ALS United of Georgia Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE MISSION OF THE ORGANIZATION IS TO ENHANCE THE LIVES OF GEORGIANS LIVING WITH ALS AND THEIR FAMILIES BY PROVIDING PERSONALIZED CARE SERVICES, FOSTERING A SUPPORTIVE COMMUNITY, AND ADVANCING RESEARCH FOCUSED ON TREATMENTS AND A CURE.
- Income
- $2.0 million
- Spending
- $1.5 million
- Spent on programs
- 76%
- Reserves
- 10.5 months of spending
- Largest source of income
- donations and private grants, 93%
- Employees
- 10
- Volunteers
- 150
- Highest pay
- $130,089, executive director
Source: Form 990 for the year ending January 31, 2026, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 83 out of 100. Higher than 62% of charities in its peer group (health care, $1m to $10m).
Reserves
28 of 35Spendable reserves would cover 10.5 months of spending.
Debt
20 of 20It owes 2% of what it owns.
Living within its means
15 of 15Income exceeded spending by 25% of income.
Income trend
5 of 15Income fell 22% on the year before.
Spending floor
15 of 1576% of spending went to programs and raising each dollar of donations cost 11 cents.
Source: Form 990 for the year ending January 31, 2026, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100. Higher than 67% of charities in its peer group (health care, $1m to $10m).
Independent board
25 of 2512 of 12 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending January 31, 2026, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (1)
- $1.2 million spent. CARE SERVICES -THE RELATIONSHIP BETWEEN THE CARE SERVICES TEAM AND THE PERSONS DIAGNOSED WITH ALS (PALS) AND THEIR FAMILY MEMBERS COMMENCE UPON DIAGNOSIS. THE GOAL OF THE PROGRAM IS TO ENSURE THAT INDIVIDUALS AND THEIR FAMILIES EXPERIENCE OPTIMAL EMOTIONAL FUNCTIONING GIVEN THE DEVASTATION OF THE DISEASE. OUR ATTEMPT TO SUCCESSFULLY IMPACT FAMILIES CAN BE OUTLINED WITHIN OUR EXISTING PROGRAMS: EDUCATION, KOSTIUK CARE GRANT, SUPPORT GROUPS, RICKY P. SWEAT EQUIPMENT LOANER & ASSISTIVE TECHNOLOGY PROGRAM, SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM, PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM, AND CLIENT CONSULTATIONS. INDIVIDUALS WHO ARE NEWLY DIAGNOSED OFTEN NEED TIME TO ABSORB THE IMPACT OF THEIR DIAGNOSIS, THEREFORE BASIC INFORMATION AND EDUCATION IS PROVIDED IMMEDIATELY BY ALS UNITED OF GEORGIA. THIS INFORMATION INCLUDES, BUT IS NOT LIMITED TO, THE DIAGNOSIS ITSELF, DISEASE TRAJECTORY, RESOURCES AND SUPPORT, AND ONGOING RESEARCH. DURING FYE 2026, ALS UNITED OF GEORGIA SAW 190 INDIVIDUALS & THEIR FAMILIES DIAGNOSED WITH ALS REGISTER WITH THE ORGANIZATION. ANNUALLY THE ORGANIZATION PROVIDES AN EDUCATIONAL SYMPOSIUM WHICH HIGHLIGHTS RESEARCH, SUPPORT AND EDUCATIONAL OPPORTUNITIES FOR PEOPLE LIVING WITH ALS, COMMUNITY PROVIDERS, AND SUPPORTERS. ALTHOUGH TO DATE THERE IS NO CURE FOR THIS DISEASE, ALS UNITED OF GEORGIA IS PASSIONATE ABOUT THE MISSION OF ONE DAY FINDING A TREATMENT AND ULTIMATELY A CURE.THE FINANCIAL HARDSHIP THAT FAMILIES INCUR AS THE RESULT OF AN ALS DIAGNOSIS CAN IMPACT THEIR QUALITY OF LIFE TREMENDOUSLY. FOR THOSE THAT MAY NEED ADDITIONAL HELP, THE KOSTIUK CARE GRANT PROGRAM STRIVES TO PROVIDE SOME RELIEF. THIS PROGRAM IS A REIMBURSEMENT PROGRAM THAT ASSISTS FAMILIES WITH EXPENSES THAT ARE NOT TRADITIONALLY COVERED BY PRIVATE INSURANCES, MEDICAID OR MEDICARE. IT WILL COVER EXPENSES RELATED TO HOME CARE ASSISTANCE (RESPITE), TRAVEL COSTS FOR ATTENDANCE TO AND FROM ALS CLINICS, HOME MODIFICATIONS, AUTO MODIFICATIONS AND COMMUNICATION DEVICES. RECIPIENTS MAY APPLY FOR AND RECEIVE UP TWO GRANTS PER YEAR IN THE AMOUNT OF $1,000 PER GRANT REQUEST. GRANTS ARE AWARDED TWICE A YEAR ON A FIRST COME FIRST SERVE BASIS AND WILL BE BASED ON AVAILABILITY OF FUNDS. DURING FYE 2026, $203,000 WAS AWARDED IN KOSTIUK CARE GRANT FUNDS, SERVING 203 INDIVIDUALS. THE SUPPORT GROUP PROGRAM PROVIDES PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO CONNECT WITH OTHERS IN THE COMMUNITY WHO SHARE SIMILAR CHALLENGES AND NEEDS. THE GROUPS ARE DESIGNED TO PROVIDE EMOTIONAL AND PSYCHOSOCIAL SUPPORT AS WELL AS RESOURCES AND EDUCATION. KNOWING WHAT QUESTIONS TO ASK AND WHERE TO LOOK FOR RESOURCES IS VITAL. THE ORGANIZATION CURRENTLY CONDUCTS MONTHLY SUPPORT GROUPS THAT MEET THE NEEDS OF 159 COUNTIES IN THE STATE OF GEORGIA. THESE GROUPS ARE FACILITATED BY PROFESSIONALS AND COMMUNITY PARTNERS TO ENSURE MAXIMUM RESULTS. BECAUSE THE NEEDS OF CAREGIVERS AND CHILDREN CAN BE VERY SENSITIVE, THE ORGANIZATIONHAS DEVELOPED SPECIFIC GROUPS TO ADDRESS THOSE NEEDS. DURING FYE 2026, 100 SUPPORT GROUP MEETINGS WERE HELD OVER 9 LOCATIONS THROUGHOUT THE STATE, IMPACTING OVER 1,220 INDIVIDUALS WHO PARTICIPATED & ATTENDED.AS THE DISEASE PROGRESSES, INDIVIDUALS WILL EXPERIENCE A DECLINE IN FUNCTIONING AS IT RELATES TO MOBILITY AND SPEECH. THESE CHALLENGES CAN IMPACT INDEPENDENCE AND QUALITY OF LIFE. IN SOME SITUATIONS, SPECIFIC MEDICAL AND COMMUNICATION DEVICES ARE REQUIRED BUT NOT COVERED BY PRIVATE INSURANCE, MEDICAID OR MEDICARE. THE EQUIPMENT LOANER PROGRAM PROVIDES SUCH EQUIPMENT TO PEOPLE WITH ALS AT NO COST. THIS PROGRAM WORKS DILIGENTLY TO OBTAIN, THROUGH GRANT FUNDING OR PRIVATE DONATIONS, SUCH ITEMS THAT CAN ENSURE INCREASED INDEPENDENCE. ALS UNITED OF GEORGIA, IN PARTNERSHIP WITH COMMUNITY PROVIDERS, COLLABORATE ON THE MAINTENANCE AND STORAGE OF ALL EQUIPMENT.90% OF THE CURRENT ALS COMMUNITY IN GEORGIA CONTINUES TO REMAIN IN THEIR HOME THROUGHOUT THE DISEASE PROCESS. THIS BECOMES INCREASINGLY DIFFICULT BECAUSE THEY WILL REQUIRE TOTAL ADL CARE FROM ADDITIONAL PROVIDERS. THIS SERVICE IS NOT COVERED BY MEDICARE OR PRIVATE INSURANCE COMPANIES. THE SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM PROVIDES ALS WITH UP TO 18 HOURS OF IN-HOME CARE PER WEEK. THE CARE IS PROVIDED BY LICENSED COMMUNITY PARTNERS OF THE ALS UNITED OF GEORGIA AND ELIGIBILITY IS BASED ON A NEEDS ASSESSMENT. DURING FYE 2026, 14,699 IN-HOME CARE HOURS WERE PROVIDED THROUGH THIS PROGRAM.ACCESS TO QUALITY CARE AND RESEARCH CAN BE CHALLENGING FOR THOSE IMPACTED BY ALS. AS MOBILITY DECLINES AND THE NEED FOR ASSISTIVE TECHNOLOGY INCREASES, PEOPLE WITH ALS FIND IT DIFFICULT TO ATTEND NEEDED APPOINTMENTS VIA TRADITIONAL MODES OF TRANSPORTATION. MEDICARE AND MEDICAID ARE VERY LIMITED REGARDING THE COVERAGE OF NON-EMERGENCY TRANSPORTATION. THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM IS FOCUSED ON ADDRESSING TRANSPORTATION NEEDS VIA: NON-EMERGENCY TRANSPORTATION, VAN RENTALS, VEHICLE MODIFICATION AND VOUCHERS. DURING FYE 2026, 150 TRANSPORTATION TRIPS WERE APPROVED AND WITH 39 OF THOSE BEING VAN RENTALS AND PROVIDED TO FAMILIES THROUGH THIS PROGRAM.INFORMATION IS VITAL TO PEOPLE WITH ALS. AS THE BODY DECLINES IT IS VERY IMPORTANT TO BE PRESENTED WITH REALISTIC EXPECTATIONS REGARDING THE DISEASE TRAJECTORY. SKILLED CARE SERVICE COORDINATORS ARE AVAILABLE TO PROVIDE ONGOING CONSULTATIONS THROUGH OUR CARE SERVICES CONSULTATION PROGRAM. THE ONGOING CONSULTATIONS PROVIDE THE OPPORTUNITY TO ASSESS, EDUCATE, AND EMPOWER INDIVIDUALS AND THEIR FAMILIES TO MAKE INFORMED DECISIONS. THE COORDINATORS ARE ALSO VERY INSTRUMENTAL IN IDENTIFYING AND MAKING COMMUNITY REFERRALS. ALS UNITED OF GEORGIA IS THE CONNECTION BETWEEN WHAT IS NEEDED AND WHAT IS AVAILABLE FOR PEOPLE WITH ALS, THEIR FAMILIES, AND CAREGIVERS. IN FYE 2026, THE CARE SERVICES COORDINATOR TEAM SERVED 616 INDIVIDUALS LIVING WITH ALS AND THEIR FAMILIES.
Source: Form 990 for the year ending January 31, 2026, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated November 6, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending January 2026.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since March 2024.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated November 4, 2026.
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