Solve Me Cfs Initiative Inc
Public records show a registered, tax-exempt organization in good standing.
What it says it does
THE SOLVE ME/CFS INITIATIVE (SOLVE M.E.) IS A NON-PROFIT ORGANIZATION THAT SERVES AS A CATALYST FOR CRITICAL RESEARCH INTO DIAGNOSTICS, TREATMENTS, AND CURES FOR MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME (ME/CFS), LONG COVID AND OTHER (CONTINUED ON SCH. O) POST-INFECTION DISEASES. OUR WORK WITH THE SCIENTIFIC, MEDICAL, AND PHARMACEUTICAL COMMUNITIES, ADVOCACY WITH GOVERNMENT AGENCIES, AND ALLIANCES WITH PATIENT GROUPS AROUND THE WORLD ARE LAYING THE FOUNDATION FOR BREAKTHROUGHS THAT CAN IMPROVE THE LIVES OF MILLIONS WHO SUFFER FROM VARIOUS ''LONG HAUL'' DISEASES.
- Income
- $2.1 million
- Spending
- $1.9 million
- Spent on programs
- 61%
- Reserves
- 5.8 months of spending
- Largest source of income
- donations and private grants, 99%
- Employees
- 11
- Volunteers
- 1,688
- Highest pay
- $178,843, president/ceo
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Financial health
Good: 78 out of 100.
Reserves
20 of 35Spendable reserves would cover 5.8 months of spending.
Debt
20 of 20It owes 14% of what it owns.
Living within its means
15 of 15Income exceeded spending by 9% of income.
Income trend
15 of 15Income rose 7% on the year before.
Spending floor
8 of 1561% of spending went to programs and raising each dollar of donations cost 23 cents.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Governance
Strong: 100 out of 100.
Independent board
25 of 2515 of 16 voting board members are independent.
Conflict of interest policy
15 of 15Has a written conflict of interest policy.
Whistleblower policy
8 of 8Has a written whistleblower policy.
Record keeping policy
7 of 7Has a written policy on keeping and destroying records.
Board minutes
5 of 5Keeps minutes of board meetings.
Board sees the tax return
10 of 10Gave the board a copy of this return before filing it.
Pay set independently
5 of 5Sets its chief executive's pay through independent review and comparison.
Independent check of accounts
15 of 15Its accounts were audited by an independent accountant.
No reported misuse
10 of 10Reports no diversion of assets, excess benefits or loans to insiders.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Impact evidence
Describes programs. Its tax return describes what it does but we have found no measurable results in it.
Programs described in its return (2)
- $645,399 spent. ADVOCACY AND COMMUNICATION ACCOMPLISHMENTS: IN 2025, SOLVE M.E. ADVANCED NATIONAL AWARENESS AND POLICY MOMENTUM FOR ME/CFS AND LONG COVID THROUGH COORDINATED FEDERAL ADVOCACY AND COMMUNITY ENGAGEMENT. DURING ADVOCACY WEEK 2025, MORE THAN 3,500 ADVOCATE EMAILS, CALLS, AND TEXTS WERE SENT TO MEMBERS OF CONGRESS TO SUSTAIN THE CDC CHRONIC FATIGUE SYNDROME PROGRAM AND ENSURE ME/CFS REMAINED ELIGIBLE UNDER THE DEPARTMENT OF DEFENSE CDMRP PROGRAM. EMILY TAYLOR, MONIQUE WIKE, AND VOLUNTEERS MET WITH OVER TWENTY CONGRESSIONAL OFFICES IN WASHINGTON, D.C., SECURING BIPARTISAN SUPPORT, WITH 11 SENATORS JOINING THE CDC DEAR COLLEAGUE LETTER AND 10 SENATORS SUPPORTING THE CDMRP REQUEST. SOLVE MAINTAINED A STRONG NON-PARTISAN STRATEGY TO KEEP RESEARCH AND PROGRAM FUNDING VIABLE ACROSS ADMINISTRATIONS. (CONTINUED ON SCH. O) EMILY TAYLOR CO-AUTHORED A WHITE PAPER PROPOSING NIH RESTRUCTURING TO BETTER SUPPORT INFECTION-ASSOCIATED CHRONIC CONDITIONS AND COLLABORATED ON THREE MAJOR RECOVER PUBLICATIONS ADVANCING SCIENTIFIC AND POLICY UNDERSTANDING. THROUGH ITS PARTNERSHIP WITH MEACTION ON THE GO LOCAL CAMPAIGN, THE LIVED EXPERIENCE TASK FORCE MICROGRANT PROGRAM, AND EDUCATIONAL WEBINARS WITH THE BATEMAN HORNE CENTER, SOLVE CONTINUED TO EXPAND GRASSROOTS LEADERSHIP, EDUCATION, AND FEDERAL ENGAGEMENT, FURTHER ELEVATING THE PATIENT VOICE IN NATIONAL DECISION-MAKING. THE SUCCESSFUL INCLUSION OF ME/CFS WITHIN THE CDMRP RESULTED IN MORE THAN $300 MILLION IN POTENTIAL RESEARCH FUNDING OPPORTUNITIES, MARKING A MAJOR MILESTONE FOR THE COMMUNITY AND THE FIELD.
- $517,700 spent. RESARCH ACCOMPLISHMENTS: SOLVE'S RESEARCH INITIATIVES ACHIEVED MAJOR MILESTONES THIS YEAR THROUGH NEW AWARDS, PARTNERSHIPS, AND PLATFORM DEVELOPMENT. THE ORGANIZATION LAUNCHED A $30,000 CATALYST FUND AT YALE TO SUPPORT DR. AKIKO IWASAKI'S PIONEERING ME/CFS AND LONG COVID RESEARCH, AND PROVIDED A $37,000 CATALYST AWARD TO SIMMARON RESEARCH FOR ITS RAPAMYCIN TRIAL. ADDITIONAL RAMSAY AWARDS SUPPORTED PROJECTS BY DR. DANA YELIN AND THE UNIVERSITY COLLEGE LONDON TEAM LED BY PROFESSOR CAMBRIDGE, ENSURING CONTINUED ENGAGEMENT THROUGH PUBLIC WEBINARS AND OUTREACH. SOLVE FORMALIZED THE BIC/CODA ALLIANCE, ALIGNING WITH METRODORA AND CARE EVOLUTION TO BUILD AN INTEGRATED RESEARCH AND DATA-SHARING ECOSYSTEM. FOLLOWING A SUCCESSFUL PRESS LAUNCH REACHING AN ESTIMATED 140 MILLION PEOPLE, SOLVE COORDINATED (CONTINUED ON SCH. O) THE IRB TRANSITION TO METRODORA AND PREPARED FOR PEDIATRIC AND SPANISH-LANGUAGE EXPANSION OF THE PLATFORM. THE ORGANIZATION ALSO ENTERED A PARTNERSHIP WITH GENETIC ALLIANCE AND GALATEA FOR FREE BIOBANK STORAGE AND ENHANCED MEMBER DATA CONTROL THROUGH DIGITAL CABINET ACCESS. TOGETHER, THESE ACCOMPLISHMENTS REFLECT SOLVE'S DEEP COMMITMENT TO ACCELERATING RESEARCH, FOSTERING COLLABORATION, AND TRANSLATING SCIENCE INTO TANGIBLE PROGRESS FOR PATIENTS WORLDWIDE.
Source: Form 990 for the year ending June 30, 2025, filed with the Internal Revenue Service. Rating method 2026.2. How we rate
Legitimacy checks
Is it registered with the IRS? Passed.
Listed in the IRS master file of tax-exempt organizations as a 501(c)(3) charitable organization.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Has the IRS revoked its tax-exempt status? Passed.
Not on the IRS automatic revocation list.
Source: Automatic revocation of exemption list, Internal Revenue Service, file dated October 13, 2026.
Are donations tax-deductible? Passed.
On the IRS list of organizations eligible to receive tax-deductible contributions.
Source: Publication 78 data: organizations eligible for tax-deductible contributions, Internal Revenue Service, file dated October 13, 2026.
Is it keeping up with its IRS filings? Passed.
Most recent return on file covers the year ending June 2025.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
How long has it been tax-exempt? Passed.
Recognized by the IRS since July 1991.
Source: Exempt Organizations Business Master File, Internal Revenue Service, file dated October 13, 2026.
Is it in good standing with state regulators? Passed.
Not on California's list of charities barred from soliciting. Other states are not yet checked.
Source: May Not Operate or Solicit for Charitable Purposes list, California Attorney General, Registry of Charities and Fundraisers, file dated October 21, 2026.
Ratings and checks are our reading of public records, using the published method. They are not a statement about anyone's honesty. If you work for this organization, you can send corrections or results, confirm you want gifts through Veridonate, or ask to be removed from giving.