Skip to the page content
Your donations
Passes our checks

Childrens Cardiomyopathy Foundation Inc

EIN 75-2986661 · Tenafly, NJ

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthStrong100 out of 100GovernanceStrong90 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

TO ACCELERATE THE SEARCH FOR A CURE BY STIMULATING AND SUPPORTING PROMISING RESEARCH ON PEDIATRIC CARDIOMYOPATHY, BY EDUCATING AND ASSISTING PHYSICIANS AND PATIENTS ON THE COMPLEXITIES OF THE DISEASE, AND BY INCREASING AWARENESS AND ADVOCACY ON BEHALF OF AFFECTED CHILDREN AND THEIR FAMILIES.

Income
$996,165
Spending
$714,539
Spent on programs
71%
Reserves
55.2 months of spending
Largest source of income
donations and private grants, 94%
Employees
4
Volunteers
15
Highest pay
$225,807, executive di

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 100 out of 100. Higher than 81% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    35 of 35

    Spendable reserves would cover 55.2 months of spending.

  • Debt

    20 of 20

    It owes 1% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 28% of income.

  • Income trend

    15 of 15

    Income rose 40% on the year before.

  • Spending floor

    15 of 15

    71% of spending went to programs and raising each dollar of donations cost 10 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 90 out of 100. Higher than 73% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    6 of 7 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    0 of 10

    Did not give the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $121,350 spent. SUPPORT INNOVATIVE RESEARCH RELEVANT TO THE CAUSE, DIAGNOSIS AND/OR TREATMENT OF PEDIATRIC CARDIOMYOPATHY THROUGH RESEARCH GRANT AWARDS AND RESEARCH COLLABORATIONS WITH THE NATIONAL CARDIOMYOPATHY REGISTRY.
  2. $119,221 spent. HEIGHTEN AWARENESS OF PEDIATRIC CARDIOMYOPATHY AMONG THE GENERAL PUBLIC, PATIENT AND MEDICAL COMMUNITY AND DEVELOP ACCESSIBLE EDUCATIONAL MATERIALS TO MEET THEIR NEEDS.
  3. $143,051 spent. OFFER SUPPORT SERVICES, RESOURCES AND NETWORKING OPPORTUNITIES TO HELP FAMILIES WITH AFFECTED CHILDREN COPE WITH THE CHALLENGES OF LIVING WITH PEDIATRIC CARDIOMYOPATHY.
  4. $124,549 spent. GENERATE WIDESPREAD AWARENESS OF THE DISEASE AMONG GOVERNMENT, MEDICAL AND LAY COMMUNITIES TO PROMOTE INCREASED FOCUS AND FUNDING ON RESEARCH.
  5. GENERATE WIDESPREAD AWARENESS OF THE DISEASE AMONG GOVERNMENT, MEDICAL AND LAY COMMUNITIES TO PROMOTE INCREASED FOCUS AND FUNDING ON RESEARCH.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since July 2002.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.