Kentucky Hemophilia Foundation Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
The Kentucky Hemophilia Foundation assists individuals with hemophilia and similar bleeding disorders through education, advocacy, and support services and by promoting research for a cure.
- Income
- $252,280
- Spending
- $244,837
- Spent on programs
- 81%
- Reserves
- 24.9 months of spending
- Largest source of income
- donations and private grants, 100%
- Employees
- 3
- Volunteers
- 90
- Highest pay
- $82,333, executive director
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Strong: 95 out of 100.
Reserves
35 of 35Spendable reserves would cover 24.9 months of spending.
Debt
20 of 20It owes 8% of what it owns.
Living within its means
15 of 15Income exceeded spending by 3% of income.
Income trend
10 of 15Income fell 2% on the year before.
Spending floor
15 of 1581% of spending went to programs and raising each dollar of donations cost 6 cents.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100.
Independent board
25 of 257 of 7 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (4)
- $280 spent. Advocacy Day is an annual event at the state capitol to educate legislators about the needs and concerns of Kentucky's bleeding disorders community and emphasize the need for patient assistance programs and the importance of access to health care.
- $8,610 spent. The annual Family Information and Support Day at the Louisville Zoo provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor products and ancillary services and have an opportunity to meet and get acquainted with other families for support.
- $20,966 spent. Summer camp is a five day educational and recreational program for children and teens with bleeding disorders. The philosophy of our summer camp program is to empower campers to be healthy and active youngsters "just like any other kids" while learning to manage their bleeding disorder or learn about their sibling's bleeding disorder. The mission of the summer camp is to improve knowledge, attitudes, and behavorial skills of children with hemophilia or a similar bleeding disorder as well as accompanying siblings who do not have a bleeding disorder for developing a healthy, risk-reduced lifestyle. The goals of the summer camp program are to: 1. combine life skills education with outdoor adventure and fun for the development of self-esteem, confidence, team-building, and leadership skills through age and gender appropriate activities; 2. promote physical emotional, and mental wellness; 3. advocate risk-reducing behavior for optimal child development and prevention of complications for each child with a bleeding disorder.
- Expenses: 44,334 The Annual Education Meeting and Summer Family Event is our largest yearly education event, which features several nationally known speakers who address topics pertinent to the bleeding disorders community in the realm of research advances, new and future treatment options as well as overall well-being. The Year-End Community Event provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor products and ancillary services and have an opportunity to meet and get acquainted with other families for support. Expenses: 123,508 Support Services include emergency financial assistance, Medic Alert emblems, bicycle helmets, post-secondary education scholarships, sponsorships for attending conferences, educational seminars, web site, newsletter, other support services, and allocation of overhead to programs.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending June 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since November 1997.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.