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Foundation to Eradicate Duchenne Inc

EIN 71-0874241 · Alexandria, VA

Public records raise at least one point you should look into before giving.

LegitimacyCautionRegistration and standingFinancial healthStrong95 out of 100GovernanceStrong100 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE.

Income
$1.1 million
Spending
$856,659
Spent on programs
79%
Reserves
19.6 months of spending
Largest source of income
donations and private grants, 86%
Employees
0
Volunteers
7

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Strong: 95 out of 100. Higher than 76% of charities in its peer group (medical research, $1m to $10m).

  • Reserves

    35 of 35

    Spendable reserves would cover 19.6 months of spending.

  • Debt

    20 of 20

    It owes 9% of what it owns.

  • Living within its means

    15 of 15

    Income exceeded spending by 20% of income.

  • Income trend

    10 of 15

    Income fell 3% on the year before.

  • Spending floor

    15 of 15

    79% of spending went to programs and raising each dollar of donations cost 11 cents.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 100 out of 100. Higher than 63% of charities in its peer group (medical research, $1m to $10m).

  • Independent board

    25 of 25

    7 of 7 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Independent check of accounts

    15 of 15

    Its accounts were audited by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (1)
  1. $677,274 spent. THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $602,274 DURING 2025. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAR DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY.

Source: Form 990 for the year ending December 31, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated September 30, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated September 10, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2025.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since May 2002.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated September 7, 2026.

  6. Is it in good standing with state regulators? Caution.

    California's Attorney General lists its registration as revoked as of December 31, 2006. Organizations on this list may not solicit donations in California.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 7, 2026.

Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.