S HEMOPHILIA WALK PROGRAM. STARTING LOCALLY IN HOUSTON FOR THE INAUGURAL WALK, LSBDF'S UNITE WALK EVENTS HAVE EXPANDED TO MULTIPLE CITIES, HOSTING OVER 500 WALKERS EACH YEAR. LSBDF SUPPORTED YOUNG ADULTS DIRECTLY AFFECTED WITH AN INHERITED BLEEDING DISORDER, OR AN IMMEDIATE FAMILY MEMBER OF SOMEONE WITH A BLEEDING DISORDER, PURSUING POST-HIGH SCHOOL EDUCATION WITH ACADEMIC SCHOLARSHIPS. IN 2024, 5 SCHOLARSHIPS WERE AWARDED TO STUDENTS ATTENDING OKLAHOMA STATE UNIVERSITY, SOUTHWESTERN UNIVERSITY, TEXAS A&M UNIVERSITY, UNIVERSITY OF HOUSTON, AND UNIVERSITY OF TEXAS. THROUGH OUTREACH EFFORTS IN 2024, LSBDF WELCOMED NEWLY DIAGNOSED FAMILIES WITH WELCOME BAGS AND HOSTED ENGLISH AND SPANISH EDUCATIONAL DINNERS THAT PROVIDED BACK TO SCHOOL TIPS FOR PARENTS AND STUDENTS, BEST PRACTICES FOR SCHOOL NURSES AND HEALTHCARE PROVIDERS FOCUSED ON PATIENT DIAGNOSIS AND TREATMENT, AND OTHER EDUCATIONAL MATERIALS. TO REACH SPECIFIC SEGMENTS OF THE BLEEDING DISORDERS COMMUNITY, INCLUDING MEN, WOMEN, TEENS, AND FAMILIES, RETREATS AND WINTER HOLIDAY EVENTS WERE HOSTED IN HOUSTON, THE VALLEY, AND THE HILL COUNTRY. LSBDF ADVOCATED AT THE FEDERAL AND STATE LEVEL ON ISSUES IMPORTANT TO TEXAS' BLEEDING DISORDERS COMMUNITY, INCLUDING PARTICIPATION IN THE NATIONAL BLEEDING DISORDER FOUNDATION'S ANNUAL WASHINGTON DAYS BRINGING PATIENTS AND THEIR FAMILIES TO WASHINGTON DC TO MEET WITH LAWMAKERS WHO SHAPE NATIONAL HEALTHCARE POLICY. LSBDF PUSHED FOR AWARENESS OF RARE DISEASES IN CONNECTION WITH THE NATIONAL RED TIE CAMPAIGN.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since November 2001.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.