The Naspghan Foundation
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE NASPGHAN FOUNDATION FUNDS AND SUPPORTS THE RESEARCH AND EDUCATION MISSION OF NASPGHAN IN ORDER TO ENHANCE THE HEALTH AND WELL-BEING OF CHILDREN WITH GASTROINTESTINAL, LIVER, PANCREAS AND NUTRITIONAL DISORDERS.
- Income
- $2.3 million
- Spending
- $1.9 million
- Spent on programs
- 93%
- Reserves
- 21.9 months of spending
- Largest source of income
- donations and private grants, 100%
- Employees
- 0
- Volunteers
- 60
- Highest pay
- $371,166, executive director
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 96 out of 100. Higher than 78% of charities in its peer group (medical research, $1m to $10m).
Reserves
35 of 35Spendable reserves would cover 21.9 months of spending.
Debt
16 of 20It owes 21% of what it owns.
Living within its means
15 of 15Income exceeded spending by 18% of income.
Income trend
15 of 15Income rose 24% on the year before.
Spending floor
15 of 1593% of spending went to programs and raising each dollar of donations cost 2 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 95 out of 100. Higher than 56% of charities in its peer group (medical research, $1m to $10m).
Independent board
25 of 2517 of 17 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
0 of 5Reports no independent review process for its chief executive's pay.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (4)
- $1.2 million spent. GRANTS AND AWARDS:(1) NASPGHAN/NASPGHAN FOUNDATION GEORGE FERRY YOUNG INVESTIGATOR DEVELOPMENT AWARD: - THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECT IN THE CLINICAL OR BASIC SCIENCES TO STUDY THE DISEASES OF THE GASTROINTESTINAL TRACT, LIVER OR PANCREASE AND NUTRITIONAL DISORDERS IN CHILDREN.(2) NASPGHAN FOUNDATION/NESTLE NUTRITION RESEARCH YOUNG INVESTIGATOR DEVELOPMENT AWARD:- THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. THIS GRANT, GENEROUSLY SUPPORTED BY MEAD JOHNSON, IS AWARDED TO SUPPORT MERITORIOUS BASIC OR CLINICAL RESEARCH PROJECT RELATING TO NUTRITION IN INFANCY, CHILDHOOD OR ADOLESCENCE.(3) NASPGHAN FOUNDATION/TAKEDA PHARMACEUTICALS NORTH AMERICA INC RESEARCH INNOVATION AWARD:- THIS GRANT IS OFFERED IN ODD NUMBERED YEARS. THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR INNOVATIVE, HIGH-IMPACT RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. THE INTENT OF THIS RESEARCH AWARD IS TO STIMULATE SCIENTIFIC INQUIRY IN AN AREA THAT IS EXCEPTIONALLY INNOVATIVE AND HAS THE POTENTIAL TO IMPACT THE FIELD IN A HIGHLY NOVEL MANNER. APPLICANTS AT ANY CAREER LEVEL MAY APPLY.(4) NASPGHAN FOUNDATION/ASTRAZENECA RESEARCH IN PEPTIC ULCER DISEASES:- THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR STUDIES FOCUSED ON THE EPIDEMIOLOGY, PATHOGENESIS, NATURAL HISTORY, GENETICS, DIAGNOSIS AND MANAGEMENT OF PEPTIC DISORDERS AND OTHER DISEASES OF THE UPPER GASTROINTESTINAL TRACT IN CHILDREN. DISEASES THAT ARE RELEVANT TO THIS ANNOUNCEMENT INCLUDE, BUT ARE NOT LIMITED TO GASTROESOPHAGEAL REFLUX, REFLUX ESOPHAGITIS, EOSINOPHILIC (ALLERGIC) ESOPHAGITIS, MOTILITY DISORDERS OF THE UPPER GASTROINTESTINAL TRACT, HELICOBACTER PYLORI INFECTION WITH OR WITHOUT ULCERATION, NON-ULCER DYSPEPSIA, AND NON-BACTERIAL ULCER DISEASES. APPLICANTS AT ANY CAREER LEVEL MAY APPLY.(5) NASPGHAN FOUNDATION MID-LEVEL CAREER DEVELOPMENT AWARD:THIS MID-LEVEL CAREER DEVELOPMENT AWARD IS FOR NASPGHAN MEMBERS PURSUING RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION AND ARE AT A MID-LEVEL IN THEIR CAREER. MID-LEVEL IS DEFINED AS A FACULTY MEMBER WHO HAS HELD A FACULTY APPOINTMENT FOR AT LEAST 6 YEARS AT THE TIME OF THE APPLICATION, BUT HAS NOT YET REACHED PROFESSOR LEVEL. THIS AWARD WILL PROVIDE UP TO $100,000 IN DIRECT FUNDING FOR 2 YEARS ($50,000 PER YEAR) FOR THE ADVANCEMENT OF RESEARCH CAREERS FOR APPLICANTS WITH SIGNIFICANT PROMISE IN THEIR MID-YEARS AS FACULTY. THE PROPOSAL MUST INCLUDE A FOCUSED AREA OF RESEARCH THAT WILL DIRECTLY ENHANCE THE APPLICANT'S ABILITY TO ACHIEVE FURTHER NATIONAL PEER-REVIEWED RESEARCH FUNDING AND RESULT IN SIGNIFICANT IMPACT ON GASTROINTESTINAL, NUTRITION AND LIVER HEALTH IN CHILDREN. BASIC, CLINICAL, TRANSLATIONAL, EPIDEMIOLOGIC, DISSEMINATION AND IMPLEMENTATION RESEARCH ARE ALL ENCOURAGED. THIS AWARD IS TO FOSTER EITHER A NEW AREA OF ENQUIRY OR TO PROVIDE PILOT DATA IN AN ONGOING AREA OF RESEARCH WITH SUBSTANTIAL POTENTIAL FOR NEW FUNDING.[6] NASPGHAN FOUNDATION/APGNN SUSAN MOYER NURSING RESEARCH GRANT:THIS ONE-YEAR GRANT IS AVAILABLE TO PEDIATRIC GASTROENTEROLOGY, NUTRITION AND HEPATOLOGY NURSES TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL TO ADVANCE NURSING CARE OF PATIENTS AND FAMILIES OF CHILDREN WITH GASTROINTESTINAL, HEPATOBILIARY, OR NUTRITIONAL DISORDERS. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECTS TO STUDY THE NURSING CARE OFFAMILIES AND CHILDREN WITH PEDIATRIC GASTROINTESTINAL, HEPATOBILIARY, PANCREATIC OR NUTRITIONAL DISORDERS.[7]NASPGHAN FOUNDATION/ABBOTT NUTRITION ADVANCED FELLOWSHIP TRAINING IN PEDIATRIC NUTRITION:THE AWARD IS EXPECTED TO BEGIN ON JULY 1 OF EACH ACADEMIC TERM ALTHOUGH ALTERNATE START DATESWILL BE CONSIDERED TO ACCOMMODATE NON-TRADITIONAL ACADEMIC SCHEDULES. PEDIATRIC NUTRITION IS ONE OF THE FASTEST GROWING AREAS OF SCIENTIFIC AND CLINICAL IMPORTANCE TO CHILD AND POPULATIONHEALTH. TO ADDRESS THIS GROWING INTEREST AND TO ACCELERATE THE TRAINING OF PEDIATRIC EXPERTS, THE NASPGHAN FOUNDATION HAS PARTNERED WITH ABBOTT NUTRITION TO DEVELOP A PATHWAY FOR ADVANCED FELLOWSHIP TRAINING IN PEDIATRIC NUTRITION. THE NASPGHAN FOUNDATION/ABBOTT NUTRITION ADVANCED FELLOWSHIP IN NUTRITION WILL PROVIDE UP TO $75,000 IN DIRECT FUNDING TO SUPPORT ONE YEAR OF ADVANCED TRAINING IN PEDIATRIC NUTRITION FOR A NASPGHAN MEMBER. APPLICANTS ARE EXPECTED TO IDENTIFY A MENTOR AND A HOST NUTRITION RESEARCH PROGRAM PRIOR TO APPLICATION FOR FUNDING. THE FELLOWSHIP MUST INCLUDE A WELL-DEFINED CLINICALEXPERIENCE AS WELL AS A FOCUSED RESEARCH PROJECT. EXAMPLES OF AREAS FOR EMPHASIS INCLUDE BUT ARE NOT LIMITED TO: FETAL GROWTH AND NEONATAL NUTRITION, TYPICAL DEVELOPMENT OF FEEDING SKILLS/BEHAVIORS AND FEEDING DISORDERS; NUTRITIONAL ASPECTS OF EATING DISORDERS SUCH AS ANOREXIA NERVOSA AND BULIMIA; MALNUTRITION AND FAILURE TO THRIVE; NUTRITION EDUCATION; NUTRITION IN SPECIFIC SYSTEMIC DISEASES OR CLINICAL STATES SUCH AS CYSTIC FIBROSIS, LIVER DISEASE, INTESTINAL FAILURE, AND ORGAN TRANSPLANTATION; NUTRITION SUPPORT; COMMUNITY NUTRITION; NUTRITION EPIDEMIOLOGY; ENERGY HOMEOSTASIS; NUTRITION AND THE MICROBIOME; MICRONUTRIENT HOMEOSTASIS;NUTRIGENOMICS; OBESITY; BREAST MILK AND BREAST FEEDING; AND BASIC LABORATORY NUTRITIONAL SCIENCE. THE PRIMARY OBJECTIVE OF THE FELLOWSHIP IS TO CATALYZE AND INCREASE THE NUMBER OF HIGHLY-TRAINED, EXPERT NUTRITION CLINICIANS, EDUCATORS AND SCIENTISTS AMONG THE MEMBERSHIP OF NASPGHAN, AS A MEANS TO IMPROVE SERVICE TO OUR PATIENTS AND THE PUBLIC.[8] NASPGHAN FOUNDATION INNOVATIONS IN CLINICAL CARE GRANT:THE AIM OF THIS GRANT IS TO ENCOURAGE AND SUPPORT THE DEVELOPMENT OF INNOVAT
- $547,793 spent. EDUCATIONAL CAMPAIGNS:THE FOUNDATION SUPPORTS THE EDUCATIONAL MISSION OF NASPGHAN THROUGH A DIVERSE PORTFOLIO OF PROFESSIONAL AND PUBLIC EDUCATION INITIATIVES. TOPIC AREAS ARE REFLUX AND GERO, INFLAMMATORY BOWEL DISEASE, CELIAC DISEASE AND GLUTEN-RELATED DISORDERS, CONSTIPATION, EOSINOPHILIC ESOPHAGITIS, NUTRITION, ENDOSCOPY, AND NONALCOHOLIC FATTY LIVER DISEASE IN CHILDREN, ADOLESCENTS AND YOUNG ADULTS. THE FOUNDATION'S GOAL IS TO EDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND TO SUPPORT THE DEVELOPMENT OF NEW RESEARCH IN THESE AREAS. THE PRIMARY OBJECTIVES ARE TO IMPROVE THE QUALITY OF LIFE AND TO CHANGE PEDIATRIC AND ADULT HEALTH OUTCOMES BY EARLY DETECTION AND INTERVENTION. GIKIDS IS THE PATIENT OUTREACH AND EDUCATION EFFORT OF NASPGHAN. WITH GIKIDS, ASPGHAN AND THE FOUNDATION ARE WORKING TO REACH OUT IRECTLY TO AMILIES,KIDS AND TEENS WHO LIVE WITH DIGESTIVE CONDTIONS TO PROVIDE THEM WITH THE INFORMATION THEY NEED TO:-UNDERSTAND AND IMPROVE THEIR DIGESTIVE HEALTH-WORK WITH THEIR HEALTH CARE PROVIDERS-LIVE A MORE INDEPENDENT LIFE-UNDERSTAND WHAT WORKS IN PLAIN LANGUAGE"A PRACTICAL APPROACH TO NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES:TIPS FOR PATIENTS AND CAREGIVERS" WEBINAR AND ON DEMAND PROGRAM CHILDREN WITH CHOLESTATIC LIVER DISEASES HAVE UNIQUE NUTRITIONAL REQUIREMENTS.OBJECTIVES:1.OVERVIEW OF THE CLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDRENWITH CHOLESTATIC LIVER DISORDERS.2.REVIEW CURRENT AVAILABLE FORMULATION AND PRACTICAL TIPS FOR THE CARE PROVIDER.3.REVIEW THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS, FORMULATIONS AND DISCUSSION.4.DISCUSS LACK OF INSURANCE COVER FOR MEDICAL FOOD, VITAMINS AND FINANCIAL BURDEN TO THE FAMILIES. HEPATITIS C SLIDE SET AND GRAND ROUNDS HCV INFECTION IS CHILDREN IS FREQUENTLY UNRECOGNIZED. RECENTLY PROPOSED UNIVERSAL TESTING STRATEGIES DURING PREGNANCY NEED TO BEIMPLEMENTED. ALTHOUGH LIVER DISEASE IS GENERALLY MILD IN CHILDREN, CHRONIC HEPATITIS AND CIRRHOSIS OCCURS. DIRECT ACTIVE ANTIVIRALS ARE VERY EFFICACIOUS AND SAFE. THEREFORE, ALL HCV INFECTED CHILDREN> 3 YEARS OF AGE SHOULD BE CONSIDERED FOR TREATMENT. PUBLIC AND PROFESSIONAL EDUCATION IS CRITICALLY IMPORTANT TO INCREASE HCV AWARENESS. THE FOUNDATION DEVELOPED A SLIDE DECK AND GRAND ROUNDS PROGRAM TO INCREASE AWARENESS REGARDING TESTING ANDMANAGEMENT OF HCV. "NUTRITION AND LIVER DISEASE IN PEROXISOMAL BIOGENESIS DISORDERS: DIAGNOSIS AND MANAGEMENT" NASPGHAN NUTRITION UNIVERSITY (N2U) THIS COURSE IS DESIGNED TO PROVIDE SPECIALIZED NUTRITION EDUCATION IN AREAS ASSOCIATED WITH THE PRACTICE OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION TO 3RD YEAR FELLOWS, JUNIOR FACULTY AND DIETITIANS. IT TARGETS TWO GROUPS: CANDIDATES WHO RECEIVED MINIMAL NUTRITION EDUCATION DURING THEIR FELLOWSHIP OR WHOM PLAN TO PURSUE PEDIATRIC NUTRITION AS THEIR CAREER FOCUS.TEACHING AND TOMORROW UNDERREPRESENTED IN MEDICINE (URIM) PROGRAM THE PEDIATRIC GI TEACHING AND TOMORROW PROGRAM OF NASPGHAN STRIVES TO ATTRACT THE BRIGHTEST RESIDENTS TO SUBSPECIALTY TRAINING IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. DUE TO THE EXCELLENT INTEREST IN THIS INNOVATIVE NASPGHAN PROGRAM, WE HAVE SEEN CONTINUAL GROWTH IN THE INTEREST AND APPLICATIONS TO GI TRAINING PROGRAMS THROUGH THE YEARS. THIS PROGRAM HAS BEEN RECENTLY EXPANDED TO PROVIDE SCHOLARSHIPS TO INTERESTED 1ST AND 2ND YEAR PEDIATRIC RESIDENTS AND 4TH YEAR MEDICAL STUDENTS WHO SELF-IDENTIFY AS UNDERREPRESENTED IN MEDICINE (URIM). IN ADDITIONTO NETWORKING WITH OTHER PARTICIPANTS WHILE ATTENDING THE PROGRAM'S SCHEDULED SESSIONS,THE URIM PROGRAM ATTENDEES ARE MATCHED UP WITH A NASPGHAN FELLOW AND/OR ATTENDING PHYSICIAN (A TEACHING AND TOMORROW PROGRAM ALUMNUS) WHO SERVES AS A POINT OF CONTACT AND AMBASSADOR TO THE ANNUAL MEETING. URIM NASPGHAN/NASPGHAN FOUNDATION MEDICAL STUDENT MENTORED SUMMER RESEARCH PROGRAM THE URIM NASPGHAN/NASPGHAN FOUNDATION MEDICAL STUDENT MENTORED SUMMER RESEARCH PROGRAM TAKES PLACE AT MULTIPLE SITES THROUGHOUTTHE U.S. AND CANADA AND PROVIDES MEDICAL STUDENTS WHO SELF-IDENTIFY AS URIM WITH A 10-WEEK RESEARCH EXPERIENCE UNDER THE MENTORSHIP OF BASIC OR CLINICAL SCIENTISTS WITH A RESEARCH FOCUSIN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY, OR NUTRITION. CANDIDATES FOR THESE SCHOLARSHIPS MUST HAVE COMPLETED AT MINIMUM THEIR FIRST YEAR OF MEDICAL TRAINING AND BE IN GOOD STANDING ATACCREDITED MEDICAL SCHOOLS IN THE U.S. AND CANADA. REFERENCE IS GIVEN TO STUDENTS WHO ARE SEEKING A RESEARCH EXPERIENCE PREFERENCE IS GIVEN TO STUDENTS WHO ARE SEEKING A RESEARCH EXPERIENCE BETWEEN THE FIRST AND SECOND YEARS OF MEDICAL SCHOOL, THOUGH APPLICATIONS FROM ALL CURRENTLY ENROLLED STUDENTS ARE CONSIDERED. THESE STUDENTS ARE ALSO INVITED TO ATTEND THE ANNUAL MEETING, PRESENT A POSTER OF THEIR PROJECT AND PARTICIPATE IN THE TEACHING AND TOMORROW PROGRAM. EDUCATION THE FOUNDATION SUPPORTS THE EDUCATIONAL MISSION OF NASPGHAN THROUGH A DIVERSE PORTFOLIO OF PROFESSIONAL AND PUBLIC EDUCATION INITIATIVES. THE FOUNDATION'S GOAL IS TO EDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND TO SUPPORT THE DEVELOPMENT OF NEW KNOWLEDGE THROUGH RESEARCH. THE PRIMARY OBJECTIVES ARE TO IMPROVE THE QUALITY OF LIFE AND TO IMPROVE HEALTH OUTCOMES THROUGH EDUCATION, EARLY DETECTION AND EVIDENCE-BASED CARE.
- WEBINARS AND ON-DEMAND EDUCATIONAL MODULES EGIDS: BEYOND THE ESOPHAGUS. EGIDS ARE A COLLECTION OF CHRONIC INFLAMMATORY DISEASES INCLUDING EOSINOPHILIC ESOPHAGITIS (EOE), EOSINOPHILIC GASTRITIS (EG) EOSINOPHILIC GASTROENTERITIS(EGE), AND EOSINOPHILIC COLITIS (EC). AMONG THE EGIDS, EOE HAS BECOME AN INCREASINGLY RECOGNIZED AND STUDIED CONDITION. VALIDATED METRICS HAVE BEEN ESTABLISHED TO QUANTIFY QUALITY OF LIFE, SYMPTOMS, HISTOLOGIC AND ENDOSCOPIC FINDINGS. IN ADDITION, THERE ARE WELL-ESTABLISHED, EFFECTIVETREATMENTS. THE SAME CANNOT BE SAID FOR EG, EGE, OR EC, WHICH LACKS WELL ESTABLISHED HISTOLOGIC CRITERIA FOR DIAGNOSIS, AND HAS A MORE UNCLEAR NATURAL HISTORY, NOR WELL-ESTABLISHED TREATMENTS. EGIDS: BEYOND THE ESOPHAGUS BRINGS TO LIGHT THE LATEST ON NON-EOE EGID, INCLUDING THE SIGNS AND SYMPTOMS; THE CRITERIA TO MAKE A DIAGNOSIS; WHAT OPTIONS EXIST FOR THERAPY,AND THE POTENTIAL MECHANISMS OF DISEASE. PRACTICAL TIPS IN THE NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISORDERS: A WEBINAR FOR PATIENTS, FAMILIES AND CAREGIVERS.THIS WEBINAR EXPLORES PRACTICAL APPROACHES TO THE NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES, WITH SPECIAL TIPS FOR PATIENTS AND CAREGIVERS. PARTICIPANTS LEARN THECLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDREN WITH CHOLESTATIC LIVER DISORDERS, BECOME ACQUAINTED WITH DIFFERENCES AMONG THE CURRENTLY AVAILABLE FORMULATION TO SUPPORT NUTRITION IN CHOLESTATIC BABIES, AND THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS AND FORMULATIONS. THE LACK OF INSURANCE COVERAGE FORMEDICAL FOOD AND VITAMINS IS ALSO DISCUSSED.
- CHILDREN WITH CHOLESTATIC LIVER DISEASE : DIAGNOSTICS, MEDICAL MANAGEMENT OF CHRONIC PANCREATITIS IN CHILDREN:MAXIMIZING TREATMENT AND IMPROVING OUTCOMES, REMOVING DIETING FROM DIET THERAPIES IN PEDIATRIC GI, THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES, CHILDREN WITH CHOLESTATIC LIVER DISEASE: PRURITIS MANAGEMENT, NASPGHAN FELLOWS TOOLBOX WEBSITE, BOWEL SOUNDS EPISODES ON EARLY NUTRITION. CHOLESTATIC JAUNDICE IS A RARE PRESENTATION OF VARIOUS HEPATOBILIARY, METABOLIC, AND GENETIC DISORDERS . CHOLESTASIS TYPICALLY PRESENTS IN THENEONATAL/ INFANTILE PERIOD BUT CAN ALSO PRESENT LATE IN OLDER CHILDREN OR EVEN ADULTS . EARLY DIAGNOSIS AND APPROPRIATE MANAGEMENT OF THE UNDERLYING CONDITION ARE OF PARAMOUNT IMPORTANCE FOR OPTIMAL PROGNOSIS . DIAGNOSIS OF CHOLESTASIS NEEDS AN ARRAY OF INVESTIGATIONS INCLUDING BLOOD TESTS, IMAGING, GENETIC TESTING, AND INVASIVE PROCEDURES LIKE LIVER BIOPSY . LIVER BIOPSY IS ONE OF THE CENTRAL CRUCIAL INVESTIGATIONS DONE IN EVALUATING CHILDREN WITH CHOLESTASIS, HOWEVER, CAN BE ASSOCIATED WITH COMPLICATIONS INCLUDING BLEEDING . UNDERSTANDING WHEN TO USE A LIVER BIOPSY IN CHILDREN WITH CHOLESTASIS ALONG WITH ITS LIMITATIONS IS EXTREMELY IMPORTANT TO GAIN THE MAXIMUM BENEFIT OUT OF AN INVASIVE PROCEDURE. OVER THE LAST DECADE, THE GROWTH IN GENETIC TECHNIQUES AND THE IDENTIFICATION OF NEW GENES LEADING TO CHOLESTASIS IN CHILDREN HAVEEVOLVED SIGNIFICANTLY AND HAVE LED TO THE SHRINKING OF THE UNIDENTIFIED ETIOLOGIES. THIS WEBINAR ADDRESSES THE RAPIDLY EVOLVING FIELD OF GENETIC CHOLESTASIS AND WHEN TO PERFORM A LIVER BIOPSY,ITS UTILITY, AND LIMITATIONS. MEDICAL MANAGEMENT OF CHRONIC PANCREATITIS IN CHILDREN : MAXIMIZINGTREATMENT AND IMPROVING OUTCOMES CHRONIC PANCREATITIS (CP) IN CHILDREN IS ASSOCIATED WITH SIGNIFICANT MORBIDITY AND POOR QUALITY OF LIFE . THE INCIDENCE OF CP IN CHILDREN HAS RISEN OVER THE PAST FEW DECADES AND IS APPROACHING THAT SEEN IN THE ADULT POPULATION . CP IS AN INFLAMMATORY DISEASE RESULTING IN IRREVERSIBLE CHANGES IN THE PANCREAS INCLUDING ACINAR CELL LOSS, FIBROSIS, DUCTAL CHANGES, AND CALCIFICATIONS . PATIENTS WITH CP MAY SUFFER FROM ABDOMINAL PAIN AND COMPLICATIONS OF EXOCRINE PANCREATIC INSUFFICIENCY (EPI) AND DIABETES MELLITUS . MEDICAL MANAGEMENT OF CHRONIC PANCREATITIS IN CHILDREN : MAXIMIZING TREATMENT AND IMPROVINGOUTCOMES BRINGS TOGETHER LEADING EXPERTS TO DISCUSS HOW TO ENSURE THAT CHILDHOOD CP IS RECOGNIZED EARLY AND ITS SEQUALAE TREATED PROMPTLY . REMOVING DIETING FROM DIET THERAPIES IN PEDIATRIC GI OBESITY WAS DECLARED AN EPIDEMIC BY THE CDC IN THE 1990S, YET SIGNIFICANT AND SUSTAINED WEIGHT LOSS CONTINUES TO BE PROBLEMATIC FOR AMERICANS AS A POPULATION . CRITICAL FACTORS ARE OFTEN OVERLOOKED WHEN ADDRESSING OBESITY SUCH AS RACIAL DISCRIMINATION, DISABILITY STATUS, AND ENVIRONMENTAL FACTORS. IN CONJUNCTION, "WEIGHT STIGMA", OR BIAS THAT DEVALUES PEOPLE WITH LARGER BODIES, CAN CAUSE INCREASED MORBIDITY AND MORTALITY, INDEPENDENT OF BMI. AS A RESPONSE, A MOVEMENT IS TAKING PLACE, KNOWN BY SEVERAL NAMES INCLUDING "ANTI-DIET OR "INTUITIVE EATING". THIS IS AN INCLUSIVE MOVEMENT THAT RECOGNIZES ONE'S SIZE AS PART OF HIS OR HER IDENTITY AS MUCH AS RACE, NATIONAL ORIGIN, AND SEXUALITY. IT CONSIDERS SOCIAL, ECONOMIC, AND PHYSICAL BARRIERS TO OBESITY, RATHER THAN ASSUMING LACK OF WILLPOWER OR EDUCATION ARE THECAUSE . IT'S ABOUT RECOGNIZING "DIET CULTURE AND DISMANTLING THE ANTI-FAT AND PRO-THIN MESSAGES THAT INFILTRATE SOCIETY . THIS INFORMATIVE AND INTERACTIVE WEBINAR HELPS HEALTHCARE PROVIDERSRECOGNIZE WEIGHT STIGMA AND PROMOTE A POSITIVE RELATIONSHIP WITH FOOD, PARTICULARLY IN PATIENTS WITH GI-RELATED HEALTH CONDITIONS AND THOSE FOLLOWING THERAPEUTIC DIETS. THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES : PART ONE UNDERSTANDING NORMAL GROWTH AND DEVELOPMENT IS CRITICALLY ESSENTIAL FOR QUICK RECOGNITION AND INTERVENTION FOR DEVIATIONS IN CHILDHOOD GROWTH AND NUTRIENT INTAKE PRACTICES ASSOCIATED WITH INCREASED RISK FOR DISEASE AND POOR LONG-TERM HEALTH . NUTRIENT AND NON-NUTRIENT FACTORS INFLUENCE HEALTH OUTCOMES THROUGHOUT THE LIFECYCLE . THIS WEBINAR AND PODCAST SERIES, THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES DISCUSSES HOW TO IMPLEMENT NUTRIENT AND NON-NUTRIENT FACTORS THAT OPTIMIZE LONG-TERM HEALTH, RECOGNIZE CHILDHOOD GROWTH AND NUTRIENT INTAKE PATTERNS ASSOCIATED WITH DISEASE, CHILDHOOD MICROBIOME AND LONG-TERM RISK FOR DISEASE, AND EARLY DIAGNOSIS AND MANAGEMENT STRATEGIES FOR CHILDHOOD FEEDING DISORDERS. THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES : PART TWO UNDERSTANDING NORMAL CHILDHOOD GROWTH IS ESSENTIAL FOR QUICK RECOGNITION AND INTERVENTION FOR DEVIATIONS IN GROWTH AND NUTRIENT INTAKE ASSOCIATED WITH LONG-TERM RISK FOR DISEASE AND POOR HEALTH . THEREFORE, THE 'WHAT, HOW, AND IFS OF OPTIMIZING CHILDHOOD GROWTH AND LONG-TERM OUTCOMES' WEBINAR SERIES ADDRESSES THE KNOWLEDGE AND PRACTICE GAPS ABOUT NUTRIENT AND NON-NUTRIENT FACTORS ESSENTIAL FOR OPTIMIZING LONG-TERM HEALTH OUTCOMES . THE FIRST WEBINAR ADDRESSES THE EARLY LIFE NUTRITIONAL FACTORS THATPROMOTE HEALTHY GROWTH, THE DEVELOPMENT OF A MICROBIOME ASSOCIATED WITH OPTIMIZED LONG-TERM HEALTH, AND THE RECOGNITION OF EARLY CHILDHOOD GROWTH PATTERNS RELATED TO LONG-TERM RISK FOR OVERWEIGHT AND OBESITY . THIS PART TWO WEBINAR FOCUSES ON A NUTRITIONAL ASSESSMENT APPROACH THAT QUICKLY RECOGNIZES DISEASE, NUTRITIONAL MANAGEMENT OF CHILDHOOD FEEDINGDISORDERS, AND PRINCIPLES AND STRATEGIES FOR WEANING CHILDREN FROM DEPENDENCE ON TUBE FEEDS .CHILDREN WITH CHOLESTATIC LIVER DISEASE : PRURITIS MANAGEMENT PRURITUS IS A COMMON COMPLICATION OF CHOLESTATIC LIVER DISEASE THAT CAN SIGNIFICANTLY IMPAIR QUALITY OF LIFE. INTRACTABLE PRURITUS IS AN INDICATION FOR LIVER TRANSPLANT REGARDLESS OF PELD/ MELD SCORE.THE PATHOPHYSIOLOGY OF PRURITUS IS COMPLEX. SEVERAL MEDICATIONS SERVE AS STANDARDS FOR TREATMENT AND RECENT ADVANCES IN QUANTIFICATION HAS AL
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since May 1999.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.
Could it be confused with another charity? Worth knowing.
A much larger organization has a similar name: The Foundation (Houston, TX), EIN 92-0742101. If that is the one you meant, check the EIN before giving.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.
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