Childrens Craniofacial Association
Public records show a registered, tax-exempt organization in good standing.
What it says it does
TO ASSIST FACIALLY DISFIGURED INDIVIDUALS AND THEIR FAMILIES LIVE POSITIVE, ENRICHED LIVES BY ADDRESSING THEIR MEDICAL, FINANCIAL, PSYCHOSOCIAL, AND EDUCATIONAL CONCERNS ON A NATIONAL AND INTERNATIONAL BASIS.
- Income
- $839,603
- Spending
- $802,696
- Spent on programs
- 78%
- Reserves
- 24.5 months of spending
- Largest source of income
- donations and private grants, 55%
- Employees
- 4
- Highest pay
- $88,400, exec directo
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 95 out of 100. Higher than 77% of charities in its peer group (diseases, $250k to $1m).
Reserves
35 of 35Spendable reserves would cover 24.5 months of spending.
Debt
20 of 20It owes 12% of what it owns.
Living within its means
15 of 15Income exceeded spending by 4% of income.
Income trend
10 of 15Income fell 8% on the year before.
Spending floor
15 of 1578% of spending went to programs and raising each dollar of donations cost 22 cents.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 90 out of 100. Higher than 72% of charities in its peer group (diseases, $250k to $1m).
Independent board
25 of 2511 of 11 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
0 of 10Did not give the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (1)
- $627,631 spent. ASSISTED PATIENTS IN FINDING MEDICAL CARE AND FACILITIES. ANSWERED QUESTIONS FROM PATIENTS AND THEIR FAMILIES REGARDING MEDICAL CARE, ARRANGED FINANCIAL AID, PROMOTED PUBLIC AWARENESS AND ACCEPTANCE OF THE FACIALLY DISFIGURED BY PUBLISHING MATERIALS ABOUT PATIENTS AND THEIR PROBLEMS. PUBLISHED NEWSLETTERS, SYNDROME BOOKLETS, AND PAPERS TO EDUCATE FAMILIES, HEALTHCARE PROVIDERS AND OTHERS REGARDING ISSUES THAT AFFECT INDIVIDUALS WITH A CRANIOFACIAL CONDITION AND THEIR FAMILIES. CONDUCTED AN ANNUAL FAMILY RETREAT AND MEDICAL SYMPOSIUM TO BRING AFFECTED INDIVIDUALS AND THEIR FAMILIES TOGETHER TO LEARN ABOUT CURRENT MEDICAL TREATMENT, AND TO SHARE SUPPORT AND RESOURCES THAT EMPOWER AND GIVE AFFECTED INDIVIDUALS AND FAMILIES HOPE.
Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending December 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since October 1989.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.