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Bleeding Disorders Council of California

EIN 68-0182998 · Sacramento, CA

Public records show a registered, tax-exempt organization in good standing.

LegitimacyPassesRegistration and standingFinancial healthGood86 out of 100GovernanceStrong91 out of 100Impact evidenceDescribes programsHow well its results are evidenced

What it says it does

THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS.

Income
$366,609
Spending
$364,133
Spent on programs
85%
Reserves
9 months of spending
Largest source of income
donations and private grants, 95%
Employees
2
Volunteers
30
Highest pay
$93,450, executive dir.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Financial health

Good: 86 out of 100. Higher than 60% of charities in its peer group (diseases, $250k to $1m).

  • Reserves

    28 of 35

    Spendable reserves would cover 9.0 months of spending.

  • Debt

    16 of 20

    It owes 22% of what it owns.

  • Living within its means

    12 of 15

    Income exceeded spending by 1% of income.

  • Income trend

    15 of 15

    Income rose 10% on the year before.

  • Spending floor

    15 of 15

    85% of spending went to programs and raising each dollar of donations cost 2 cents.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Governance

Strong: 91 out of 100. Higher than 73% of charities in its peer group (diseases, $250k to $1m).

  • Independent board

    25 of 25

    13 of 13 voting board members are independent.

  • Conflict of interest policy

    15 of 15

    Has a written conflict of interest policy.

  • Whistleblower policy

    8 of 8

    Has a written whistleblower policy.

  • Record keeping policy

    7 of 7

    Has a written policy on keeping and destroying records.

  • Board minutes

    5 of 5

    Keeps minutes of board meetings.

  • Board sees the tax return

    10 of 10

    Gave the board a copy of this return before filing it.

  • Pay set independently

    5 of 5

    Sets its chief executive's pay through independent review and comparison.

  • Independent check of accounts

    6 of 15

    Its accounts were not audited or reviewed by an independent accountant.

  • No reported misuse

    10 of 10

    Reports no diversion of assets, excess benefits or loans to insiders.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Impact evidence

Describes programs. Its tax return describes what it does but we have found no measurable results in it.

Programs described in its return (5)
  1. $153,462 spent. EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE BLEEDING DISORDERS COMMUNITY AND THE GREATER COMMUNITY. HCC SUPPORTS AND ENCOURAGES ALL PATIENTS WITH BLEEDING DISORDERS TO SEEK THE EXPERT CARE OF TRAINED PROFESSIONALS AT THE HEMOPHILIA TREATMENT CENTERS THROUGHOUT THE STATE. HCC ALSO SUPPORTS CHOICE OF TREATMENT AND PROVIDERS, AND EDUCATES THE HEMOPHILIA COMMUNITY ON THE RANGE OF OPTIONS FOR TREATMENT.
  2. $91,790 spent. ADVOCACY & POLICY - THE HCC ACTIVELY SEEKS THE SUPPORT OF THE CALIFORNIA LEGISLATURE FOR MEASURES THAT WILL IMPROVE THE QUALITY OF LIFE OF MEMBERS IN OUR COMMUNITY. OUR EFFORTS FOCUS ON SUPPORTING THE CURRENT PROGRAMS THAT EXIST, AS WELL AS EVALUATING CHANGES TO THE CURRENT HEALTH SYSTEM THAT MAY AFFECT ACCESS AND QUALITY OF TREATMENT.IN ADDITION TO SERVING THE HCC BOARD, THE VOLUNTEER BOARD OF DIRECTORS ALSO SERVE THE HEMOPHILIA COMMUNITY IN VARIOUS CAPACITIES. SOME OF THESE INCLUDE EDUCATION, ADVOCACY, PHARMACEUTICAL INSIGHT, RELATIONAL DEVELOPMENT, AND FUTURE BUILDING.
  3. $29,890 spent. HEALTHCARE ACCESS FORUM - THIS IS A QUARTERLY BLEEDING DISORDERS INDUSTRY FORUM THATPROMOTES COMMUNICATION AMONG CONSUMERS, INDUSTRY, HEALTHCARE PROVIDERS, SPECIALTYPHARMACIES AND THE STATE.
  4. $21,827 spent. HCC POLICY SUMMIT PROGRAM - HCC HOSTS AN ANNUAL HEALTH SUMMIT ON HEALTHCARE POLICY AND CONSUMER HEALTHCARE ACCESS BARRIERS. THE ATTENDEES INCLUDE SOME OF THE TOP TEN PHARMACEUTICAL COMPANIES, PHARMACEUTICAL MANUFACTURERS, HEALTH CARE PROVIDERS, PATIENT ADVOCATES, REGIONAL/NATIONAL PATIENT ORGANIZATIONS, AND HEALTH-RELATED STATE GOVERNMENT AGENCIES.
  5. $12,900 spent. DIVERSITY & INCLUSION PROGRAM - THE HCC FOCUSES ON INCREASING ACCESS TO HEALTH CARE FOR UNDERSERVED COMMUNITIES AS WELL AS PROVIDING INCREASED EDUCATION AND HEALTH LITERACY FOR UNDERSERVED COMMUNITIES.

Source: Form 990 for the year ending December 31, 2024, filed with the Internal Revenue Service. Rating method 2026.2. How we rate

Legitimacy checks

  1. Is it registered with the IRS? Passed.

    Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  2. Has the IRS revoked its tax-exempt status? Passed.

    Not on the IRS automatic revocation list.

    Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.

  3. Are donations tax-deductible? Passed.

    On the IRS list of organizations eligible to receive tax-deductible contributions.

    Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.

  4. Is it keeping up with its IRS filings? Passed.

    Most recent return on file covers the year ending December 2024.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  5. How long has it been tax-exempt? Passed.

    Recognized by the IRS since November 1994.

    Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.

  6. Is it in good standing with state regulators? Passed.

    Not on California's list of charities barred from soliciting. Other states are not yet checked.

    Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.

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