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Primary Billary Cholangitis Organization

EIN 76-0622718 · Rochester, NY

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood70 out of 100GovernanceGood81 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

The PBCers Organization is the online and in-person support group for people with Primary Biliary Cholangitis (PBC), care partners. Were your go-to resource for peer support and the latest information on PBC

Income
$41,266
Spending
$82,304
Spent on programs
88%
Reserves
32.4 months of spending
Largest source of income
fees for its services, 84%
Employees
0
Volunteers
10

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 70 out of 100. Higher than 38% of charities in its peer group (diseases, under $250k).

  • Reserves

    35 of 35

    Spendable reserves would cover 32.4 months of spending.

  • Debt

    20 of 20

    It owes 0% of what it owns.

  • Living within its means

    0 of 15

    Spending exceeded income by 99% of income.

  • Income trend

    0 of 15

    Income fell 85% on the year before.

  • Spending floor

    15 of 15

    88% of spending went to programs and raising each dollar of donations cost 0 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Good: 81 out of 100. Higher than 69% of charities in its peer group (diseases, under $250k).

  • Independent board

    25 of 25

    5 of 5 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    0 of 8

    Reports no written whistleblower policy.

  • Record keeping policy

    0 of 7

    Reports no written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (3)
  1. $3,036 spent. THE PBCERS ORGANIZATION OFFERS PBC PATIENTS, FAMILY MEMBERS & FRIENDS ONLINE SUPPORT AND EDUCATION DESIGNED TO HELP THEM COPE WITH CHRONIC ILLNESS DAY-TO-DAY LIVING. THIS INCLUDES A WEBSITE, PUBLIC, & PRIVATE SOCIAL MENDIA SITES (FACEBOOK, X, LINKEDIN) & EMAIL DIGEST.
  2. $30,384 spent. BRING MEMBERS TOGETHER WORLDWIDE TO OFFER ONE ANOTHER HELP AND SUPPORT. PARTICIPATE IN RESEARCH PROJECTS IN CONJUNCTION WITH UNIVERSITIES. PROVIDE THE LARGEST ONLINE PBC SUPPORT NETWORK AVAILABLE AND PROVIDE FUNDING TO THE UNIVERSITY OF CA RESEARCH PROGRAM.
  3. $38,908 spent. ORGANIZE & HOST CONFERENCES AND REGIONAL MEETINGS TO SHARE INFORMATION ABOUT RESEARCH, PROVIDE CONTINUING EDUCATION, HELP PBCERS MEET FACE-TO-FACE TO SHARE EXPERIENCES, AND PROVIDE SUPPORT AND NETWORKING FOR PATIENTS, FAMILY & MEDICAL PROFESSIONALS.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since February 2000.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.